The student journey: Living and learning following traumatic brain injury

Mealings, Margaret; Douglas, Jacinta; Olver, John

doi:10.1080/02699052.2020.1863466

Cited by 2 publications

(23 citation statements)

References 24 publications

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“…The reclaiming of their former work/study roles in some capacity was validating and gave a positive sense of purpose and belonging 39,40,45,52,57,76 for those who chose this path. Finding work, volunteering or returning to study were often key steps toward achieving a positive outlook, even when symptoms following the ABI persisted 10,25,40 …”

Section: Resultsmentioning

confidence: 96%

“…Participants experienced ‘unpredictable’ 35 and often ‘invisible’ 30,57 after‐effects following their ABI 25,26,28,29,31,32,34,35,39‐42,47,52,53,57‐59,61,63,65,69,72,73 . Those with communication issues felt particularly constrained in their choices due to difficulty expressing their needs 53,55,58,77 .…”

Section: Resultsmentioning

confidence: 99%

“…The experience of reordering life after an ABI often prompted a reassessment of what gives meaning and purpose in life, personal values and what supports recovery 25,29,32,34,40,47–52,57,59,63,65,72,73,78 . There was an associated adjustment in identity and self‐concept about what to do next 29,40,48,52 .…”

Section: Resultsmentioning

confidence: 99%

“…There was an appreciation of simple pleasures that were previously taken for granted, such as being alive, 29,37,75 having a job, 10 nice weather, slowing down, 29,54 discovering new tools, 65 carpentry 40 and being with family 25,63 . Participant understanding of the value of having roles and being socially connected plus the desire to take control led them to extending themselves to evaluate their limits 25,32,40,57,77,78 . There was an eagerness to resume activities that were performed before the ABI, 29,34,57 but the reflective process established that this was not always possible 40,43,52 …”

Section: Resultsmentioning

confidence: 99%

“…The initial loss of both roles and independence resulted in a reframing of identity and priorities 37,38,49,57 . They aimed to make choices that aligned with their values, and this started to shape their perception of who they were and wanted to be 26,29,40,56,57,65,74 . Participants were mindful of how the ABI may have modified their personality, priorities and abilities 29,32,34,48,52,57,63,65 .…”

Section: Resultsmentioning

confidence: 99%

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Perspectives of choice and control in daily life for people following brain injury: A qualitative systematic review and meta‐synthesis

Murray

Weeks

Kessel

et al. 2022

Health Expectations

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Background and Objective Acquired brain injury (ABI) can result in considerable life changes. Having choice and control over daily life is valued by people following ABI. This meta‐synthesis will analyse and integrate international research exploring perspectives of choice and control in daily life following ABI. Methods Databases were searched from 1980 to 13 January 2022 for eligible qualitative studies. After duplicates were removed, 22,768 studies were screened by title and abstract, and 241 studies received full‐text assessment with 56 studies included after pearling. Study characteristics and findings were extracted that related to personal perspectives on choice and control by people with an ABI (including author interpretation and quotes). Data from each study were coded and then segments of coded data across the studies were compared to create multiple broad categories. Findings Findings were then reduced from categories into 3 overarching themes with 12 subthemes. These themes were: (1) feeling like a second‐class citizen; (2) reordering life and (3) choosing a path. Participants with an ABI tussled between their feelings of loss following brain injury and their thinking about how they start to regain control and become agents of their own choices. The themes describe their sense of self, their changed self and their empowered self in relation to ‘choice and control’. Conclusions Re‐engaging with choice and control after ABI is dynamic and can be challenging. Health professionals and supporters need to facilitate a gradual and negotiated return to agency for people following ABI. A sensitive and person‐centred approach is needed that considers the readiness of the person with ABI to reclaim choice and control at each stage of their recovery. Clear service or process indicators that are built on lived experience research are needed to facilitate changes in service delivery that are collaborative and inclusive. Patient or Public Contribution This review included the voices of 765 people living with ABI and was conducted by a diverse team of allied health professionals with practice knowledge and research experience with people following ABI. Twenty‐nine of the 56 included studies had participants contributing to their design or analysis.

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Section: Resultsmentioning

confidence: 96%