The meanings of pain: an exploration of women's descriptions of symptoms

Johansson, Eva; Hamberg, Katarina; Westman, Göran; Lindgren, Gerd

doi:10.1016/s0277-9536(99)00080-5

Cited by 100 publications

(73 citation statements)

References 42 publications

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“…There must be some other reason I feel that, all these rigid things that you try and put in place to protect (28,29,32,34,39,70,73,89,93,94,103 yourself, quite often are actually a problem that you have in your mind rather 108,113,115) than your back. So I think your mind and your back are quite closely linked (93).…”

Section: Conceptual Categoriesmentioning

confidence: 99%

Patients’ experiences of chronic non-malignant musculoskeletal pain: a qualitative systematic review

Toye¹,

Seers²,

Allcock³

et al. 2013

Br J Gen Pract

125

128

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Section: Conceptual Categoriesmentioning

confidence: 99%

Patients’ experiences of chronic non-malignant musculoskeletal pain: a qualitative systematic review

Toye¹,

Seers²,

Allcock³

et al. 2013

Br J Gen Pract

125

128

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“…Johansson 1999: 334 self-perception Invisibility of symptoms damaging to ones reputation as it evoked disbelief on the part of others. Being at home could increase expectations about household duties.…”

Section: Johansson 1999: 334 Explanationsmentioning

confidence: 99%

A meta-ethnography of patients’ experience of chronic non-malignant musculoskeletal pain

Toye

Seers

Allcock

et al. 2013

Health Services and Delivery Research

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Health Services and Delivery ResearchISSN 2050-4349 (Print) ISSN 2050-4357 (Online) This journal is a member of and subscribes to the principles of the Committee on Publication Ethics (COPE) (www.publicationethics.org/).Editorial contact: nihredit@southampton.ac.ukThe full HS&DR archive is freely available to view online at www.journalslibrary.nihr.ac.uk/hsdr. Print-on-demand copies can be purchased from the report pages of the NIHR Journals Library website: www.journalslibrary.nihr.ac.uk Criteria for inclusion in the Health Services and Delivery Research journalReports are published in Health Services and Delivery Research (HS&DR) if (1) they have resulted from work for the HS&DR programme or programmes which preceded the HS&DR programme, and (2) they are of a sufficiently high scientific quality as assessed by the reviewers and editors. HS&DR programmeThe Health Services and Delivery Research (HS&DR) programme, part of the National Institute for Health Research (NIHR), was established to fund a broad range of research. It combines the strengths and contributions of two previous NIHR research programmes: the Health Services Research (HSR) programme and the Service Delivery and Organisation (SDO) programme, which were merged in January 2012.The HS&DR programme aims to produce rigorous and relevant evidence on the quality, access and organisation of health services including costs and outcomes, as well as research on implementation. The programme will enhance the strategic focus on research that matters to the NHS and is keen to support ambitious evaluative research to improve health services.For more information about the HS&DR programme please visit the website: www.netscc.ac.uk/hsdr/ This reportThe research reported in this issue of the journal was funded by the HS&DR programme or one of its proceeding programmes as project number 09/2001/09. The contractual start date was in October 2010. The final report began editorial review in November 2012 and was accepted for publication in February 2013. The authors have been wholly responsible for all data collection, analysis and interpretation, and for writing up their work. The HS&DR editors and production house have tried to ensure the accuracy of the authors' report and would like to thank the reviewers for their constructive comments on the final report document. However, they do not accept liability for damages or losses arising from material published in this report.This report presents independent research funded by the National Institute for Health Research (NIHR). The views and opinions expressed by authors in this publication are those of the authors and do not necessarily reflect those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health. If there are verbatim quotations included in this publication the views and opinions expressed by the interviewees are those of the interviewees and do not necessarily reflect those of the authors, those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health. Published b...

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“…Anne emphasizes that she is 'not fanatical about housework', countering any potential accusation that she might have brought it on herself (see Horton-Salway, 2001) or any possible suggestions of psychological instability. In a further extract from Anne's account, below, the impression is conveyed that housework is not a choice but an ongoing responsibility, even if the pain means that paid work can no longer be performed (see Johansson et al, 1999): doors and things. I was expert at sort of managing things, I used to have a little -what do you call them?…”

Section: Richardson: Establishing the (Extra)ordinary In Chronic Painmentioning

confidence: 99%

“…Stoicism in the face of hardship is a dominant theme throughout Anne's account, possibly reflecting broader popular ideas of the migrant experience. Anne's account also illustrates a particular dilemma for women with chronic widespread pain, in that in order to maintain a positive identity through continuation with traditional female tasks, women risk being seen as not really ill (Johansson et al, 1999).…”

Section: Richardson: Establishing the (Extra)ordinary In Chronic Painmentioning

confidence: 99%

Establishing the (extra)ordinary in chronic widespread pain

Richardson

2005

Health (London)

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Sufferers of chronic illness face delegitimation of their condition and threats to their identities. One way of establishing the legitimacy of their position is for sufferers of chronic illness to emphasize the 'ordinary' in their accounts. Sufferers of conditions which are chronic, invisible and contested, such as chronic widespread pain, have the same, and possibly greater, need to legitimize their condition and refute allegations of 'malingering' or psychological instability. The article uses interviews with women with chronic widespread pain to illustrate the ways in which the invisible, subjective and everyday nature of chronic pain leads to sufferers experiencing delegitimation of their condition. It suggests that the accounts of women suffering from chronic widespread pain are constructed to portray a positive identity in the face of this experience, particularly through the emphasis on the 'extraordinary'.

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The meanings of pain: an exploration of women's descriptions of symptoms

Cited by 100 publications

References 42 publications

Patients’ experiences of chronic non-malignant musculoskeletal pain: a qualitative systematic review

Patients’ experiences of chronic non-malignant musculoskeletal pain: a qualitative systematic review

A meta-ethnography of patients’ experience of chronic non-malignant musculoskeletal pain

Establishing the (extra)ordinary in chronic widespread pain

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