The participation of children in caregiving of their siblings with special needs and peer relationship in rural Turkey

Kale, Mustafa; Sığırtmaç, Ayperi

doi:10.1080/03004430.2020.1759573

Cited by 15 publications

(11 citation statements)

References 16 publications

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“…Indeed, previous research has demonstrated that the caring practices developed by adult sisters are deeply embedded with notions of obligation and duty similar to what happens with other female care work (Mauthner, 2005). Nevertheless, a recent study indicates that young siblings undertake caring roles and responsibilities regardless of their gender (Kale & Siğirtmaç, 2020).…”

Section: Discussionmentioning

confidence: 99%

Sibling caring roles and responsibilities when a child suffers from a chronic illness

Hilário

2021

Sociology Compass

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Siblings' lives and well‐being are potentially affected in profound ways when their brother or sister suffers from a chronic illness in childhood. The shift in the care of chronically ill children from the hospital to the home in recent years has had an impact on family relationships and interactions. Whilst studies on caregiving have focused on the parental care of children who are chronically ill; siblings may nevertheless take on some caring roles and responsibilities. This article intends to make a novel contribution to the sociological literature on siblings, caring, and chronic illness by presenting a review of the literature addressing siblings' caring roles and responsibilities in families of children with a chronic illness. Knowing about the caring roles and responsibilities undertaken by siblings when a brother or sister has a chronic illness, may be beneficial to healthcare professionals and influence their caring practice. In addition, this work may contribute to a better understanding of family relationships and further improve healthcare policies.

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Section: Discussionmentioning

confidence: 99%

Sibling caring roles and responsibilities when a child suffers from a chronic illness

Hilário

2021

Sociology Compass

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“…Siblings’ responsibilities to care for their brother/sister with a chronic illness are a unique experience for siblings which set them apart from their peers. Caring responsibilities may include supervising the affected child and/or other siblings while the parents are away, assisting with medical duties at home, and helping their brother/sister with day-to-day tasks (Kale and Siğirtmaç, 2020; Read et al, 2010). Adult siblings commonly report caring responsibilities, but these responsibilities appear to start in childhood and adolescence (Chikhradze et al, 2017; Kale and Siğirtmaç, 2020; Webster, 2018).…”

Section: The Unique Experiences Of Being a Siblingmentioning

confidence: 99%

“…Caring responsibilities may include supervising the affected child and/or other siblings while the parents are away, assisting with medical duties at home, and helping their brother/sister with day-to-day tasks (Kale and Siğirtmaç, 2020; Read et al, 2010). Adult siblings commonly report caring responsibilities, but these responsibilities appear to start in childhood and adolescence (Chikhradze et al, 2017; Kale and Siğirtmaç, 2020; Webster, 2018). Webster (2018) found that siblings of children with epilepsy substantially contributed to their brother/sister’s informal care and identified three distinct categories of young siblings’ caring responsibilities: “alert assistants” (monitoring their brother/sister and alerting parents to a flare up of symptoms), “substitute parents” (taking on the primary caring responsibility when parents are not available), and “parenting assistants” (helping parents with caring responsibilities).…”

Section: The Unique Experiences Of Being a Siblingmentioning

confidence: 99%

“…The impact of these responsibilities on the sibling’s well-being during adolescence has rarely been studied, and when it has, results have been mixed (Read et al, 2010). Increased responsibilities may encourage maturation, but they may also be perceived as a burden (Kale and Siğirtmaç, 2020), thus affecting siblings’ mental and emotional well-being (Chikhradze et al, 2017; Long et al, 2015).…”

Section: The Unique Experiences Of Being a Siblingmentioning

confidence: 99%

“…maturation, but they may also be perceived as a burden (Kale and Sigirtmaç, 2020), thus affecting siblings' mental and emotional well-being (Chikhradze et al, 2017;Long et al, 2015).…”

mentioning

confidence: 99%

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Siblings of young people with chronic illness: Caring responsibilities and psychosocial functioning

Kelada

Wakefield

Drew

et al. 2021

J Child Health Care

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Siblings of young people with chronic illness commonly undertake caring responsibilities for their affected brother/sister, which may encourage maturation, yet may also be perceived as a burden. Our study determined (1) siblings’ caring responsibilities, (2) siblings’ current emotional distress and psychosocial functioning, and (3) how siblings’ caring responsibilities and psychosocial functioning related to familial relationships and coping strategies. Siblings completed questionnaires which contained Sibling Inventory of Behavior, Sibling Inventory of Differential Experiences, PedsQL, emotion thermometers, Brief COPE, and a checklist of caregiving responsibilities. We analyzed the data with t-tests and multi-level models. Forty-five siblings (mean age = 15.40 years, SD = 3.31 years; 60.0% female) participated. Siblings who had caring responsibilities ( n = 26, 57.8%) reported lower anxiety symptoms, lower need for help, greater use of problem-focused coping, and more companionship and teaching/directiveness with their affected brother/sister than siblings without caring responsibilities. Siblings reported lower psychosocial and physical functioning when they perceived their parents provided them with less affection than their affected brother/sister. Family-based psychosocial interventions may aim to improve the sibling–parent relationship (including expressing affection) and the sibling–sibling relationship. Future interventions may also focus on increasing siblings’ use of problem-focused coping strategies.

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Siblings of Persons with Disabilities: A Systematic Integrative Review of the Empirical Literature

Levante,

Martis,

Del Prete

et al. 2024

Clin Child Fam Psychol Rev

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The systematic review aimed to systematize the empirical literature on the psychological impact of disability on the siblings of persons with disabilities, to inform research and provide clinical recommendations. Two research questions addressed the review: (1) What are the main psychological constructs investigated in siblings of persons with disability? (2) What is the main role of each psychological construct in siblings of persons with disability experience? The electronic search was conducted in 7 databases and the PRISMA diagram was used. The inclusion criteria were: Papers published in English and in peer-reviewed journals; papers published between January 2014 and June 2024; qualitative, quantitative, and mixed studies; and papers on the psychological impact of disabilities and/or chronic illnesses on the experience of siblings of persons with disabilities. The standardized Mixed Method Appraisal Tool protocol was used to appraise the methodological quality of the studies. To summarize the findings, a narrative approach was adopted. A total of 60 studies have been reviewed. According to the methodological quality appraisal of studies, most of them reported a high (n = 45) and medium (n = 15) quality. They involved 10,146 participants. Findings revealed that sibling relationships, sibling-focused parentification, and emotional/behavioral adjustment are the main psychological constructs investigated by existing literature. Few studies focused on siblings’ well-being. Studies exploring more than a psychological construct were included as a hybrid. Only one study examined the siblings’ psychological experience during the COVID-19 pandemic. The quality of the sibling relationship ranged from good to poor; the caregiver is the main role played by siblings of persons with disabilities; anxiety, depression, and aggressive behaviors are the main emotional/behavioral symptoms revealed. Most studies (n = 39) recruited participants with brothers or sisters with mental disorders. The findings of this systematic review may play a role in the clinical field, as they might help to design gender- and age-specific intervention programs.

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The participation of children in caregiving of their siblings with special needs and peer relationship in rural Turkey

Cited by 15 publications

References 16 publications

Sibling caring roles and responsibilities when a child suffers from a chronic illness

Sibling caring roles and responsibilities when a child suffers from a chronic illness

Siblings of young people with chronic illness: Caring responsibilities and psychosocial functioning

Siblings of Persons with Disabilities: A Systematic Integrative Review of the Empirical Literature

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