The Influence of Pediatric Cancer Diagnosis and Illness Complication Factors on Parental Distress

Hovén, Emma; Anclair, Malin; Samuelsson, Ulf; Kogner, Per; Boman, Krister K.

doi:10.1097/mph.0b013e31818a9553

Cited by 57 publications

(58 citation statements)

References 30 publications

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“…On the other hand, occurrence of psychological issues including death anxiety and chronic sorrow were factors, which affected ineffective coping of mothers. Participating mothers frequently expressed the obsession over the death of child, which is consistent with the results of other studies (35,36). Chronic sorrow or episodic presence of behaviors like worriedness and sadness, concern and discomfort at the time of some events like a death of another child in hospital or cancer recurrence in their own child, are what most of mothers of children with cancer experience (37).…”

Section: Discussionsupporting

confidence: 79%

A Qualitative Approach to Find Nursing Diagnoses for Non-Physical Health Problems in Mothers of Children with Cancer

2017

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Objectives: This study aimed to find nursing diagnoses for non-physical health problems in mothers of children with cancer through a directed (deductive) qualitative content analysis of interviews with them. Methods:In this qualitative study, eight mothers of children with cancer were interviewed, their problem list was matched with defining characteristics of each nursing diagnosis in non-physical domains of NANDA I taxonomy II, so that they were assigned in pre-determined subcategories and categories. Results:Results showed some common health problems in domains of self-perception, role relationship, coping stress tolerance, life principles and perception/cognition. Conclusions:Qualitative approach for assessment of mothers of children with cancer can help to find their health problems in nonphysical domains, which is important to be included in the holistic family centered care plan of these children and their families.

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Section: Discussionsupporting

confidence: 79%

A Qualitative Approach to Find Nursing Diagnoses for Non-Physical Health Problems in Mothers of Children with Cancer

2017

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“…This might effect upon social outcomes later in life and associations between high treatment intensity and increased risk for physical and psychosocial late effects [9,[16][17][18][19]. The parents of children with cancer also display higher levels of distress when their children have received high intensity treatment [20]. Ideally, late effects of childhood cancers should therefore be examined by diagnosis, also for low incidence cancers.…”

Section: Introductionmentioning

confidence: 94%

Social outcomes in young adult survivors of low incidence childhood cancers

et al. 2010

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“…This lengthy interval has been reported for more than 50 years [13,21] and is suspected to play a role in the early cancer mortality in children [18]. It is for physicians and parents a source of pain and remorse, psychological distress, and loss of confidence [7,20] and sometimes leads to conflicts [7] and law suits [31].…”

Section: Introductionmentioning

confidence: 96%

Interval between onset of symptoms and diagnosis of medulloblastoma in children: distribution and determinants in a population-based study

et al. 2011

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Hospital-based studies have reported long delays in the diagnosis of paediatric brain tumours. Our objective was to describe the duration between onset of symptoms and diagnosis of medulloblastoma in children and study their clinical determinants in a population-based study. This retrospective cohort study included all paediatric medulloblastoma from a region of France from 1990 to 2005. The median interval from symptom onset until diagnosis for these 166 patients was 65 days and did not decrease during the study period. The most frequent manifestations were: vomiting (88%), headaches (79%), psychomotor regression (60% of children under 3 years), psychological symptoms (27%), strabismus (26%), and asthenia (25%). For one third of the children under 3 years, the diagnosis was made only after life-threatening signs of intracranial hypertension appeared. The prediagnosis interval was significantly longer (median 91 vs. 60 days, p = 0.001) in children with psychological symptoms (27%). Causes for intervals that exceeded the median (65 days) included inconsistent (25%) or late (36%) combination of headaches and vomiting, a period of spontaneous symptom remission (14%-20%), no (24%) or late (57%) neurological signs, psychological symptoms (35%), and a normal neurological examination (27%). Time to medulloblastoma diagnosis in children remains fairly long, despite advances in imaging. Primary-care physicians must be suspicious not only of suggestive neurological signs, but also of non-specific symptoms that persist or are multiple. A meticulous neurological examination and cerebral imaging for such patients might facilitate earlier diagnosis.

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The Influence of Pediatric Cancer Diagnosis and Illness Complication Factors on Parental Distress

Cited by 57 publications

References 30 publications

A Qualitative Approach to Find Nursing Diagnoses for Non-Physical Health Problems in Mothers of Children with Cancer

A Qualitative Approach to Find Nursing Diagnoses for Non-Physical Health Problems in Mothers of Children with Cancer

Social outcomes in young adult survivors of low incidence childhood cancers

Interval between onset of symptoms and diagnosis of medulloblastoma in children: distribution and determinants in a population-based study

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