The impact of visual symptoms on the quality of life of patients with early to moderate glaucoma

Kim, Young S.; Yi, Myeong Yeon; Hong, Young Jae; Park, Ka Hee

doi:10.1007/s10792-017-0616-1

Cited by 11 publications

(9 citation statements)

References 18 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…An interesting note is that despite different sociocultural backgrounds, the items were fairly similar in our questionnaire compared to the Go-QOL questionnaire, which was developed for a Dutch population. 10 In particular, facial disfigurement and the need for camouflage, social interaction and ability to perform daily activities were common items. This suggests that the QoL impact of TED may be similar across cultures and some of the QoL challenges are universally evident.…”

Section: Discussionmentioning

confidence: 99%

“…QoL is a broad concept that assesses the impact of an illness on patients' physical, mental, social, and functional health. 7 Disease-specific factors, such as symptoms, treatment burden, inconvenience, and task-specific difficulty, have resulted in the development of several condition-specific QoL questionnaires in Ophthalmology, 8 – 10 including two for TED, namely the 15-item Graves' Ophthalmopathy-QOL (GO-QOL) and the 3-item TED-QOL. 6 , 11 However, as yet there is no TED-specific questionnaire to study the QoL impact of TED in adults in Asia.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Development and Validation of the Singapore Thyroid Eye Disease Quality of Life Questionnaire

Wong

Fenwick

et al. 2018

Trans. Vis. Sci. Tech.

View full text Add to dashboard Cite

PurposeCurrent instruments to assess thyroid eye disease (TED) quality of life (QoL) were not developed using modern psychometric theory and may not be applicable to Asian populations. Therefore, we developed a psychometrically robust questionnaire, the Singapore Thyroid Eye Disease Quality of Life questionnaire (STED-QoL), for assessing QoL in Asian patients.MethodsThis cross-sectional study was conducted at the Singapore National Eye Centre between 2012 and 2015. In Phase 1, content for the questionnaire was developed using qualitative methods. A total of 20 patients participated in three different focus groups. Thematic analysis was conducted to identify relevant themes from which 12 items, rated on a 5-point Likert-type scale, were generated. In Phase 2, the pilot instrument was administered to 59 TED patients and psychometric assessment of the STED-QoL was conducted using Rasch analysis.ResultsAfter collapsing categories from five to four and deleting two misfitting items, we generated a 10-item STED-QoL befitting the Rasch model. The scale showed good criterion validity, with scores decreasing as severity of TED worsened: mild (1.78 logits), moderate (0.27 logits), and severe (0.92 logits). A ‘Psychosocial' subscale also had adequate psychometric properties and psychosocial scores were significantly worse in those who underwent surgery for TED compared to those who had not (0.41 vs. 1.82 logits, P = 0.021).ConclusionsThe STED-QoL is a robust 10-item questionnaire specifically developed to measure the impact of TED on QoL and psychosocial well-being in an Asian population.Translational RelevanceQoL assessment is important for holistic management of TED patients.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Development and Validation of the Singapore Thyroid Eye Disease Quality of Life Questionnaire

Wong

Fenwick

et al. 2018

Trans. Vis. Sci. Tech.

View full text Add to dashboard Cite

show abstract

“…However, it was reported that glaucoma patients of African descent have no difference when compared with Caucasian glaucoma patients with respect to the NEI-VFQ-25 visual subscales [38]. Although no direct comparison to a Caucasian population was made, Korean glaucoma patients also have reported significant issues with the peripheral and social function vision subscales [39], and in a case-control comparison of Latino-Americans, significant differences were observed in all visual subscales [40]. A limitation of this study is the exclusion of participants with diabetic retinopathy, retinal detachment, and AMD-intentionally done to avoid including participants with secondary glaucoma.…”

Section: Discussionmentioning

confidence: 99%

Glaucoma in large-scale population-based epidemiology: a questionnaire-based proxy

Neustaeter

Vehof

Snieder

et al. 2020

Eye

View full text Add to dashboard Cite

Purpose To improve upon self-reported glaucoma status in population-based cohorts by developing a questionnaire-based proxy incorporating self-reported status in conjunction with glaucoma-specific visual complaints. Methods A vision specific questionnaire, including questions from the National Eye Institute Visual Functioning Questionnaire-25 (NEI-VFQ-25) was administered to 79,866 Lifelines participants, a population-based cohort study in the Northern Netherlands. We compared NEI-VFQ-25 responses between 'definite' glaucoma cases (n = 90; self-reported surgical cases) and an age-and gender-matched subset of controls (n = 1,800) to uncover glaucoma-specific visual complaints, using a case-control logistic regression. We defined 'probable glaucoma' as both self-reported disease status and visual complaints, and 'possible glaucoma' as either. To evaluate the resulting proxy, we determined age-stratified glaucoma prevalences in the remaining cohort and compared the result to the literature. Results Per unit increase in the vision subscales (range 0-100) distance, peripheral and low luminance, we observed significantly increased odds of definite glaucoma (2% [P = 0.03], 4% [P = 1.2 × 10 −8 ] and 2% [P = 0.02], respectively); the associated area under the curve was 0.73. We identified 300 probable and 3,015 (1,434 by self-report) possible glaucoma cases. Standardised prevalences of definite, probable and possible glaucoma for 55+ were 0.4%, 1.1% and 7.3%, respectively. For self-reported glaucoma (combining definite, probable and possible by self-report), this was 5.2%. Conclusions The combination of self-reported glaucoma status and visual complaints can be used to capture glaucoma cases in population-based settings. The resulting prevalence of combined definite and probable glaucoma (1.5%) appears to be more consistent with previous reports than the prevalence estimate of 5.2% based only on self-report.

show abstract

“…However, even mild or moderate vision loss can reduce a person's productivity, restrict his social life and lead to a decline in mental health. Several studies have found that the severity of glaucoma correlates to reduced work performance that relies on eyesight, such as reading and driving [ 18 ]. As vision deteriorates, glaucoma can limit a person's independence by reducing their ability to perform activities of daily living.…”

Section: Introductionmentioning

confidence: 99%

The Value of Annual Glaucoma Screening for High-Risk Adults Ages 60 to 80

Allison¹,

Patel²,

Besharim³

2021

Cureus

View full text Add to dashboard Cite

Glaucoma will increase in significance as a public health problem over the next three decades as the size of the aging US population grows more significant. Because glaucoma is more prevalent among African-Americans and Hispanics, and these groups will soon outnumber Caucasians. Therefore, it is even more imperative that a referral for screening protocol for high-risk groups be implemented as the standard of care. At least half of those with glaucoma do not know they have it, and the impact on the quality of life for those whose glaucoma progresses to visual impairment or blindness is significant. Without screening, glaucoma is likely to burden many families, particularly the underserved and society, unduly. Education for the public, those at increased risk, and their physicians about glaucoma, the importance of objective screening, and early treatment even for those with no symptoms will be critical toward the success of any screening protocol.

show abstract

The impact of visual symptoms on the quality of life of patients with early to moderate glaucoma

Abstract: Vision-related QoL may be severely compromised in glaucoma patients with visual symptoms. Patients with visual disorders should be evaluated for glaucoma and QoL.

Cited by 11 publications

References 18 publications

Development and Validation of the Singapore Thyroid Eye Disease Quality of Life Questionnaire

Development and Validation of the Singapore Thyroid Eye Disease Quality of Life Questionnaire

Glaucoma in large-scale population-based epidemiology: a questionnaire-based proxy

The Value of Annual Glaucoma Screening for High-Risk Adults Ages 60 to 80

Contact Info

Product

Resources

About