The meanings of cancer and perceptions of cancer services among South Asians in Luton, UK

Randhawa, Gurch; Owens, Alastair

doi:10.1038/sj.bjc.6601892

Cited by 42 publications

(65 citation statements)

References 13 publications

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“…As with other studies, we found that knowledge of cancer among both groups was general in nature and that most participants lacked a comprehensive understanding of the disease (Chattoo et al 2002;Randhawa & Owens 2004). Cancer was often referred to as a single disease that 'could develop in any part of the body', and was described using well-known phrases such as a 'tumour', 'mass' or 'growth'.…”

Section: Knowledge Of Cancers and Their Signs And Symptomssupporting

confidence: 63%

Potential Barriers to Prevention of Cancers and to Early Cancer Detection among Irish People Living in Britain: A Qualitative Study

Scanlon¹,

Harding²,

Hunt³

et al. 2006

Ethnicity & Health

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Section: Knowledge Of Cancers and Their Signs And Symptomssupporting

confidence: 63%

Potential Barriers to Prevention of Cancers and to Early Cancer Detection among Irish People Living in Britain: A Qualitative Study

Scanlon¹,

Harding²,

Hunt³

et al. 2006

Ethnicity & Health

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“…A possible explanation for this may be the stigma associated with cancer in the Asian context, where cancer is often described as an incurable disease and considered synonymous with death. 22 Even mentioning cancer is considered as a taboo. Thus, this can affect the psychological well-being and adjustment of patients who are dealing with cancer along with the other problems of stoma.…”

Section: Discussionmentioning

confidence: 99%

Psychosocial adjustment among patients with ostomy: a survey in stoma clinics, Nepal

Gautam¹,

Koirala²,

Poudel³

et al. 2016

NRR

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Background: Ostomy changes the overall lifestyle of a person, and ostomates have been identified as a chronic illness population frequently experiencing adjustment problems. Purpose: The aim of this study was to determine the psychosocial adjustment and its predictors among patients with ostomy in Nepal. Patients and methods:A descriptive cross-sectional study was conducted in two stoma clinics of Nepal. Patients who had a colostomy, ileostomy, or urostomy, visited the selected stoma clinics during the data collection period, and who had ostomy for at least 6 months before data collection were included in the study. A total of 130 patients were included in this study. Data on sociodemographic and clinical variables were collected. Psychosocial adjustment score was measured using Ostomy Adjustment Inventory-23. Results: A total of 130 patients (80 males and 50 females) were included in the study. The mean age of the patients was 51 years, ranging from 23 to 78 years. The study findings revealed that mean ±SD adjustment score was 41.49±13.57, indicating moderate impairment in the psychosocial adjustment among ostomates, and the mean ±SD scores of acceptance, anxious preoccupation, social engagement, and anger were 22. Perceived lack of family support (b=−0.367, P<0.001), total dependence on others to care for ostomy (b=−0.357, P<0.001), and unemployment (b=−0.144, P=0.032) significantly predicted lower psychosocial adjustment scores. However, increased time since ostomy surgery (b=0.361, P<0.001) significantly predicted higher psychosocial adjustment scores. Conclusion:Ostomy often affects all aspects of a patient's life; however, emotional, sexual, and social lives are the most affected areas. Importantly, the focus of treatment for ostomates should expand beyond the physical boundaries and should consider psychosocial concerns as well.

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“…Some argue that there is a lack of 'cultural transferability' in existing Western palliative service models which may make them unacceptable to some non-western people (Gunaratnam, 2001). In addition to this, language barriers Jack et al, 2001) may be a barrier to access to reliable information about end-of-life care services, such as hospice and cancer care facilities (Elkan et al, 2007;Randhawa and Owens, 2004). This may significantly impede awareness and uptake of palliative care services (Gaffin et al, 1995;Jones, 2005;NCHSPCS, 2003;PRIAE, 2006;Smaje and Field, 1997).…”

Section: Introductionmentioning

confidence: 99%

Talking about end-of-life care: the perspectives of older South Asians living in East London

Venkatasalu

Arthur

Seymour

2013

Journal of Research in Nursing

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This document may differ from the final, published version of the research and has been made available online in accordance with publisher policies. To read and/or cite from the published version of the research, please visit the publisher's website (a subscription may be required.) East LondonThe National End-of-life Care Strategy for England identifies that a lack of open discussion about death and dying can be a barrier to achieving good quality end-oflife care. South Asians constitute the single largest ethnic minority group in the United Kingdom, yet little is known about their attitudes and expectations towards the discussion of death and dying. In this study, set in East London, five focus groups and 29 in-depth, semi-structured interviews were conducted with total of 55 older adults aged between 52 and 78 years. Participants from six South Asian ethnic groups were recruited from 11 local community organisations. Constructive grounded theory was used as data analysis approach. Findings revealed two key themes which capture the perspectives older South Asian study participants had towards end-of-life care discussions. The theme 'avoidance as a cultural norm' relates to the relative absence of discussions around death and dying experienced participants. Participants neither expected to have discussions about their own death and dying within their family, nor to assume any involvement in related issues of decision-making. The second theme 'avoidance as protection' relates to beliefs and experiences about the delegation of decision making to family members. Future research should explore the perspectives of second-generation adult children towards end-of-life care discussions.

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The meanings of cancer and perceptions of cancer services among South Asians in Luton, UK

Cited by 42 publications

References 13 publications

Potential Barriers to Prevention of Cancers and to Early Cancer Detection among Irish People Living in Britain: A Qualitative Study

Potential Barriers to Prevention of Cancers and to Early Cancer Detection among Irish People Living in Britain: A Qualitative Study

Psychosocial adjustment among patients with ostomy: a survey in stoma clinics, Nepal

Talking about end-of-life care: the perspectives of older South Asians living in East London

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