The International Spinal Cord Injury Pain Basic Data Set

Widerström-Noga, Eva; Biering‐Sørensen, Fin; Bryce, Thomas N.; Cardenas, D D; Finnerup, Nanna Brix; Jensen, Mark P.; Richards, J. S.; Siddall, Philip J.

doi:10.1038/sc.2008.64

Cited by 175 publications

(154 citation statements)

References 18 publications

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“…The International SCI Pain Basic Data Set offers a standard listing of pain sites, as well as coding schemes for these other characterizing features. 24 Dysesthesias, defined by the IASP as unpleasant abnormal spontaneous or evoked sensations, should only be classified if they are said to be painful by the person experiencing such sensations. 25 …”

Section: Miscellaneous Pointsmentioning

confidence: 99%

International Spinal Cord Injury Pain Classification: part I. Background and description

et al. 2011

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Study design: Discussion of issues and development of consensus. Objective: Present the background, purpose, development process, format and definitions of the International Spinal Cord Injury Pain (ISCIP) Classification. Methods: An international group of spinal cord injury (SCI) and pain experts deliberated over 2 days, and then via e-mail communication developed a consensus classification of pain after SCI. The classification was reviewed by members of several professional organizations and their feedback was incorporated. The classification then underwent validation by an international group of clinicians with minimal exposure to the classification, using case study vignettes. Based upon the results of this study, further revisions were made to the ISCIP Classification. Results: An overall structure and terminology has been developed and partially validated as a merger of and improvement on previously published SCI pain classifications, combined with basic definitions proposed by the International Association for the Study of Pain and pain characteristics described in published empiric studies of pain. The classification is designed to be comprehensive and to include pains that are directly related to the SCI pathology as well as pains that are common after SCI but are not necessarily mechanistically related to the SCI itself. Conclusions:The format and definitions presented should help experienced and non-experienced clinicians as well as clinical researchers classify pain after SCI.

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Section: Miscellaneous Pointsmentioning

confidence: 99%

International Spinal Cord Injury Pain Classification: part I. Background and description

et al. 2011

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“…Furthermore, the recently developed International SCI Standards and Datasets includes several of these conditions, and provides a framework for the development of new standardized measures that best capture the concept of SHCs. [31][32][33][34] Conceptual models of SHCs. We propose a framework that could be used as a point of departure for understanding the predictors and effects of SHCs in Figure 1.…”

Section: Proposed Definition and Conceptual Model Proposed Definitionmentioning

confidence: 99%

Secondary health conditions in individuals aging with SCI: Terminology, concepts and analytic approaches

et al. 2011

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Study design: Literature review. Objectives: Utilizing individuals with spinal cord injury (SCI) as a representative population for physical disability, this paper: (1) reviews the history of the concept of secondary conditions as it applies to the health of individuals aging with long-term disabilities; (2) proposes a definition of secondary health conditions (SHCs) and a conceptual model for understanding the factors that are related to SHCs as individuals age with a disability; and (3) discusses the implications of the model for the assessment of SHCs and for developing interventions that minimize their frequency, severity and negative effects on the quality of life of individuals aging with SCI and other disabilities. Methods: Key findings from research articles, reviews and book chapters addressing the concept of SHCs in individuals with SCI and other disabilities were summarized to inform the development of a conceptual approach for measuring SCI-related SHCs. Conclusions: Terms used to describe health conditions secondary to SCI and other physical disabilities are used inconsistently throughout the literature. This inconsistency represents a barrier to improvement, measurement and for the development of effective interventions to reduce or prevent these health conditions and mitigate their effects on participation and quality of life. A working definition of the term SHCs is proposed for use in research with individuals aging with SCI, with the goal of facilitating stronger evidence and increased knowledge upon which policy and practice can improve the health and well-being of individuals aging with a disability.

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“…Pain patients: Seven paraplegic patients presented with isolated pain, which had the features of at-level neuropathic pain 13 in all cases. The onset of pain ranged from 1 to 4 months (median ¼ 2 months).…”

Section: Resultsmentioning

confidence: 99%

“…When pain was present, its typology (nociceptive and/or neuropathic) and location were reported according to the International Spinal Cord Injury Pain Basic Data Set. 13 Pain intensity was assessed by the average pain intensity in the last week evaluated with a Numerical Rating Scale (NRS). 13 The drugs used were identified and their efficacy was assessed on pain intensity as abovementioned.…”

Section: Methodsmentioning

confidence: 99%

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Perilesional myeloradiculopathy with tethered cord in post-traumatic spinal cord injury

et al. 2012

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Study design: A retrospective series of cases. Objective: To identify, among post-traumatic myelopathies, a specific entity in which clinical and radiological features are not extensive but are strictly limited to the perilesional zone. Setting: The data set of the Regional Spinal Cord Injury Department of Nantes, France. Methods: A systematic analysis of all traumatic spinal cord injury (SCI) patients who presented with a neurological aggravation delayed from initial injury, without syringomyelia or extensive myelomalacia. Results: Twelve patients presenting with this type of complication were identified (that is, four tetraplegics and eight paraplegics). The neurological worsening consisted in weakness of the muscles close to the motor level in five patients, and in isolated at-level neuropathic pain in seven patients. A tethered cord was evidenced by the magnetic resonance imaging (MRI) results in all of the patients. Roots were involved by the tethering on the MRI results in eight cases. Surgery, with untethering and expansile duraplasty, was performed in all cases. Surgery allowed motor recovery in patients who presented with a motor loss (motor score gain range ¼ 1-7 points; median ¼ 3) and decreased pain in all pain patients (decrease on the 10-point numerical rating scale: range ¼ 1-6 points; median ¼ 4). Conclusions: In traumatic SCI patients, a tethered cord could be responsible for clinical and radiological changes, which are strictly localised to the perilesional area. The term perilesional myeloradiculopathy is proposed for this complication, which requires cord release surgery.

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The International Spinal Cord Injury Pain Basic Data Set

Cited by 175 publications

References 18 publications

International Spinal Cord Injury Pain Classification: part I. Background and description

International Spinal Cord Injury Pain Classification: part I. Background and description

Secondary health conditions in individuals aging with SCI: Terminology, concepts and analytic approaches

Perilesional myeloradiculopathy with tethered cord in post-traumatic spinal cord injury

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