The parental experiences of caring for children with childhood cancers in Singapore: a pilot focus group study

Abstract

Background: Research on the parental experiences of caring for children diagnosed with cancer in Singapore are limited and not well understood. Objectives: We conducted a pilot focus group to understand the experiences of Singaporean parents whose child had survived cancer. Methods: Using convenience sampling, five parents were invited to participate in a focus group discussion regarding the psychosocial needs at the time of cancer diagnosis and into survivorship. The discussion was transcribed verbatim and analysed using Braun and Clarke’s 6-step approach to thematic analysis. Results: The analysis revealed three major themes of intrapersonal impact, interpersonal connectedness and financial implications. Conclusions: The identified themes indicated some universal and unique caregiving experiences among Singaporean parents and those reported in western and other Asian cultures. In particular, the findings provided an update on the parental experiences of caring for children with cancer in Singapore and highlighted the need for ongoing research and the development of early and holistic psychosocial support services for these parents.

An exploration of the psychosocial needs of children diagnosed with cancer and their parents in Singapore: a cross-sectional study

“…Considering the existing Singapore studies, except for two qualitative studies[ 9 10 ] that explored psychological needs of parents, no other known studies had specifically examined psychological distress in children with cancer and/or their parents. Moreover, previous Singapore studies had mostly focused on acute phases of cancer (i.e., less than a year of diagnosis).…”