The perceived family burden scale: measurement and validation

Levene, Judith E.; Lancee, William J.; Seeman, Mary V.

doi:10.1016/s0920-9964(96)00071-0

Cited by 59 publications

(54 citation statements)

References 15 publications

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“…Of the 460 articles screened, 16 instruments were identified focusing on caregivers' burden (8) [20][21][22][23][24][25][26], coping strategies (3) [27][28][29], perception of need (3) [30][31][32] and quality of life (2) [9,33]. TABLES 1 & 2 show the characteristics of the instruments meeting the inclusion criteria.…”

Section: Resultsmentioning

confidence: 99%

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Quality of life and other outcome measures in caregivers of patients with schizophrenia

Testart

Richieri

Caqueo-Urízar

et al. 2013

Expert Review of Pharmacoeconomics & Outcomes Research

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There is a growing concern about caregivers of individuals with schizophrenia who assume almost the totality of the patient care. This responsibility exposes them to an intense burden with negative consequences for them and indirectly for patients' health. The aim of this study was to provide an overview of the content and psychometric properties of instruments assessing the experience of caregivers of individuals with schizophrenia. Of the 460 articles screened from 1990 to 2013, 16 instruments were identified focusing on caregivers' burden (8), coping strategies (3), perception of need (3) and quality of life (2). These instruments were based primarily on experts' opinions, except two which were based exclusively on caregivers' view. The psychometric properties were poorly documented for a number of them and no information was published about responsiveness. Future works are needed to involve caregivers in the development of instruments and to explore psychometric properties of these instruments.

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Section: Resultsmentioning

confidence: 99%

“…These instruments were developed or validated from 1990 to 2012 (8 after 2000), in Canada (4) [20,21], Italy (3) [25,27,29], England (2) [28,30], Austria (1) [31], China (1) [32], France (1) [9], the Netherlands (1) [24], Spain (1) [33], Sweden (1) [26] and the USA (1) [22,23].…”

Section: General Datamentioning

confidence: 99%

Quality of life and other outcome measures in caregivers of patients with schizophrenia

Testart

Richieri

Caqueo-Urízar

et al. 2013

Expert Review of Pharmacoeconomics & Outcomes Research

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“…The Perceived Family Burden Scale (PFBS) was designed to assess the impact of patient behaviors on relatives. 30 This interview-based scale was administered to informants only and consists of 24 items which are each rated for the presence or absence of a behavior associated with schizophrenia. These items are also rated for the extent to which the behavior is distressing to the relative.…”

Section: Measurement Of Functional Outcome Insight Into Cognition Amentioning

confidence: 99%

The Cognitive Assessment Interview (CAI): Reliability and Validity of a Brief Interview-Based Measure of Cognition

Ventura

Reise

Keefe

et al. 2012

Schizophrenia Bulletin

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Objective: To obtain Food and Drug Administration approval for the treatment of cognitive impairments associated with schizophrenia, a drug will need to demonstrate benefits beyond those that may be documented on objective cognitive tests. Interview-based measures of cognition such as the Cognitive Assessment Interview (CAI) are candidate coprimary outcome measures. Methods: Psychiatrically stable schizophrenia outpatients (n 5 150) were studied using the CAI to obtain information about cognitive functioning from both the patient and an informant. Patients also received objective assessments of neurocognition, functional capacity, functional outcome, and symptoms, at baseline and 1 month later. Results: The CAI had good internal consistency (Cronbach's alpha 5 .92) and good test-retest reliability (r 5 .83). The CAI was moderately correlated with objective neurocognitive test scores (r's 5 2.39 to 2.41) and moderately correlated with social functioning (r 5 2.38), work functioning (r 5 2.48), and overall functional outcome (r 5 2.49). The correlations of CAI scores with external validity indicators did not differ significantly by source of information (patient alone ratings were valid). Overall functional outcome correlated more strongly with patient CAI scores (r 5 2.50) than with objective neurocognitive test scores (r 5 .29) or functional capacity (r 5 .29). Conclusions: Field testing of the CAI produced reliable ratings of cognitive functioning that were correlated with functional outcome. Patient ratings alone yielded scores with reliability and validity values appropriate for use in clinical trials. The CAI appears to provide useful complementary information and possesses practical advantages for rating cognitive functioning including an interview-based method of administration, brief assessment time (15 min for the patient assessment), little or no practice effects, and ease of scoring.Key words: schizophrenia/functional outcome/functional capacity/symptoms/informant ratings/neurocognition IntroductionEvidence continues to accrue indicating that cognitive deficits are pronounced in schizophrenia and that those deficits impinge on a patient's quality of life and ability to function on a daily basis. Traditionally, objective tests have been used to assess cognition. But the assessment of cognitive functioning might benefit from nonperformance-based person-oriented assessments. Assessing cognitive functioning through interview-based methods is practical and might enable the examination of the impact of cognition on daily functioning. Interview-based measures of cognitive functioning are already in the second generation of development, following Food and Drug Administration (FDA) guidance on the development of methods for assessing patient reported outcomes.1-3 The assessment protocol for the Measurement and Treatment Research to Improve Cognition in Schizophrenia (MATRICS) initiative included both of the first-generation instruments, the Schizophrenia Cognition Rating Scale (SCoRS) 2 and the Clinical Global ...

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“…This results in a sense of burden as the other members of the family begin to deal with the disease (Levene et al, 1996).…”

Section: Caregiving Process and Spiritualitymentioning

confidence: 99%

Spirituality as a Coping Mechanism for Problems Related to Mental Health

Gök¹,

Arslan²,

Duyan³

2017

Proceedings of the 29th International Academic Conference, Rome

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The perceived family burden scale: measurement and validation

Cited by 59 publications

References 15 publications

Quality of life and other outcome measures in caregivers of patients with schizophrenia

Quality of life and other outcome measures in caregivers of patients with schizophrenia

The Cognitive Assessment Interview (CAI): Reliability and Validity of a Brief Interview-Based Measure of Cognition

Spirituality as a Coping Mechanism for Problems Related to Mental Health

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