The personal value of being a palliative care Community Volunteer Worker in Uganda: A qualitative study

Jack, Barbara; Kirton, Jennifer; Birakurataki, Jerith; Merriman, Anne

doi:10.1177/0269216311413628

Cited by 37 publications

(48 citation statements)

References 24 publications

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“…33 Study quality varied from good to moderate quality, with scores ranging from 27 to 37. The three qualitative papers 23,25,43 scored similarly well, with the analysis process described and extensive use of verbatim quotes. The two papers by Jack et al 25,43 include interpretations of a more descriptive nature, whereas the paper by Horsfall et al 23 presents higher levels of abstraction in their interpretations.…”

Section: Resultsmentioning

confidence: 86%

“…Eight papers were included in the final analysis: three qualitative papers, 23,25,43 three mixed methods papers 20,33,45 and two quantitative papers. 44,50 Papers came from a range of countries and settings (see Table 1).…”

Section: Resultsmentioning

confidence: 99%

“…23 … some of them [community volunteers] have even had the chance to join politics as a result of their voluntary work. 43 The final subtheme, 'embedding sustainable change', describes how participants attempted to change or tackle the structures in their community that were limiting good care for those at the end of life. Examples include lobbying local government, hosting community education days or taking part in research studies:…”

Section: Key Themes and Findingsmentioning

confidence: 99%

See 2 more Smart Citations

The impact of a new public health approach to end-of-life care: A systematic review

et al. 2015

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Section: Resultsmentioning

confidence: 86%

Section: Resultsmentioning

confidence: 99%

Section: Key Themes and Findingsmentioning

confidence: 99%

See 1 more Smart Citation

The impact of a new public health approach to end-of-life care: A systematic review

et al. 2015

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“…Peers have been especially valued when operating in settings that traditional health care workers find difficult to access or navigate (Baksi et al, 2008). This includes research from South Asia (e.g., Alcock et al, 2009; de Souza et al, 2014) and other settings in sub-Saharan Africa (e.g., Jack et al, 2012) where peers are accepted and operate within a range of settings through informal networks and homes.…”

Section: Discussionmentioning

confidence: 99%

“Someone like us”: Delivering maternal mental health through peers in two South Asian contexts

Singla

Lazarus

Atif

et al. 2014

Journal of Affective Disorders

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BACKGROUND Peer-led psychosocial interventions are one solution to address the great paucity of skilled mental health human resources in South Asia. The aim of this study was to explore peer-delivered care for maternal depression in two diverse contexts in South Asia. METHODS The study was carried out in the urban setting of Goa, India and a rural setting in Rawalpindi, Pakistan. In total, 61 in-depth interviews (IDIs) and 3 focus group discussions (FGDs), and 38 IDIs and 10 FGDs, were conducted with multiple stakeholders in urban Goa and rural Rawalpindi respectively. We used the framework approach to analyze data. RESULTS Peers, from the same community were the most preferred delivery agents of a community-based psychosocial intervention in both sites. There were contextual similarities and differences between the two sites. Preferred characteristics among peers included local, middle-aged, educated mothers with similar experiences, good communication skills and a good character. Key differences between the two contexts included a greater emphasis on the peer's family social standing in rural Rawalpindi and financial incentives as motivators for individual peers in urban Goa. LIMITATIONS Generalizability of our findings is limited to two specific contexts in a vast and diverse region. DISCUSSION Our study demonstrates that peers have the potential to deliver maternal psychosocial interventions in low-income settings. There are contextual differences in the preferred characteristics and motivators between the sites, and these should be carefully considered in program implementation.

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“…A Christian ethic is certainly not limited to leaders in the church, or to Khayelitsha. Links between care, volunteerism and Christianity have been documented in South Africa and beyond (Akintola, 2010(Akintola, , 2011Jack, Kirton, Birakurataki, & Merriman, 2012;Kegler, Hall, & Kiser, 2010;Patel, 2009).…”

Section: Gendered Naturesmentioning

confidence: 99%

‘It’s in our veins’: caring natures and material motivations of community health workers in contexts of economic marginalisation

Swartz

Colvin

2014

Critical Public Health

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Khayelitsha, an economically marginal peri-urban settlement in Cape Town, is home to a number of 'flagship' public health interventions aimed at HIV/AIDS and TB. Alongside these high-profile, foreign donor-driven treatment and care programmes are a plethora of NGOs that provide a wide range of community-based carework. Some of these organisations are large, well-funded and wellconnected globally, while others are run by a few unemployed women responding to care needs in their neighbourhoods. This article explores the ways that community health workers (CHWs) who work for these organisations understand and speak about their involvement in carework as volunteers, employees or managers of community-based care organisations. Many CHWs framed their work through discourses of gender, religion or culture ('African-ness'). They also described forms of material or economic benefits of providing carework, but many were concerned that these might be seen as existing in tension with more socially accepted, altruistic motivations for care. We explore here how CHWs narrate and understand their roles and motivations as carers and members of a resource-constrained community.

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The personal value of being a palliative care Community Volunteer Worker in Uganda: A qualitative study

Abstract: This model of volunteering is clearly having an impact on the volunteers, both personally and also in terms of how they are treated in their communities. Further research to explore the long-term personal benefits of being a palliative care volunteer is recommended.

Cited by 37 publications

References 24 publications

The impact of a new public health approach to end-of-life care: A systematic review

The impact of a new public health approach to end-of-life care: A systematic review

“Someone like us”: Delivering maternal mental health through peers in two South Asian contexts

‘It’s in our veins’: caring natures and material motivations of community health workers in contexts of economic marginalisation

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