The quality and costs of residential services for adults with multiple disabilities: A comparative evaluation

Hatton, Chris; Emerson, Eric; Robertson, Janet; Henderson, Dawn X.; Cooper, Janet

doi:10.1016/0891-4222(95)00029-1

Cited by 46 publications

(40 citation statements)

References 23 publications

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“…Research in the UK has established that a structured 'active support' approach (see McGill & Toogood, 1994), involving skilled staff and careful, detailed planning of activities, is consistently associated with a better quality of life for people with more severe and complex disabilities (see, for example, Hatton et al, 1995;McGill et al, 1994). On the basis of this evidence, it is unlikely that a service relying heavily on unskilled, 'natural' supports could promote positive lifestyles for people with severe and complex disabilities.…”

Section: Community Networkmentioning

confidence: 99%

A Home of Your Own

Hatton

1996

Tizard Learning Disability Rev

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Section: Community Networkmentioning

confidence: 99%

A Home of Your Own

Hatton

1996

Tizard Learning Disability Rev

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“…Numerosas investigaciones avalan las adecuadas propiedades psicométricas de la misma, así como su validez transcultural Schalock, Gardner & Bradley, 2007;Schalock & Verdugo, 2003;Schalock et al, 2005 (Brown & Brown, 2005;Hatton, Emerson, Robertson, Henderson & Cooper, 1995;Keith & Rawlinson, 1998;Stancliffe, 2002;Young, 2006). Por ejemplo, Young (2006) pone de manifiesto cómo las alternativas residenciales en la comunidad son una ventaja frente a las oportunidades disponibles en las grandes instituciones residenciales.…”

Section: Unive R S I Ta S Psyc H O L O G I C Aunclassified

Evaluación de la calidad de vida de adultos con discapacidad intelectual institucionalizados en Chile

et al. 2013

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r e s u M e n El presente estudio analiza la calidad de vida de una muestra de 285 adultos institucionalizados con discapacidad intelectual. La calidad de vida, evaluada a través de profesionales, se concibe desde el modelo de ocho dimensiones de Schalock y Verdugo. Se ofrecen además evidencias de la adecuación (fiabilidad y validez) de la Escala Transcultural de Indicadores de Calidad de Vida para su aplicación con esta población. Los resultados revelaron diferencias significativas en importancia y uso de las diferentes dimensiones de calidad de vida, así como sobre sus valoraciones en función del grado de discapacidad de los participantes. La duración de la institucionalización tuvo un impacto significativo en las valoraciones de la importancia de las distintas dimensiones de calidad de vida. Se incluye una discusión sobre las percepciones de los proveedores de servicios acerca de la calidad de vida de sus usuarios y del impacto de la institucionalización. Palabras clave autoresCalidad de vida, discapacidad intelectual, institucionalización. Palabras clave descriptoresInvestigación cuantitativa, Psicología del desarrollo, Envejecimiento. a b s t r a C tThis study analyzes the quality of life for a sample of 285 institutionalized adults with intellectual disabilities. Quality of life, as assessed by professionals, is conceptualized according to the eight domains model from Schalock and Verdugo. The study also offers evidence of the adequacy (reliability and validity) of the Cross-cultural Measure of Quality of Life Indicators for use with this population. The results revealed significant differences in importance and use of the different dimensions of quality of life, and evaluation ratings of quality of life, based on the degree of disability of the participants. Length of institutionalization significantly impacted on ratings of importance of the different domains of quality of life. Discussion on further research on perceptions of service providers concerning the quality of life of its users and the impact of institutionalization is included.

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“…However, it is generally recognized that maximal social adaptive functional outcome for children affected by learning disability is attained through careful, programmed intervention. An illustrative example of this can be found in the work of Hatton and colleagues 27 which has demonstrated that contemporary specialized community-based care models do seem to generate optimal global outcome.…”

Section: General Healthmentioning

confidence: 99%

Adult outcome of childhood learning disability

O’Brien¹

2001

Develop Med Child Neuro

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'But what are the prospects for the future, Doctor?' This question is frequently asked by parents of children with learning disability.* But longitudinal studies of the outcome in adulthood of childhood learning disability are lacking. 1 At the same time, extrapolating prognoses from the available evidence is unreliable. Increasingly, however, clinicians are faced with this basic question that is on the minds of parents who have gleaned 'information' from other sources, notably the internet. So, what can be usefully and reliably claimed regarding outcome in adulthood for children with learning disabilities?Outcome studies in learning disability Studies of the outcome of childhood learning disability have adopted a variety of strategies. Various outcome measures have been used including: (1) life expectancy, (2) general health, (3) adaptive functioning, (4) psychopathology, (5) service contact, and (6) integration into adult life. Early studies focused mainly on morbidity and mortality (e.g. Decker and colleagues, 2 Richards and Sylvester 3 ), while more recently the emphasis has shifted towards systematic consideration of quality of life . 15,18 Life expectancy There is a long tradition of research on the mortality of people with learning disability. A variety of studies (e.g. Richards and Sylvester, 3 Balkrishnan and Wolff 4 ) have demonstrated that, in general, children with learning disability have a shorter life expectancy than other children. Previously, most of these studies were carried out on long-stay hospital patients employing case note data, but the same outcome has been found in the recent community-based study by Hollins and colleagues, 5 that examined death certification data of individuals with learning disability. These studies have clarified that mortality increases with increasing severity of learning disability, most notably among those with IQ levels below 40. [5][6][7] Other high risk factors which predict or are associated with earlier death in people with learning disability include any additional physical disability or medical problem, notably cerebral palsy and poorly controlled epilepsy. Non-mobile children and those incapable of self-feeding are especially at risk of short life expectancy. 6 Another strategy has been to concentrate on the cause of death among people with learning disability. In a major 50-year study Carter and Jancar 8 found that before 1955, tuberculosis was a common cause of death among people with learning disability while other respiratory infections were implicated more commonly in later deaths. Between 1930 and 1980, death rates by arterial disease increased while death from status epilepticus decreased. They also found that from 1959 to 1968, cancer became a more common cause of death among people with learning disability. These three latter trends mirror changes in lifestyle and improvements in medical treatment of people with learning disability over the last 50 years. Subsequently, Dupont and coworkers 9 applied the concept of 'avoidable mortality' to learni...

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The quality and costs of residential services for adults with multiple disabilities: A comparative evaluation

Cited by 46 publications

References 23 publications

A Home of Your Own

A Home of Your Own

Evaluación de la calidad de vida de adultos con discapacidad intelectual institucionalizados en Chile

Adult outcome of childhood learning disability

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