The Psychometric Properties of an Arabic version of the PedsQL Multidimensional Fatigue Scale Tested for Children with Cancer

Al-Gamal, Ekhlas; Long, Tony

doi:10.1080/24694193.2017.1316791

Cited by 14 publications

(16 citation statements)

References 26 publications

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“…Ten studies measured fatigue in CAYA cancer patients [ 74 , 76 – 80 , 82 , 83 , 86 , 87 ], five in CAYA cancer survivors [ 37 , 61 , 81 , 84 , 88 ], and three in a mixed patient and survivor population [ 58 , 75 , 85 ]. Five studies and the systematic review investigated the Fatigue Scales (Fatigue Scale-Child, Fatigue Scale-Adolescent, and proxy versions) [ 58 , 74 – 78 ], four studies the PROMIS Pediatric Fatigue Measures [ 82 – 85 ], three studies and the systematic review the PedsQL Multidimensional Fatigue Scale (Peds QL MFS) [ 74 , 79 – 81 ], and five studies other measures (Fatigue Thermometer [ 37 ], Multidimensional Fatigue Inventory [ 88 ] Turkish Scale for the Assessment of Fatigue in Pediatric Oncology Patients [ 86 , 87 ], and 12-item fatigue questionnaire [ 61 ]).…”

Section: Resultsmentioning

confidence: 99%

Recommendations for the surveillance of cancer-related fatigue in childhood, adolescent, and young adult cancer survivors: a report from the International Late Effects of Childhood Cancer Guideline Harmonization Group

et al. 2020

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Purpose Cancer-related fatigue (CRF) negatively affects the lives of childhood, adolescent, and young adult (CAYA) cancer survivors. We aimed to provide an evidence-based clinical practice guideline (CPG) with internationally harmonized CRF surveillance recommendations for CAYA cancer survivors diagnosed < 30 years. Methods This CPG was developed by a multidisciplinary panel under the umbrella of the International Late Effects of Childhood Cancer Guideline Harmonization Group. After evaluating concordances and discordances of four existing CPGs, we performed systematic literature searches. We screened articles for eligibility, assessed quality, extracted, and summarized the data from included articles. We formulated recommendations based on the evidence and clinical judgment. Results Of 3647 articles identified, 70 articles from 14 countries were included. The prevalence of CRF in CAYA cancer survivors ranged from 10–85%. We recommend that healthcare providers are aware of the risk of CRF, implement regular screening with validated measures, and recommend effective interventions to fatigued survivors. Conclusions A considerable proportion of CAYA cancer survivors suffers from CRF even years after the end of treatment. Implications for Cancer Survivors We recommend that healthcare providers adopt regular screening to detect and treat CRF early and positively influence survivors’ health and quality of life.

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Section: Resultsmentioning

confidence: 99%

Recommendations for the surveillance of cancer-related fatigue in childhood, adolescent, and young adult cancer survivors: a report from the International Late Effects of Childhood Cancer Guideline Harmonization Group

et al. 2020

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“…Six studies adapted and also translated existing tools (see Table 2): CSHQ (29), PedsQL (91,92), SQS-SVQ (131), TuCASA (139), and NSS (72). The CSQH and TuCASA were adapted and translated to Portuguese, the PedsQL to Arabic and Chinese, while SQS-SVQ to Turkish and NSS to Chinese.…”

Section: Tools Adapted and Translatedmentioning

confidence: 99%

Pediatric Sleep Tools: An Updated Literature Review

Sen

Spruyt

2020

Front. Psychiatry

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Since a thorough review in 2011 by Spruyt, into the integral pitfalls of pediatric questionnaires in sleep, sleep researchers worldwide have further evaluated many existing tools. This systematic review aims to comprehensively evaluate and summarize the tools currently in circulation and provide recommendations for potential evolving avenues of pediatric sleep interest. 144 "tool"-studies (70 tools) have been published aiming at investigating sleep in primarily 6-18 years old per parental report. Although 27 new tools were discovered, most of the studies translated or evaluated the psychometric properties of existing tools. Some form of normative values has been established in 18 studies. More than half of the tools queried general sleep problems. Extra efforts in tool development are still needed for tools that assess children outside the 6-to-12-year-old age range, as well as for tools examining sleep-related aspects beyond sleep problems/disorders. Especially assessing the validity of tools has been pursued vis-à-vis fulfillment of psychometric criteria. While the Spruyt et al. review provided a rigorous step-by-step guide into the development and validation of such tools, a pattern of steps continue to be overlooked. As these instruments are potentially valuable in assisting in the development of a clinical diagnosis into pediatric sleep pathologies, it is required that while they are primary subjective measures, they behave as objective measures. More tools for specific populations (e.g., in terms of ages, developmental disabilities, and sleep pathologies) are still needed.

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“…The Arabic version of the self-reported Pediatric Quality of Life Inventory Multidimensional Fatigue Scale (PedsQL-MFS) was used to measure fatigue in this study. 23 It has been indicated as a valid and reliable measure of fatigue in children and adolescents with rheumatic diseases aged between 2-18 years. 24 The scale consists of 18 items comprising three dimensions, each of which including six items.…”

Section: Methodsmentioning

confidence: 99%

Assessment of the Clinical Effects of Aquatic-Based Exercises in the Treatment of Children With Juvenile Dermatomyositis: A 2x2 Controlled-Crossover Trial

et al. 2020

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Objectives: This study aims to compare the effect of aquatic-based exercises (AQBEs) and land-based exercises (LBEs) on muscle strength, fatigue and quality of life (QoL), and skin disease activity in children with juvenile dermatomyositis (JDM). Patients and methods: The design of the study was an assessor-blinded, controlled 2x2 crossover trial. Fourteen children (4 boys, 10 girls; mean age 11.7±2.2 years; range, 10 to 16 years) were evaluated. AQBEs and LBEs were applied through two treatment sequences as half of the children received AQBEs first while the second half received LBEs first. Isometric muscle strength, fatigue level and QoL (Pediatric Quality of Life Inventory Multidimensional Fatigue Scale [PedsQL-MFS]), and skin disease activity score (DASskin) were measured at four occasions for each treatment sequence. Results: The AQBEs had significant superiority over LBEs with improved hip flexors' strength (p=0.007) and hip abductors' strength (p=0.001), while both types of treatment had the same effect in increasing strength of shoulder flexors and abductors (p<0.05). AQBEs improved PedsQL-MFS, and DASskin significantly more than LBEs (p<0.001). For all outcome measures, there was no significant difference in the treatment sequence the children received first. Conclusion: Supervised AQBEs are more effective in improving muscle strength, fatigue and QoL, and skin disease activity than LBEs in children with JDM. Furthermore, the treatment sequence had no significant effect on measured variables.

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The Psychometric Properties of an Arabic version of the PedsQL Multidimensional Fatigue Scale Tested for Children with Cancer

Cited by 14 publications

References 26 publications

Recommendations for the surveillance of cancer-related fatigue in childhood, adolescent, and young adult cancer survivors: a report from the International Late Effects of Childhood Cancer Guideline Harmonization Group

Recommendations for the surveillance of cancer-related fatigue in childhood, adolescent, and young adult cancer survivors: a report from the International Late Effects of Childhood Cancer Guideline Harmonization Group

Pediatric Sleep Tools: An Updated Literature Review

Assessment of the Clinical Effects of Aquatic-Based Exercises in the Treatment of Children With Juvenile Dermatomyositis: A 2x2 Controlled-Crossover Trial

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