The Impact of the COVID-19 Pandemic on Family-Focused Care of People With Alzheimer’s Disease and Related Dementias

Anderson, Joel; Jao, Ying-Ling

doi:10.1177/10748407221108200

Cited by 3 publications

(3 citation statements)

References 33 publications

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“…Although these strategies effectively curbed the spread of COVID-19, as various studies have indicated, they also had significant implications for the mental health of individuals and families. 41 , 42 , 43 A notable study conducted across three South American countries, 42 including Chile, reported significant declines in memory function among 53% of individuals living with dementia. It also found increased levels of sadness (31%) and anxiety (37%).…”

Section: Discussionmentioning

confidence: 99%

The impact of COVID-19 on deaths from dementia and Alzheimer’s disease in Chile: an analysis of panel data for 16 regions, 2017–2022

Barría-Sandoval,

Ferreira,

Navarrete

et al. 2024

The Lancet Regional Health - Americas

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Section: Discussionmentioning

confidence: 99%

The impact of COVID-19 on deaths from dementia and Alzheimer’s disease in Chile: an analysis of panel data for 16 regions, 2017–2022

Barría-Sandoval,

Ferreira,

Navarrete

et al. 2024

The Lancet Regional Health - Americas

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“…There may be changes in the prevalence of psychological disorders over time in a viral epidemic, but the long‐term impact of COVID‐19 is poorly understood (Allan et al, 2020). As authors are beginning to suggest (Anderson & Jao, 2022), COVID‐19 has long‐term potential to impact family‐focused care. It is important that nurse leaders, health care administrators, and policy makers attend to this reality in current health care settings to preserve current and future nursing workforce capacity.…”

Section: Discussionmentioning

confidence: 99%

“…According to the World Health Organization (WHO), a population-based estimate shows that Brazil and the United States lead the ranking of deaths of health care workers (WHO, 2021). In Brazil and the United States, social inequalities and politicization of COVID-19 contributed to higher-than-expected rates of infection and death of nursing personnel (Anderson & Jao, 2022;David et al, 2021;Halpern, 2020).…”

Section: Backg Round and Purp Os Ementioning

confidence: 99%

Reframing care while enduring the traumatic nature of witnessing disrupted family‐patient‐nurses' relationships during COVID‐19

Santos

Abbott‐Anderson

Ponto

et al. 2023

Journal of Advanced Nursing

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AimTo describe the lived experiences of nurses caring for patients and families in the context of COVID‐19 in Brazil and United States.DesignA phenomenological philosophical approach following the van Manen analysis method.MethodsParticipants were recruited in Brazil and the United States, including nurses working in health care settings caring for COVID‐19 patients. Recruitment used purposive and snowball sampling. Participants completed a demographic survey and semi‐structured interviews that were audio‐recorded and transcribed for analysis. A cross‐cultural examination occurred among researchers from each country.ResultsThe result was described (n = 35) by the themes, representing the essences of each lifeworld (relationship, time, space and body). The nurses' lived experience was one of reframing care while enduring repeated trauma of witnessing disrupted patient‐family‐nurse relationships. Themes were as follows: (a) Living a silent and lonely experience; (b) Providing connectedness for disrupted patient and family relationships; (c) Feeling the burden of the demands; (d) Being a helping connector; (e) Reshaping spaces amidst evolving interventions and policies; (f) Creating safe spaces, surrounded by turmoil, threat, and distress within an unsafe environment; (g) Reorganizing care and reframing time; (h) Reconciling losses, regrets, victories and lessons.ConclusionThe nurses' lived experience of caring for patients and families during the COVID‐19 pandemic prompted the need to respond to repeated traumas and distress posed by interrupted patient‐family and nurse‐own family relationships, vulnerable bodies, threatened space and dynamic and volatile time.ImpactCultural nuances were discovered depending on the practice setting, political discourse and the autonomy of the nurse. Innovative models of care that create structures and processes to support nurses in caring for patients in threatening environments and the commitment to connecting family members have potential to contribute to the ongoing health of the nursing profession.

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Family Caregivers' Experiences of Long‐Term Care Residents Living With Dementia During the COVID‐19 Pandemic: An International Grounded Theory Study

Abbott‐Anderson,

Higami,

Yamauchi

et al. 2025

Journal of Advanced Nursing

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AimsCaution around the COVID‐19 pandemic resulted in visitation restrictions to prevent the spread of the virus among vulnerable older persons living in long‐term care (LTC), which posed a threat to individual well‐being and family togetherness across the globe. The purpose of this study was to explore family caregiver's experience of having a person who is living with dementia residing in a long‐term care facility during the COVID‐19 pandemic.DesignQualitative descriptive study using constructivist grounded theory (GT) methodology.MethodsThe study was carried out in five countries: the United States, Switzerland, Hong Kong (China), United Kingdom and Japan. Data were collected between June 2021 and August 2022. In‐depth understanding and initial theorising about experiences and social interactions between family members, residents and long‐term care staff across cultural contexts, strategies from constructive GT were used. Data were collected through 15 semi‐structured, in‐depth interviews with 16 family members. Analysis included individual and team‐based coding, memo‐writing, constant comparison and category generation.ResultsDue to visit restrictions, families faced upsetting situations of exclusion. The caregiver participants experienced inequality, felt isolated and witnessed residents' despair and helplessness. Analysis revealed four subthemes to the basic social process of ‘negotiating for access to maintain relational continuity’: (1) Feeling excluded, isolated and upset; (2) facing depersonalising situations; (3) navigating challenging interactions; and (4) living with (post‐) pandemic circumstances.ConclusionThis study highlights the suffering experienced by family caregivers and their loved ones living with dementia in long‐term care during COVID‐19, demonstrating the key role that relationships play in family care. During similar public health crises, policies and infection prevention measures that depict family and close caregivers as visitors whose access needs to be regulated need to be altered into policies that enable a culture of partnership and inclusion acknowledging the importance of social interactions for health and well‐being.Reporting MethodThe COREQ checklist was followed.Patient or Public contributionNo patient or public contribution.Protocol RegistrationNot applicable due to study design.

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The Impact of the COVID-19 Pandemic on Family-Focused Care of People With Alzheimer’s Disease and Related Dementias

Cited by 3 publications

References 33 publications

The impact of COVID-19 on deaths from dementia and Alzheimer’s disease in Chile: an analysis of panel data for 16 regions, 2017–2022

The impact of COVID-19 on deaths from dementia and Alzheimer’s disease in Chile: an analysis of panel data for 16 regions, 2017–2022

Reframing care while enduring the traumatic nature of witnessing disrupted family‐patient‐nurses' relationships during COVID‐19

Family Caregivers' Experiences of Long‐Term Care Residents Living With Dementia During the COVID‐19 Pandemic: An International Grounded Theory Study

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