The role of parental support for emerging adults with type 1 diabetes: A scoping review

Johansen, Clea Bruun; Rothmann, Mette Juel; Andersen, Anette; Beck‐Nielsen, Henning; Pouwer, Frans

doi:10.1111/pedi.13022

Cited by 17 publications

(15 citation statements)

References 62 publications

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“…People living with T1D are challenged with handling a chronic condition that demands structure, self-discipline and repeated health care contacts [1]. Due to the possible complications and complex management of T1D (which involves daily management of insulin adjustment to food intake and physical activity, carb counting, preventing and managing hypoglycaemia, and dealing with the health system), people living with T1D are more at risk of psychological problems than their healthy peers [2].…”

Section: Introductionmentioning

confidence: 99%

Unraveling the concepts of distress, burnout, and depression in type 1 diabetes: A scoping review

et al. 2021

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Background: Psychological complications are frequent in type 1 diabetes (T1D) but they might be difficult to distinguish one from the other in clinical practice. Our objective was to study the distinguishing characteristics, overlaps and their use in the literature between three concepts of T1D: depression, diabetes distress (DD) and diabetes burnout (DB). Methods: A scoping review (PRISMA guidelines) performed in three databases (PubMed/MEDLINE, PsycInfo, Web of Science) with the keywords: T1D, depression, diabetes and burnout, from January 1990 to June 2021. We selected original studies with participants with T1D, which reported depression, DD, or DB. We extracted information about the concepts, their sub-concepts and screening tools. Findings: Of the 4763 studies identified, 201 studies were included in the study. Seventy-three percent, 57% and 45% of sub-concepts do not overlap in depression, DD, and DB, respectively. We observed overlap between depression (27%)/DD (27%) and between DD (20%)/DB (50%). Interpretation: A number of sub-concepts distinguish depression and DD. Overlaps between concepts suggest that a more precise definition is still lacking. DB is still a relatively new concept and more research is needed to better understand how it can present itself differently, in order to personalize care in comparison to those having DD.

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Section: Introductionmentioning

confidence: 99%

Unraveling the concepts of distress, burnout, and depression in type 1 diabetes: A scoping review

et al. 2021

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“…This was reflected by families and clinicians who expressed concern about the limited availability of psychological support in diabetes services. To incorporate this with relevant literature ( 38 , 39 ) the intervention content focuses on developing parental skills to promote a healthy body image, identify disordered eating, and manage risk. Families spoke about the challenges of discussing food and weight in the diabetes clinic, unsure of whether concerns beyond carbohydrate counting warranted support.…”

Section: Priority Intervention Developmentmentioning

confidence: 99%

Development and Theoretical Underpinnings of the PRIORITY Intervention: A Parenting Intervention to Prevent Disordered Eating in Children and Young People With Type 1 Diabetes

O’Donnell

Satherley

John

et al. 2022

Front. Clin. Diabetes Healthc.

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Children and young people (CYP) with type 1 diabetes (T1D) are twice as likely to develop disordered eating (T1DE) and clinical eating disorders than those without. This has significant implications for physical and mental health, with some eating disorders associated with repeated diabetic ketoacidosis and higher HbA1c levels, both of which are life threatening. There is currently limited psychological support for CYP and families with T1D but increasingly, policy and practice are suggesting disordered eating in T1D may be effectively prevented through psychological intervention. We describe the development and theoretical underpinnings of a preventative psychological intervention for parents of CYP aged 11-14, with T1D. The intervention was informed by psychological theory, notably the Information Motivation Behaviour Skills model and Behaviour Change Technique Taxonomy. The intervention was co-developed with an expert advisory group of clinicians, and families with T1D. The manualised intervention includes two online group workshops, and supplementary online materials. The intervention continues to evolve, and feasibility findings will inform how best to align the intervention with routine care in NHS diabetes teams. Early detection and intervention are crucial in preventing T1DE, and it is hoped that the current intervention can contribute to improving the psychological and physical wellbeing of young people and families managing T1D.

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“…Frustration has been explained from perspectives of Sociology (Morrall, 1996), social work (Stevenson & Parsloe, 1993), and Psychology (Zimmwerman & Rappaport, 1988). Previous research (Rani & Deswal, 2015;Johansen et al, 2020) had clear evidence that frustration is a very important construct to measure and explore among emerging adults for good mental health and for spending better life. There is a need to investigate the knowledge gap for understanding frustration meanings to emerge adults and their view of frustration.…”

Section: Introductionmentioning

confidence: 99%

A Qualitative Exploration of Frustration From the Perspective of Emerging Adults

Zaka

Rohail

Akhtar

et al. 2021

HSSR

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Purpose: The present study was aimed to explore the phenomena of frustration from the perspective of emerging adults. Methodology: Qualitative research design was followed in the study. Data was collected through semi-structured interviews. The sample consisted of 69 emerging adults (33 males, 36 females) aged from 18 years to 25 years. A convenient sampling technique was used to collect the data. The data was collected from different universities of Rawalpindi and Islamabad, Pakistan; An open-ended questionnaire was developed to explore the concept of frustration for conducting semi-structured interviews. Content analysis was employed to analyze the data. Main Findings: Analysis of the transcripts revealed one main theme; emotions related to frustration, and three subthemes; Affective emotions, Cognitive styles, and Behavioral emotions. Implications/Applications: The current study results highlight the importance of considering how young adults understand their conditions to help them regain functioning status and prevent missed developmental milestones for physicians dealing with emerging adults experiencing frustration. Besides, this research indicates to policymakers that the lack of optimism associated with anxiety disorders and inadequate access to and fragmentation of mental health services can substantially hinder these young adults' capacity to receive consistent, high-quality care. Novelty/Originality of this study: Many quantitative researches have investigated the reaction to frustration among adolescents. Emotions of frustration are different according to the situation. In literature, no qualitative study found that investigated this phenomenon in emerging adults. So this study was intended to explore the construct of frustration qualitatively.

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The role of parental support for emerging adults with type 1 diabetes: A scoping review

Cited by 17 publications

References 62 publications

Unraveling the concepts of distress, burnout, and depression in type 1 diabetes: A scoping review

Unraveling the concepts of distress, burnout, and depression in type 1 diabetes: A scoping review

Development and Theoretical Underpinnings of the PRIORITY Intervention: A Parenting Intervention to Prevent Disordered Eating in Children and Young People With Type 1 Diabetes

A Qualitative Exploration of Frustration From the Perspective of Emerging Adults

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