The National Institute on Disability and Rehabilitation Research Burn Model System Database: A Tool for the Multicenter Study of the Outcome of Burn Injury

Abstract

Advances in critical care and surgical management have significantly improved survival after burn injury over the past several decades. However, today, survival alone is an insufficient outcome. In 1994, the National Institute on Disability and Rehabilitation Research (NIDRR) created a burn model system program to evaluate the long-term sequelae of burn injuries. As part of this multicenter program, a comprehensive demographic and outcome database was developed to facilitate the study of a number of functional and psychosocial outcomes after burns. The purpose of this study is to review the database design and structure as well as the data obtained during the last 10 years. This is a descriptive study of the NIDRR database structure as well as the patient data obtained from the four participating burn centers from 1994 to 2004. Data obtained during hospitalization and at 6, 12, and 24 months after discharge were reviewed and descriptive statistics were calculated for select database fields. The database is divided into several subsections, including demographics, injury complications, patient disposition, and functional and psychological surveys. A total of 4600 patients have been entered into the NIDRR database. To date, 3449 (75%) patients were alive at discharged and consented to follow-up data collection. The NIDRR database provides an expansive repository of patient, injury, and outcome data that can be used to analyze the impact of burn injury on physical and psychosocial function and for the design of interventions to enhance the quality of life of burn survivors.

Pruritus in Pediatric Burn Survivors

“…The BMS database design, structure, and collection methods have been reported previously. 10 Data for subjects from 0 to 13 years were obtained from a parent or guardian; data for subjects aged 14 to 18 years were obtained from the survivor.…”

Assault and Substance Abuse Characterize Burn Injuries in Homeless Patients

“…The NIDRR database contains more detailed information regarding patients, their injuries, and outcomes, which is collected as part of a national multicenter burn outcome research program. 24 For homeless patients, missing database information was supplemented by review of patient medical records.…”

Sleep onset insomnia symptoms during hospitalization for major burn injury predict chronic pain

“…All self-report measures were administered by trained personnel, using standard procedures as previously described in detail (22). Baseline measures were obtained prior to discharge.…”

“…All subjects included in this analysis met American Burn Association criteria for major burns, and provided informed consent for the longitudinal Burn Model Systems study, sponsored by the National Institute on Disability and Rehabilitation Research (22). The data reported here were gathered between 05/01/1994 and 12/31/2001 as part of this larger study.…”