The quality of life of children with attention deficit/hyperactivity disorder: a systematic review

Danckaerts, Marina; Sonuga‐Barke, Edmund; Banaschewski, Tobias; Buitelaar, Jan K.; Döpfner, Manfred; Hollis, Chris; Santosh, Paramala; Rothenberger, Aribert; Sergeant, Joseph A.; Steinhausen, Hans‐Christoph; Taylor, Eric; Zuddas, Alessandro; Coghill, David

doi:10.1007/s00787-009-0046-3

Cited by 416 publications

(483 citation statements)

References 89 publications

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“…Second, nonadherence to medication has been observed in some individuals with ADHD who experience adverse side effects, including mood instability, heart palpation, nausea and anxiety [58]. Third, some parents may have reservations about psychopharmacological treatments [59]. Our results underpin the importance of delivering adequate services in multiple clinical, educational and community settings to optimize ADHD outcome in individuals with ADHD.…”

Section: Identified Icf-cy Categoriesmentioning

confidence: 75%

“…Young children may lack the understanding, insight or communication skills to provide valid information [13]. In addition, for children with mental health problems, disorderspecific symptoms and impairments may also affect their own assessment [59]. For example, a child with ADHD may have issues with reporting on attention problems owing to attention problems.…”

Section: Study Limitationsmentioning

confidence: 99%

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An international clinical study of ability and disability in ADHD using the WHO-ICF framework

Mahdi

Ronzano

Knüppel

et al. 2018

Eur Child Adolesc Psychiatry

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This is the fourth and final study designed to develop International Classification of Functioning, Disability and Health (ICF, and children and youth version, ICF-CY) core sets for attention-deficit hyperactivity disorder (ADHD). To investigate aspects of functioning and environment of individuals with ADHD as documented by the ICF-CY in clinical practice settings. An international cross-sectional multi-centre study was applied, involving nine units from eight countries: Denmark, Germany, India, Italy, Portugal, Saudi Arabia, Sweden and Taiwan. Clinicians and clinical researchers rated the functioning level of 112 children, adolescents and adults with ADHD using the extended ICF-CY checklist version 2.1a. The ratings were based on a variety of information sources, such as medical records, medical history, clinical observations, clinical questionnaires, psychometric tests and structured interviews with participants and family members. In total, 113 ICF-CY categories were identified, of which 50 were related to the activities and participation, 33 to environmental factors and 30 to body functions. The clinical study also yielded strengths related to ADHD, which included temperament and personality functions and recreation and leisure. The study findings endorse the complex nature of ADHD, as evidenced by the many functional and contextual domains impacted in ADHD. ICF-CY based tools can serve as foundation for capturing various functional profiles and environmental facilitators and barriers. The international nature of the ICF-CY makes it possible to develop user-friendly tools that can be applied globally and in multiple settings, ranging from clinical services and policymaking to education and research.

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Section: Identified Icf-cy Categoriesmentioning

confidence: 75%

Section: Study Limitationsmentioning

confidence: 99%

An international clinical study of ability and disability in ADHD using the WHO-ICF framework

Mahdi

Ronzano

Knüppel

et al. 2018

Eur Child Adolesc Psychiatry

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“…With respect to those papers that were excluded, the first notable limitation was that many studies failed to assess the number of children receiving psychotropic medication that could influence HRQOL [11]. Second, the diagnosis of mental disorder often was not confirmed, investigators relying entirely on parental reports.…”

Section: Limitations Of Existing Studies and Recommendations For Furtmentioning

confidence: 99%

Health-related quality of life among children with mental disorders: a systematic review

2012

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PURPOSE: To systematically review studies about the quality of life (QOL) of children with various mental disorders relative to healthy controls and to describe limitations in these studies. METH-ODS: Relevant articles were searched using different databases, by checking reference lists and contacting experts. We included articles that either compared children with mental disorders to healthy controls/norm values or made such a comparison possible. RESULTS: Sixteen out of 4,560 articles met the pre-defined inclusion criteria. These studies revealed that the QOL of children with various mental disorders is compromised across multiple domains. The largest effect sizes were found for psychosocial and family-related domains and for the total QOL score, whereas physical domains generally were less affected. The most important limitations in the existing literature include the lack of study samples drawn from the general population, the failure to use self-ratings, not considering item overlap between measuring QOL and assessing for the presence of a particular mental disorder, and not determining whether the children were receiving medication for their mental disorder. CONCLUSIONS: Children with mental disorders experience a considerable reduction in QOL across various domains. Research studies that avoid previous limitations are crucial to fill existing knowledge gaps. Results: Sixteen out of 4,560 articles met the pre-defined inclusion criteria. These studies revealed that the QOL of children with various mental disorders is compromised across multiple domains. The largest effect sizes were found for psychosocial and family-related domains and for the total QOL score, whereas physical domains generally were less affected.The most important limitations in the existing literature include the lack of study samples drawn from the general population, the failure to use self-ratings, not considering item overlap between measuring QOL and assessing for the presence of a particular mental disorder, and not determining whether the children were receiving medication for their mental disorder. Conclusions:Children with mental disorders experience a considerable reduction in QOL across various domains. Research studies that avoid previous limitations are crucial to fill existing knowledge gaps.

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“…It also negatively impacts on carers and families (Cussen, Sciberras, Ukoumunne, & Efron, 2012). Globally, ADHD is associated with substantial levels of disability and impairment (Erskine et al., 2014) and reduced quality of life (Danckaerts et al., 2010). …”

Section: Introductionmentioning

confidence: 99%

Preschool hyperactivity is associated with long‐term economic burden: evidence from a longitudinal health economic analysis of costs incurred across childhood, adolescence and young adulthood

Chorozoglou

Smith

Koerting

et al. 2015

Child Psychology Psychiatry

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BackgroundPreschool hyperactivity is an early risk factor for adult mental health problems and criminality. Little is known about; (a) the patterns of long‐term service costs associated with this behavioural marker in the general population and (b) the specific factors predicting hyperactivity‐related costs. We undertook a prospective study investigating associations between preschool hyperactivity and average individual annual service costs up to late adolescent and young adulthood.MethodsOne‐hundred and seventy individuals rated as hyperactive by their parents and 88 nonhyperactive controls were identified from a community sample of 4,215 three years olds. Baseline information about behaviour/emotional problems and background characteristics were collected. At follow‐up (when individuals were aged between 14 and 25 years) information was obtained on service use, and associated costs since the age of three. Based on this information we calculated the average cost per annum incurred by each individual.ResultsCompared to controls, preschoolers with hyperactivity had 17.6 times higher average costs per annum across domains (apart from nonmental health costs). These were £562 for each hyperactive individual compared with £30 for controls. Average annual costs decreased as a function of age, with higher costs incurred at younger ages. The effects of hyperactivity remained significant when other baseline factors were added to the model. Effects were fully mediated by later psychiatric morbidity. When the hyperactive group were examined separately, costs were consistently predicted by male gender and, for some cost codes, by conduct problems.ConclusionsPreventative approaches targeting early hyperactivity may be of value. Services should be targeted towards high‐risk individuals with careful consideration given to the cost‐to‐benefit trade‐off of early intervention strategies.

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The quality of life of children with attention deficit/hyperactivity disorder: a systematic review

Cited by 416 publications

References 89 publications

An international clinical study of ability and disability in ADHD using the WHO-ICF framework

An international clinical study of ability and disability in ADHD using the WHO-ICF framework

Health-related quality of life among children with mental disorders: a systematic review

Preschool hyperactivity is associated with long‐term economic burden: evidence from a longitudinal health economic analysis of costs incurred across childhood, adolescence and young adulthood

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