The impact of the Symptoms of dementia on caregivers

Donaldson, Catherine; Tarrier, Nicholas; Burns, Alistair

doi:10.1192/bjp.170.1.62

Cited by 257 publications

(184 citation statements)

References 28 publications

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“…As for the daily activities and the burden they impose on the caregiver, previous research findings are inconsistent 19,25,26 . In this study, instrumental and basic daily activities which had a greater influence on burden were: using the telephone, locomotion, going shopping, carrying out household chores, bathing and getting dressed.…”

Section: Discussionmentioning

confidence: 89%

An evaluation of the burden of Alzheimer patients on family caregivers

Moraes

Silva²

2009

Cad. Saúde Pública

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Caregivers are indispensable to persons living with Alzheimer's disease; however, such care involves hard work, and the consequences of this activity on caregivers are often neglected. The objective of this study was to construct a profile for caregivers of Alzheimer patients and to evaluate the burden such care imposes on them. It is a transversal study of 122 caregivers from the metropolitan region of Londrina, Paraná State, Brazil. Socio-demographic data for the caregivers were analyzed, while the Katz scale and Lawton index were used to evaluate the functionality of Alzheimer's patients, and the Burden Interview Scale assessed the burden these patients impose on caregivers. Caregivers are predominantly married, are daughters who have learned to care for the patient on a daily basis, usually with some help, and they do so out of love. The caregiver's age (p < 0.01), whether or not the caregiver had help (p < 0.01), and the number of hours caring for the patient (p = 0.01) were associated with the impact. Results showed that the burden imposed on caregivers by Alzheimer patients is a heavy one.

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Section: Discussionmentioning

confidence: 89%

An evaluation of the burden of Alzheimer patients on family caregivers

Moraes

Silva²

2009

Cad. Saúde Pública

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“…Research also suggested that an individual's perceived quality of life is associated with the amount and types of available social support (Schultz & Martire 2004;Donaldson, Tarrier & Burns 1997).…”

Section: Distress and Quality Of Life Among Family Carers Of A Relatimentioning

confidence: 99%

An experimental study on the effectiveness of a mutual support group for family caregivers of a relative with dementia in mainland China

2012

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When caring for an older relative with dementia, family members experience considerable distress and burden. Literature reviews show that supportive group interventions for these caregivers have significant positive effects on improving their distress and quality of life, but not consistent and conclusive. Limited research is found in Asian populations. This study tested the effectiveness of a 12-session bi-weekly mutual support group program for Chinese family caregivers of a relative with dementia in Guangzhou of mainland China, when compared with standard family support service. An experimental study with pretest and posttest, parallel groups design was conducted. A randomized sample of 78 family caregivers, 39 in each of the experimental and control groups, from one regional dementia care center participated in the study. A protocol was specifically designed by an advanced practice nurse to guide the mutual support group process and the facilitator and peer leader training, based on evidence from the literature on family support group intervention in Western countries.The results of ANOVA tests indicated that the mutual support group participants had significantly greater improvements in distress levels and quality of life than the control group. There were only mild changes in the demands for mental health services in both groups at post-test. These findings support the effectiveness of mutual support groups to offer psychosocial support to Chinese family caregivers in dementia care beyond routine community mental health care.Effectiveness of mutual support group 3

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“…So zeigten verschiedene Autoren, dass Angehörige, die kognitiv Beeinträchtigte pflegen, höhere Werte in verschiedenen Belastungsindikatoren (Depressions-und Angstskalen, körperliche Beschwerden, subjektive Belastung) aufweisen als Angehörige von rein körperlich Erkrankten oder Nicht-Pflegende (Clipp & George, 1993;Houlihan, 1987;Sistler, 1989). Es sind jedoch nicht so sehr die kognitiven Defizite selbst, die mit Stresserleben assoziiert sind, sondern vielmehr die Verhaltensstörungen, die aus den kognitiven Beeinträchtigungen resultieren (Bédard, Molloy, Pedlar, Lever & Stones, 1997;Coen, Swanwick, O'Boyle & Coakley, 1997;Donaldson, Tarrier & Burns, 1997;Johannsen, 1994 Aktivitäten an als Angehörige nichtaphasischer Schlaganfallbetroffener (Denman, 1998).…”

Section: Art Der Erkrankungunclassified

Evaluation eines psychoedukativen Kurses für Angehörige von Schlaganfallpatienten

Heier

Lännler

Steinhagen‐Thiessen

2002

Zeitschrift für Neuropsychologie

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Zusammenfassung: In dem vorliegenden Artikel wurde ein psychoedukativer Kurs für Angehörige von Schlaganfallpatienten entwickelt und in einem Längsschnitt-Kontrollgruppen-Design mit 3 Messzeitpunkten evaluiert. Insgesamt wurden 85 Angehörige untersucht. Als Messinstrumente kamen Selbstratingskalen zu Depression, Angst und körperlichen Beschwerden zum Einsatz. Zusätzlich wurden die globale subjektive Belastung, das Schlaganfall-spezifische Wissen, die Nutzung psychosozialer Entlastungsangebote und der subjektiv erlebte Nutzen des Kurses erhoben. Die Kursteilnehmer zeigten im Gegensatz zur Kontrollgruppe eine signifikante Zunahme des Schlaganfall-spezifischen Wissens und nutzten mehr Entlastungsangebote. Die subjektive Belastung nahm nur bei den Kursteilnehmern im zeitlichen Verlauf ab. Der Nutzen des Kurses wurde als sehr hoch eingeschätzt. In den standardisierten Skalen zum psychischen und körperlichen Befinden konnten in keiner der beiden Gruppen signifikante Veränderungen im zeitlichen Verlauf festgestellt werden. Dies wird u. a. darauf zurückgeführt, dass emotionale Verarbeitungsmuster resistenter gegenüber Veränderungen sind, als Verhaltenskomponenten.

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The impact of the Symptoms of dementia on caregivers

Cited by 257 publications

References 28 publications

An evaluation of the burden of Alzheimer patients on family caregivers

An evaluation of the burden of Alzheimer patients on family caregivers

An experimental study on the effectiveness of a mutual support group for family caregivers of a relative with dementia in mainland China

Evaluation eines psychoedukativen Kurses für Angehörige von Schlaganfallpatienten

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