The Sexual Health Needs of Women with Spinal Cord Injury: A Qualitative Study

Amjadi, Marjan Akhavan; Simbar, Masoumeh; Hosseini, Seyyed Ali; Zayeri, Farid

doi:10.1007/s11195-017-9495-7

Cited by 13 publications

(9 citation statements)

References 38 publications

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“…Of the 27 papers reviewed, 21 papers addressed the issue of sexual identity, and six did not [22,27,29,[30][31][32]. Of the 21 papers, two papers focused specifically on exploring identity as one of their main research aims [33,34].…”

Section: Sexual Identitymentioning

confidence: 99%

“…Sexual identity contributes to a sense of self and the papers reviewed touched on various aspects of sexual identity including intimacy, sex, reproduction, gender identity and (rarely) sexual orientation. Twelve papers [20,22,24,25,31,[36][37][38][39][40] identified the sexual orientation of their research participants; of the remaining 15 papers, heteronormativity was implied but not referred to explicitly.…”

Section: Sexual Identitymentioning

confidence: 99%

“…(p. 320) [33] I got back to every other aspect of my life other than that [sex] after injury… I went back to teaching full time… I drove my car… everything was in its place except for my liking myself and my sexuality, and feeling like I was a woman again… and that took me fifteen years to go to that point. (p. 279) [38] Five of the studies suggest that women's sexual identity was also connected to reproductive capacity and to women's traditional roles as wives and mothers; these studies were conducted in the USA, Hong Kong, China, Iran and Australia respectively [21,31,32,37,44]. Women's experiences were generally framed within the cultural norms about gender and sexuality.…”

Section: Sexual Identitymentioning

confidence: 99%

“…Many of the research participants expressed fear of losing control of their bladder or bowels during sex, preventing many individuals from engaging in sexual activity with another person. For example, My big problem for having sex… I have urinary incontinence and sometimes, fecal incontinence (p. 317) [31] Some individuals had waited several years prior to engaging in sexual activity (if at all)-even though sex was important to them-and a reluctance to re-engage with their sexual lives was often attributed to concerns with bladder and bowel management. Loss of control over bladder and bowels was seen as embarrassing and something fearful in the context of all sexual activity but particularly so in relation to sexual relations with a new partner:…”

Section: Sexual Embodimentmentioning

confidence: 99%

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Views and Experiences of Sex, Sexuality and Relationships Following Spinal Cord Injury: A Systematic Review and Narrative Synthesis of the Qualitative Literature

et al. 2020

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Research examining the effects of spinal cord injury on sexuality has largely focused on physiological functioning and quantification of dysfunction following injury. This paper reports a systematic review of qualitative research that focused on the views and experiences of people with spinal cord injury on sex and relationships. The review addressed the following research question: What are the views and experiences of people with spinal cord injury of sex, sexuality and relationships following injury? Five databases were relevant and employed in the review: CINAHL (1989–2016 only), PsychInfo, PubMed, Scopus and Web of Science, for research published between 1 January 1980 and 30 November 2019. After removing duplicates, 257 records remained and were screened using a two-stage approach to inclusion and quality appraisal. Following screening, 27 met the criteria for inclusion and are reported in the paper. The review includes studies from fifteen countries across five continents. Two main approaches to data analysis summary and thematic synthesis were undertaken to analyze the qualitative data reported in the papers. The analysis revealed four main themes: sexual identity; significant and generalized others, sexual embodiment; and; sexual rehabilitation and education.

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Section: Sexual Identitymentioning

confidence: 99%

Section: Sexual Identitymentioning

confidence: 99%

Section: Sexual Identitymentioning

confidence: 99%

Section: Sexual Embodimentmentioning

confidence: 99%

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Views and Experiences of Sex, Sexuality and Relationships Following Spinal Cord Injury: A Systematic Review and Narrative Synthesis of the Qualitative Literature

et al. 2020

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“…Lappeteläinen et al, 2017). Current research concerning the subject is most commonly focused on their sexuality, including sexual health (Amjadi et al, 2017), sexual counselling (Rezaei-Fard et al, 2019), sexual reconstruction and identity (Beckwith and Kwaing-sang You, 2013); pregnancy and motherhood, including pregnancy outcomes (Crane et al, 2019), postpartum depression (Lee et al, 2019), and breastfeeding (Krassioukov et al, 2019); as well as women's health, including breast cancer (De Padua et al, 2018) or urological problems (Elmelund et al, 2019). Nonetheless, it is still necessary to conduct studies on functioning of the women with SCI, especially research into their interpersonal relationships.…”

