The Psychosocial Impact of Bladder Exstrophy in Adolescence

Wilson, Christine; Pistrang, Nancy; Woodhouse, Christopher; Christie, Deborah

doi:10.1016/j.jadohealth.2007.05.021

Cited by 41 publications

(29 citation statements)

References 14 publications

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“…The findings were consistent with differences in age, confirming validity. However, some of the participating children were too young to allow for the long-term evaluation of the effects; serious problems usually arise around the ages of 9 -12 years, according to the literature (Berntsson et al, 2007;Ebert et al, 2005;Hellstrom et al, 2006;Holmdahl et al, 2007;Wilson et al, 2007). Three children had reached the age of 9, and they showed that they could deal well with the situation at school and retain their self-esteem.…”

Section: Discussionmentioning

confidence: 99%

“…Children suffering from long-term illnesses, particularly of the urogenital and bowel region, are vulnerable while they are growing up (Berntsson et al, 2007;Ebert et al, 2005;Hellstrom et al, 2006;Holmdahl et al, 2007;Wilson et al, 2007). Before they reach school age the parents can support them, but when they start school they are alone and are not prepared for the school environment.…”

Section: Introductionmentioning

confidence: 99%

“…They can feel different and find it difficult to protect their integrity and in trying to overcome this problem they might ignore their physical needs in favour of psychological wellbeing. It is important to be like other children but poor compliance with their treatment puts them at risk of ill health (Berntsson et al, 2007;Ebert et al, 2005;Hellstrom et al, 2006;Holmdahl et al, 2007;Wilson et al, 2007).…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Experiences of Learning from a Person-Centred Web-Based Support Programme for Children with Urogenital and Bowel Malformation

Duong¹,

Nolbris²,

Svensson³

et al. 2017

PSYCH

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The purpose was to illuminate preschool children's experiences of learning from a web-based intervention comprising person-centred learning support. A qualitative method was chosen based on open-ended interviews with ten children born with urogenital or bowel malformation. The data were analysed using qualitative content analysis. Two main categories and eight subcategories were identified. The findings show that the participants remembered the web preschool with pleasure and thought it had been useful. The children were able to express what they found important and in the conversations they easily associated the intervention with events in their daily life. Most of the children in this present study could manage toilet visits by themselves but worried about the standard in the school toilets. Their own integrity was important with regard to toilet matters and they wanted privacy for their visits.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Experiences of Learning from a Person-Centred Web-Based Support Programme for Children with Urogenital and Bowel Malformation

Duong¹,

Nolbris²,

Svensson³

et al. 2017

PSYCH

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“…This changes when they start school as the child then has to face problems without the help they are used to. This is a period of risk for children with ill health and reduced compliance with treatment (Berntsson et al, 2007;Ebert, Scheuering, Schott, & Roesch, 2005;Hellstrom, Berg, Sölsnes, Holmdahl, & Sillén, 2006;Holmdahl et al, 2007;Wilson, Pistrang, Woodhouse, & Christie, 2007).…”

Section: Introductionmentioning

confidence: 99%

Skype Support for Preschool Children with Long-Term Illness—One Year Follow-Up

Nolbris¹,

Svensson²,

Hellström³

2016

JPR

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“…Studies of similarly socially limiting conditions to IBD, have found that young people with Bladder Exstrophy who have close peer relationships can encounter positive experiences of disclosure, leading to better understanding and support within their friendship groups, and the successful management of difficulties related to their diagnosis (Wilson et al, 2007).…”

mentioning

confidence: 99%