The STORK dataset: Linked midwifery and delivery records of the mothers and index children in the Avon Longitudinal Study of Parents and Children (ALSPAC)

Mummé, Mark; Boyd, Andy; Golding, Jean; Macleod, John

doi:10.12688/wellcomeopenres.16247.1

Cited by 4 publications

(3 citation statements)

References 4 publications

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“…The data described in this Data Note are confined to what was documented in the medical record. It is important to point out, however, that other relevant data are available including the computerised STORK data ( Mummé et al , 2020 ), and the prospective data collected from the women during pregnancy and after delivery, using detailed self-report questionnaires administered at 18 and 32 weeks gestation as well as at eight weeks postpartum ( Ellis et al , 2022 ). These provide information on a variety of signs and symptoms occurring during and after the pregnancy, together with the non-obstetric medications taken.…”

Section: Discussionmentioning

confidence: 99%

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The mother during pregnancy and the puerperium: Detailed data abstracted from the clinical obstetric records of ALSPAC pregnancies

Birmingham,

Gregory,

Iles-Caven

et al. 2024

Wellcome Open Res

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Background When the Avon Longitudinal Study of Parents and Children (ALSPAC) was planned, it was assumed that the clinical obstetric data would be easily accessible from the newly developed National Health Service computerised ‘STORK’ system. Pilot studies, however, showed that, although fairly accurate in regard to aspects of labour and delivery, it was, at the time (1990-2), inadequate for identifying the full antenatal and postnatal details of clinical complications and treatments of the women in the Study. Methods A scheme was therefore developed to train research staff to find and abstract relevant details from clinical records onto proformas designed for the purpose. Extracting such data proved very time consuming (up to six hours for complicated pregnancies) and consequently expensive. Funding for the enterprise was obtained piecemeal using specific focussed grants to extract data for subsamples of the Study, including a random sample to serve as controls. Results To date, detailed records have been completed for 8369 pregnancies, and a further 5336 (13,705 in total) have complete details on specific prenatal areas, including serial measures of maternal blood pressure, proteinuria and weight. In this Data Note we describe the information abstracted from the obstetric medical records concerning the mother during pregnancy, labour, delivery and the first two weeks of the puerperium. Information abstracted relating to the fetus (including fetal monitoring, presentation, method of delivery) and neonate (signs of asphyxia, resuscitation, treatment and well-being) have been described in a further Data Note. Conclusions These data add depth to ALSPAC concerning ways in which the signs and symptoms, procedures and treatments of the mother prenatally, intrapartum and postnatally, may impact on the long-term health and development of both mother and child. They augment the data collected from the mothers’ questionnaires (described elsewhere) and the ‘STORK’ digital hospital data.

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Section: Discussionmentioning

confidence: 99%

“…The variables available include the length of time from membrane rupture to delivery, admission to delivery and the start of labour to delivery. It should be noted that where data are missing, valid information may be available in the STORK dataset (see Mummé et al , 2020 ).…”

Section: Summary Of the Data Availablementioning

confidence: 99%

The mother during pregnancy and the puerperium: Detailed data abstracted from the clinical obstetric records of ALSPAC pregnancies

Birmingham,

Gregory,

Iles-Caven

et al. 2024

Wellcome Open Res

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“…In addition, details of the reasons for the use of medications and the frequency with which she took analgesics such as paracetamol (acetaminophen) and aspirin. Elsewhere the actual medications the mother reported taking during pregnancy are detailed [ Headley et al , 2004 ], as are details of other sources of information such as the data abstracted from the medical records [ Birmingham et al , 2021 ] and the midwife recorded data on the STORK database [ Mummé et al , 2020 ].…”

Section: Introductionmentioning

confidence: 99%

Maternal reports of morbidity during the index ALSPAC pregnancy

Ellis¹,

Fraser²,

Golding³

et al. 2022

Wellcome Open Res

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Within the ALSPAC (Avon Longitudinal Study of Parents and Children) resource, information concerning the health of the mother during pregnancy is available from three sources: (i) computerised data collected by midwives after the birth of the baby, known as the STORK database; (ii) data abstracted by ALSPAC staff from detailed medical obstetric records, and (iii) reports by mothers during pregnancy, and shortly after the birth using structured questionnaires completed at home. In this Data Note we focus on source (iii), and detail the information obtained from these mothers concerning their health, signs and symptoms together with medications and supplements taken during pregnancy. We also describe how the data can be accessed.

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The mother during pregnancy and the puerperium: Detailed data abstracted from the clinical obstetric records of ALSPAC pregnancies

et al. 2021

Self Cite

View full text Add to dashboard Cite

Background: When the Avon Longitudinal Study of Parents and Children (ALSPAC) was planned, it was assumed that the clinical obstetric data would be easily accessible from the newly developed National Health Service computerised ‘STORK’ system. Pilot studies, however, showed that, although fairly accurate in regard to aspects of labour and delivery, it was, at the time (1990-2), inadequate for identifying the full antenatal and postnatal details of clinical complications and treatments of the women in the Study. Methods: A scheme was therefore developed to train research staff to find and abstract relevant details from clinical records onto proformas designed for the purpose. Extracting such data proved very time consuming (up to six hours for complicated pregnancies) and consequently expensive. Funding for the enterprise was obtained piecemeal using specific focussed grants to extract data for subsamples of the Study, including a random sample to serve as controls. Results: To date, detailed records have been completed for 8369 pregnancies, and a further 5336 (13,705 in total) have complete details on specific prenatal areas, including serial measures of maternal blood pressure, proteinuria and weight. In this Data Note we describe the information abstracted from the obstetric medical records concerning the mother during pregnancy, labour, delivery and the first two weeks of the puerperium. Information abstracted relating to the fetus (including fetal monitoring, presentation, method of delivery) and neonate (signs of asphyxia, resuscitation, treatment and well-being) will be described in a further Data Note. Conclusions: These data add depth to ALSPAC concerning ways in which the signs and symptoms, procedures and treatments of the mother prenatally, intrapartum and postnatally, may impact on the long-term health and development of both mother and child. They augment the data collected from the mothers’ questionnaires and the ‘STORK’ digital hospital data.

show abstract

The STORK dataset: Linked midwifery and delivery records of the mothers and index children in the Avon Longitudinal Study of Parents and Children (ALSPAC)

Cited by 4 publications

References 4 publications

The mother during pregnancy and the puerperium: Detailed data abstracted from the clinical obstetric records of ALSPAC pregnancies

The mother during pregnancy and the puerperium: Detailed data abstracted from the clinical obstetric records of ALSPAC pregnancies

Maternal reports of morbidity during the index ALSPAC pregnancy

The mother during pregnancy and the puerperium: Detailed data abstracted from the clinical obstetric records of ALSPAC pregnancies

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