Section: Introductionmentioning

confidence: 99%

Social relationship quality among women with spinal cord injury – the role of disability acceptance

Gabryś

2020

Hrvat. rev. rehabil. istraž. (Online)

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Interpersonal relationships among women with spinal cord injury are limited due to numerous barriers. The aim of this study was to investigate the role of disability acceptance in terms of the quality of social relationships among women with spinal cord injury. Social relationship quality was conceptualised as a construct that included two indicators, namely strength of relationship and social support. Ninety (N=90) women with spinal cord injury completed the Strength of Interpersonal Relationships Questionnaire (Zbieg and Słowińska, 2015), Social Support Scale (Kmiecik-Baran, 1995), and Multidimensional Acceptance of Loss Scale (Byra, 2017). Such methodological tools as descriptive statistics, correlation analysis (Pearson’s correlation coefficients) and progressive stepwise regression analysis were used. The study showed that the most important value for the surveyed women was the time devoted to relationships. The most frequent kinds of received support were informational and emotional. In addition, the most common change in the perception of disability acceptance was the containment of its effects and a transformation from comparative value to asset value. A significant correlation between the included variables was observed. It is also well worth mentioning that the two subscales of disability acceptance entailed a predictive function in explaining social relationship quality; however, the two subscales explained a surprisingly low percentage of observed variance. It is reasonable to suggest other ways of explaining this phenomenon.

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Lifestyle assessment in individuals with spinal cord injuries caused by accidents and disasters in qualitative studies published from 1990 to 2020: A meta‐synthesis of qualitative study

Nazari,

Moradi,

Danyali

et al. 2023

Health Science Reports

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Background and Aims As a debilitating disorder, spinal cord injuries (SCIs) can bring about a range of physical, psychological, and social consequences in individuals and even have effects on their lifestyle indicators. The present study was thus to reflect on lifestyles among people with SCIs developing from accidents and disasters. Methods Using a meta‐synthesis of qualitative research, all articles recruiting qualitative methods to examine patients with SCIs, published from 1990 to 2020, were retrieved by the researchers, good at the Persian and English languages, from the databases of ScienceDirect, MD Consult, Pedro, ProQuest, PubMed, SID, MedLib, Magiran, Scopus, Google Scholar, Iranmedex, the Cochran Library, CINAHL, and Blackwell, tapping the keywords of “spinal cord injury, SCI, manmade disaster, natural disaster, content analysis, concept analysis, thematic analysis, lifestyle, quality of life, QoL, grounded theory, meta‐synthesis, mixed‐methods research, historical research, ethnography, and phenomenology” in both languages for their inclusion in this study and further analyses. Results With reference to the inclusion criteria, 18 articles were extracted, and after all 10 studies in line with the research topic were reviewed and analyzed. Ultimately, six main themes, namely, compromise, self‐reliance, income‐generating activities, mental status, inability, and issues of sexuality were extracted, demonstrating their importance to individuals suffering from SCIs. Conclusion During the initial stages following SCIs, the abilities to engage in participatory practices and individual's power of decision‐making diminish because of physical, social, psychological, and environmental constraints. It was accordingly recommended to have a holistic perspective and respect all aspects of life in individuals with SCIs.

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The Sexual Health Needs of Women with Spinal Cord Injury: A Qualitative Study

Cited by 13 publications

References 38 publications

Views and Experiences of Sex, Sexuality and Relationships Following Spinal Cord Injury: A Systematic Review and Narrative Synthesis of the Qualitative Literature

Views and Experiences of Sex, Sexuality and Relationships Following Spinal Cord Injury: A Systematic Review and Narrative Synthesis of the Qualitative Literature

Social relationship quality among women with spinal cord injury – the role of disability acceptance

Lifestyle assessment in individuals with spinal cord injuries caused by accidents and disasters in qualitative studies published from 1990 to 2020: A meta‐synthesis of qualitative study

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