The Pediatric Outcomes Data Collection Instrument (PODCI) and Functional Assessment of Patients With Unilateral Upper Extremity Deficiencies

Lerman, Joel A.; Sullivan, Elroy; Barnes, Douglas; Haynes, Richard

doi:10.1097/01.bpo.0000149866.80894.70

Cited by 67 publications

(45 citation statements)

References 5 publications

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“…Lerman et al reported a functional assessment of patients with unilateral upper extremity deficiencies using the PODCI score [12]. Their study included 13 non-congenital and 51 congenital unilateral upper extremity deficiencies producing an UE function score of 84 (+/−15).…”

Section: Discussionmentioning

confidence: 99%

“…Previous studies have characterized PODCI scores for patients with specific upper extremity conditions, including brachial plexus birth palsy, arthrogryposis, hand/wrist injury, and unilateral upper extremity deficiency [9–12]. These studies consistently demonstrated lower PODCI scores in children with upper extremity disorders compared to normal.…”

Section: Introductionmentioning

confidence: 99%

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Parental Assessment of Status of Congenital Upper Limb Differences: Analysis of the Pediatric Outcomes Data Collection Instrument

Wall

Shen

Roberts

et al. 2016

The Journal of Hand Surgery

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Introduction To determine the range of the Pediatric Outcomes Collection Instrument (PODCI) scores for children with a wide variety of congenital upper limb differences and to examine the scoring effect of the patient’s surgical history, family history, severity of involvement, and syndromic associations. Methods We reviewed the PODCI scores for 109 patients, aged 2–18 years, treated for non-traumatic upper extremity conditions. Charts were reviewed for sex, age, extent of limb involvement, laterality, family history, surgical history, and syndrome association. All patients were classified based on the Oberg, Manske, Tonkin Classification with general categories of malformation, deformation, or dysplasia. Results Eighty of 109 (73%) patients had a malformation, 12 (11%) had a deformation, and 17 (16%) had a dysplasia. The cohort as a whole had a happiness PODCI score that was similar to the normal population, yet a lower (worse) PODCI score for upper extremity and global function. Patients with a dysplasia had a higher upper extremity function scores than those with malformations or deformations, but they had similar happiness and global function scores. Complete upper limb involvement and lower extremity involvement statistically lowered the PODCI score within our study cohort, while a positive family history and syndromic association increased PODCI scores. Conclusion This study showed that there was a similar level of perceived happiness between children/adolescents with congenital upper extremity conditions compared to the normal pediatric population based on PODCI scores. In contrast, the perceived upper extremity and global function was significantly decreased in patients with congenital differences compared to normal individuals. This investigation also revealed that the extent of upper extremity involvement, lower extremity involvement, family history, and syndromic association may affect PODCI scores as independent variables and should be taken into consideration in studies of upper extremity congenital anomalies. Level of Evidence IV Prognostic Study

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Parental Assessment of Status of Congenital Upper Limb Differences: Analysis of the Pediatric Outcomes Data Collection Instrument

Wall

Shen

Roberts

et al. 2016

The Journal of Hand Surgery

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“…In a study by Maruyama et al, 8 multiple vertebral wedge osteotomy of the thoracic spine was performed on 20 patients (17 girls and 3 boys), including 19 with idiopathic and 1 with syringomyelia scoliosis, who underwent surgery at an average age of 16.4 years and were followed for an average of 8.9 years (range, [2][3][4][5][6][7][8][9][10][11][12][13][14][15][16][17]. There were no neurologic complications.…”

Section: Discussionmentioning

confidence: 99%

Clinical Efficacy of the Vertebral Wedge Osteotomy for the Fusionless Treatment of Paralytic Scoliosis

Mccarthy¹,

Chafetz²,

Mulcahey³

et al. 2010

Spine

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Vertebral wedge osteotomy is potentially an effective treatment option for paralytic scoliosis. At 2-year follow-up, there was no loss of function as measured by the PODCI and FIM, and there was improvement in the COPM. Cobb angle measurements were either improved or maintained in 12 of 13 patients. Although 2 patients required fusion, they had an average of 2.5 years of subsequent growth before surgery.

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“…The PODCI has been previously validated for use among children with cerebral palsy, and has been shown to be reliable among children with congenital and traumatic amputations. 32 The PODCI is only validated in children ages 10 and above. Therefore, participants 9 years of age and younger did not complete the PODCI.…”

Section: Methodsmentioning

confidence: 99%

Applying the Patient-Reported Outcomes Measurement Information System to Assess Upper Extremity Function among Children with Congenital Hand Differences

Waljee

Carlozzi

Franzblau

et al. 2015

Plastic and Reconstructive Surgery

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Purpose Few studies have evaluated self-assessment tools among children with congenital hand differences. We compared three upper extremity disability instruments with the Patient Reported Outcomes Measurement Information System (PROMIS®) Pediatric Upper Extremity Item Bank. Methods Thirty-three children (ages 6–17) with congenital hand differences completed the Pediatric Outcomes Data Collection Instrument (PODCI), the Michigan Hand Outcomes Questionnaire (MHQ), the Disability of the Arm, Shoulder, and Hand (DASH), and the PROMIS® Upper Extremity short form (SF) and computerized adaptive test (CAT). Hand function was also assessed using grip and pinch strength and the Nine-Hole Peg Test. We used Spearman correlation coefficients to determine construct validity, and examined feasibility by comparing completion time, reading level, need for assistance, and patient preference among the instruments. Results PROMIS® demonstrated good construct validity. SF and CAT versions of PROMIS® were highly correlated with DASH scores (r > 0.80, p<0.001) and all PODCI domains except sports (r>0.70, p<0.001). Correlations with the MHQ were moderate (r> 0.40, p < 0.05). PROMIS® SF and CAT scores also correlated with grip strength (r≥0.60, p<0.001) and pinch strength (r>0.50, p<0.001). Compared to the other questionnaires, PROMIS® was much more feasible. It took the least time to complete, fewer children required assistance, and it is written at a lower, more age-appropriate reading level than the MHQ and DASH. Conclusions PROMIS® is highly correlated with both functional tests and traditional hand function questionnaires. Our results provide encouraging evidence that PROMIS® may be an efficient, feasible option to capture hand function among children with congenital hand differences. Level of Evidence: III

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The Pediatric Outcomes Data Collection Instrument (PODCI) and Functional Assessment of Patients With Unilateral Upper Extremity Deficiencies

Cited by 67 publications

References 5 publications

Parental Assessment of Status of Congenital Upper Limb Differences: Analysis of the Pediatric Outcomes Data Collection Instrument

Parental Assessment of Status of Congenital Upper Limb Differences: Analysis of the Pediatric Outcomes Data Collection Instrument

Clinical Efficacy of the Vertebral Wedge Osteotomy for the Fusionless Treatment of Paralytic Scoliosis

Applying the Patient-Reported Outcomes Measurement Information System to Assess Upper Extremity Function among Children with Congenital Hand Differences

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