2022
DOI: 10.1111/hae.14587
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The legacy of haemophilia: Memories and reflections from three survivors

Abstract: Following the publication of a book of personal memories by one of us (CS1,2), we have attempted to synthesis our joint memories of three ageing men, born in the era preceding universal access to treatment, in an attempt to describe our experience, our challenges and our reflections on the development of therapies, which have ensured that our experience of growing up with haemophilia in the 1950s and 1960s has not been mirrored by the current generation of patients. We describe our upbringing in different part… Show more

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Cited by 3 publications
(1 citation statement)
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“…Similarly, people who have just been diagnosed with a chronic illness sometimes struggle to adjust to their new identity [46,47]. Because hemophilia is a congenital disorder that has a large impact on affected persons' lives [48,49], it is imaginable that a similar renewed identity may be experienced when they are cured.…”
Section: Psychosocial Impactsmentioning
confidence: 99%
“…Similarly, people who have just been diagnosed with a chronic illness sometimes struggle to adjust to their new identity [46,47]. Because hemophilia is a congenital disorder that has a large impact on affected persons' lives [48,49], it is imaginable that a similar renewed identity may be experienced when they are cured.…”
Section: Psychosocial Impactsmentioning
confidence: 99%