The Process of Self-Management: A Qualitative Case Study Reporting on Cancer Survivors’ and Program Staff’s Experiences Within One Self-Management Support Intervention

Abstract

<jats:p> Background. Cancer survivors must manage a range of adverse symptoms and side effects postdiagnosis. These effects often co-occur with preexisting comorbid conditions. Recognizing the complex chronicity of the disease, self-management support interventions have been developed to promote cancer survivors’ knowledge, skills, and confidence to self-manage their health. Though shown to be beneficial, the processes underlying self-management have yet to be explicated. Aim. To explore how a community-based self-management support intervention fosters cancer survivors’ knowledge, confidence, and skills to self-manage their health. Method. A qualitative case study adopting multiple viewpoints was utilized. Seventeen cancer survivors who participated in a self-management support intervention (referred to as a cancer coaching program) were interviewed and six program staff took part in a focus group. Transcripts from the interviews and focus group were analyzed using a hybrid inductive–deductive approach guided by principles of qualitative description. Results. Cancer survivors and program staff offered complementary perspectives that enhanced our understanding of how the self-management support intervention fosters cancer survivors’ knowledge, confidence, and skills to self-manage their health. Four themes captured strategies necessary to promote self-management: (1) looking beyond the disease: the importance of holistic person-centered care, (2) cocreating plans: the key to effective and meaningful self-management support, (3) fostering activation via tailored, targeted, and expert-sourced information and resources, and (4) having dependable and impartial emotional support. Within each theme, pertinent self-management support strategies were described by cancer survivors and program staff. Discussion and Conclusion. Findings offer an understanding of how one community-based self-management support intervention promotes self-management and highlight valuable self-management support strategies that could be incorporated into existing and future interventions. </jats:p>

Rationale and Design of a Telehealth Self-Management, Shared Care Intervention for Post-treatment Survivors of Lung and Colorectal Cancer

“…Two randomized trials of self-management interventions reported trends toward greater self-efficacy, improved general health, and greater provider implementation of recommended care in breast cancer survivors [52,53]. Effective self-management interventions can transform a reactive healthcare system into one that improves survivor outcomes through proactive planning [54].…”

A qualitative interview study exploring the psychological health impacts of the SPIN-CHAT program among people with systemic sclerosis at the onset of COVID-19: perceptions of trial participants and research team members

“…Next, DD, KE, and MB independently generated codes using an inductive approach wherein themes were derived from the raw data. Deductive reasoning was then applied to align interpretations with results from the trial [21] and relevant literature [35][36][37] by four authors (DD, KE, MB, AW). Afterwards, DD and AW met to discuss the findings and embark on an iterative process to generate main themes and subthemes.…”

Construção De Um Programa De Intervenção De Enfermagem Para a Autogestão Do Regime Dietético Da Pessoa Submetida a Cirurgia Por Cancro Gástrico

“…Nesta linha de ideias, Brunet et al (2020), na investigação que desenvolveram -"The Process of Self-Management: A Qualitative Case Study Reporting on Cancer Survivors' and Program…”

“…São exemplo as seguintes expressões: "penso que as orientações vão ajudar-me muito quando chegar a casa a fazer as coisas de forma correta e assim ter uma boa recuperação, sem complicações" (E1); "(…) sinto-me feliz por ir para casa e ter os conhecimentos que tenho que antes não tinha (…)" (E2); "sinto que estou preparada para ir para casa" (E2). Estes resultados estão em consonância com os encontrados porBrunet et al (2020) na investigação que desenvolveram "The Process of Self-Management: A Qualitative Case Study Reporting on Cancer Survivors' and Program Staff's Experiences Within One Self-Management Support Intervention" em que concluíram que o programa de apoio à autogestão promoveu o conhecimento, a confiança e as habilidades dos sobreviventes de cancro.Nesta perspetiva, os resultados dos estudos apresentados anteriormente, vêm corroborar os pressupostos apresentados na teoria deMeleis et al, 2010, no que se refere aos condicionantes facilitadores e inibidores da transição. O mesmo considera que a preparação prévia e o conhecimento surgem como condicionantes pessoais, pois, quando presentes, facilitam o processo de transição e, quando ausentes, são inibidores(Meleis et al, 2010).…”