Abstract:This paper reviews the relevance of the UN, 1989 Convention on the Rights of the Child (UNCRC), and particularly the so-called participation rights, to premature babies and their care. The review is illustrated with examples drawn from a study of four neonatal intensive care units, NICU. The paper begins with the background on human and children's rights, on research about childhood, babies and participation, and on the neonatal research study. Participation rights include rights to: life and survival; a name… Show more
“…Indeed, this has sometimes been applied to very young children. In the context of a study of premature baby units, Alderson and others (:32) claim that ‘respect for babies' participation rights is feasible, immediate, integral and indispensable to adequate neonatal care, and that babies' rights justify and validate high standards of care’. They write that:Traditionally, children have been viewed as pre‐social beings, who are developing and being socialised by adults towards the endpoint of mature adulthood (Mayall, :4–5).…”
Section: Children's Rightsmentioning
confidence: 99%
“…Similarly, they suggest that ‘the key participation right, to express views freely, involves being able to form views and having the means of expression, and this begins with expression through the body and the voice. The baby's cry could be highly significant to parents' (Alderson and others, : 43). They conclude that: ‘The UNCRC speaks of all members of the human family, a continuum of life without discrete stages, and the expressive views of premature babies illustrate how inclusive and diverse the UNCRC participation rights can be’ (Alderson and others, : 47‐8).…”
This paper examines the arguments that have been put forward about the implications of children's rights for the ethics of research involving children. It begins by exploring the concept of rights, and the different kinds of right that have been identified in the philosophical literature. From this, the discussion moves to the nature and legitimacy of children's rights. Finally, the implications of the debates about children's rights are examined for research ethics. It is argued that these implications are more limited and problematic than is generally recognised.
“…Indeed, this has sometimes been applied to very young children. In the context of a study of premature baby units, Alderson and others (:32) claim that ‘respect for babies' participation rights is feasible, immediate, integral and indispensable to adequate neonatal care, and that babies' rights justify and validate high standards of care’. They write that:Traditionally, children have been viewed as pre‐social beings, who are developing and being socialised by adults towards the endpoint of mature adulthood (Mayall, :4–5).…”
Section: Children's Rightsmentioning
confidence: 99%
“…Similarly, they suggest that ‘the key participation right, to express views freely, involves being able to form views and having the means of expression, and this begins with expression through the body and the voice. The baby's cry could be highly significant to parents' (Alderson and others, : 43). They conclude that: ‘The UNCRC speaks of all members of the human family, a continuum of life without discrete stages, and the expressive views of premature babies illustrate how inclusive and diverse the UNCRC participation rights can be’ (Alderson and others, : 47‐8).…”
This paper examines the arguments that have been put forward about the implications of children's rights for the ethics of research involving children. It begins by exploring the concept of rights, and the different kinds of right that have been identified in the philosophical literature. From this, the discussion moves to the nature and legitimacy of children's rights. Finally, the implications of the debates about children's rights are examined for research ethics. It is argued that these implications are more limited and problematic than is generally recognised.
“…More recently, she worked with a group of researchers (Alderson et al 2005a , b ) whose work was with premature babies. They are the same gestational age as foetuses, absolutely without rights.…”
“…1. Consent: Children have the right to be involved in decisions which affect them 35, 36, as enshrined in the UN Convention on the Rights of the Child 1989 37. There are various ways in which this can be included in a study with due consideration for informed consent and power imbalance in the child‐researcher relationship.…”
INTRODUCTION. Do child obesity prevention research and intervention measures have the potential to generate adverse concerns about body image by focussing on food, physical activity and body weight? Research findings now demonstrate the emergence of body image concerns in children as young as 5 years. In the context of a large school-community-based child health promotion and obesity prevention study, we aimed to address the potential negative effects of height and weight measures on child wellbeing by developing and implementing an evidence-informed protocol to protect and prevent body image concerns. fun 'n healthy in Moreland! is a cluster randomised controlled trial of a child health promotion and obesity prevention intervention in 23 primary schools in an inner urban area of Melbourne, Australia. Body image considerations were incorporated into the study philosophies, aims, methods, staff training, language, data collection and reporting procedures of this study. This was informed by the published literature, professional body image expertise, pilot testing and implementation in the conduct of baseline data collection and the intervention. This study is the first record of a body image protection protocol being an integral part of the research processes of a child obesity prevention study. Whilst we are yet to measure its impact and outcome, we have developed and tested a protocol based on the evidence and with support from stakeholders in order to minimise the adverse impact of study processes on child body image concerns.
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