The TCCS—A short measure to evaluate treatment-related coping and compliance in hospitalised childhood cancer patients and their primary caregivers

Felder-Puig, R.; Gallo, Alain Di; Waldenmair, Marion; Gadner, Helmut; Topf, Reinhard

doi:10.1007/s00520-003-0541-x

Cited by 5 publications

(7 citation statements)

References 34 publications

(46 reference statements)

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“…The specificity of our results are increased because we included only hospitalized children in the group of mothers of children with cancer and only mothers of healthy children in the control group. [5,11]. In our study, the mothers who had children with cancer had significantly high STAI-T scores.…”

Section: There Was a Significant Disruption In The Quality Of Life Anmentioning

confidence: 77%

“…We believe that the state of satisfaction of patients, and their relatives, had with the treatment and with the team is important. In all treatment centers, professionals believe that informing patients about the illness, the treatment, and the provision of emotional support by health care professionals will positively affect the anticipated results of the treatment [5,6,11]. Additionally, as one study advised [20] …”

Section: Quality Of Life Of Mothers In Pediatric Oncology mentioning

confidence: 95%

“…A patient's relationship with his or her medical team, as well as the patient's contentment during the treatment period, plays an important role in the success of the treatment [11]. However, we do not possess the necessary data to address and assess this idea for every country.…”

Section: Quality Of Life Of Mothers In Pediatric Oncology mentioning

confidence: 98%

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The Quality of Life and Psychological Status of Mothers of Hospitalized Pediatric Oncology Patients

Eyigör

Karapolat

Yeşil

et al. 2011

Pediatric Hematology and Oncology

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This study compares the quality of life (QoL) and psychological status of mothers of children with cancer with those of mothers of children without cancer. One hundred hospitalized children and their mothers, as primary caregivers, were included in this study. Fifty mothers with healthy children were enrolled as the control group. A children and mother query form was used to obtain demographical data. The disease histories were extracted from patient records. QoL was measured with the Medical Outcomes Study 36-item Short Form Survey (SF-36) and the State-Trait Anxiety Inventory (STAI) in order to assess the psychological symptoms of the mothers in the study and in the control groups. The mean age of the caregivers was 35.93 ± 8.27 years, whereas the mean age of the mothers in the control group was 39.72 ± 6.88 years. The general health, vitality, social functioning, and mental health scores from the SF-36 and the STAI-trait scores were significantly poorer among the mothers of children with cancer as compared with the scores of the mothers of children without cancer (P < .05). Significant negative correlations were found between the age of the children, the age at diagnosis, and the SF-36 subscores for physical functioning, physical role, and pain (P < .05). The mothers of children with cancer, who require hospital care, have poorer QoL and psychological health than the mothers of healthy children. These results suggest that the current system for treating cancer in Turkish children should also include close monitoring of the care-giving mothers' QoL and psychological health.

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Section: There Was a Significant Disruption In The Quality Of Life Anmentioning

confidence: 77%

Section: Quality Of Life Of Mothers In Pediatric Oncology mentioning

confidence: 95%

See 1 more Smart Citation

The Quality of Life and Psychological Status of Mothers of Hospitalized Pediatric Oncology Patients

Eyigör

Karapolat

Yeşil

et al. 2011

Pediatric Hematology and Oncology

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“…Na literatura internacional sobre estratégias de enfrentamento adotadas por cuidadores em contexto onco-hematológico pediátrico, uma parte dos estudos focaliza a investigação de estratégias por meio do relato dos pais (Beltrão & cols., 2007;Goldbeck, 1998;Greening & Stoppelbein, 2007;Herman, 2007;Holm, Patterson & Gurney, 2003;James & cols., 2002;Munet-Vilaró, 1984;Norberg & cols., 2005;Patistea, 2005;Patistea, Makrodimitri & Pantelli, 2000;Rodrigues, Rosa, Moura & Baptista, 2000), enquanto outros trabalhos focalizam os processos psicológicos indicativos das estratégias de enfrentamento (Clarke-Steffen, 1997;Eiser, Havertnans & Elser, 1995;Elkin & cols., 2007;Enskär, Carlsson, Golsäter, Hamrin & Kreuger, 1997;Felder-Puig, Gallo, Waldenmair, Gadner & Topf, 2004;Hoekstra--Weebers, Jaspers, Kamps & Klip, 1998;Klassen & cols., 2007;Sloper, 2000;Steele, Long, Reddy, Luhr & Phipps, 2003;Tarr & Pickler, 1999;Trask & cols., 2003). Os principais resultados de ambos os tipos de estudo serão descritos a seguir.…”

Section: Enfrentamento: Caracterização E Mensuraçãounclassified

“…Além disso, estratégias de enfrentamento focalizadas no manejo de reações emocionais ao estressor também são referidas pela literatura internacional, incluindo uso de distração, resignação, isolamento social, autocontrole, assistir a filmes, praticar atividades físicas, utilizar medicação antidepressiva, adotar comportamentos de esquiva e fuga, uso de relaxamento, expressão de emoções e protesto, investimento em auto-estima, culpabilização de si e/ou de outros e uso de substâncias psicotrópicas (Clarke-Steffen, 1997;Felder-Puig, Gallo, Waldenmair, Gadner & Topf, 2004;Greening & Stoppelbein, 2007;Klassen & cols., 2007;Munet-Vilaró, 1984;Norberg & cols., 2005;Patistea, 2005;Rodrigues & cols., 2000;Tarr & Pickler, 1999).…”

Section: Enfrentamento: Caracterização E Mensuraçãounclassified

Enfrentamento entre cuidadores de pacientes pediátricos em tratamento de leucemia

Kohlsdorf

Costa

2009

Inter. Psicol.

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RESUMOO tratamento do câncer na infância tem acarretado repercussões adversas à família, ao condicionar alterações em práticas parentais e adaptações de rotina. Compreender como os cuidadores pediátricos enfrentam tais desafios constitui um requisito à proposição de intervenções psicossociais mais eficazes, reduzindo os custos comportamentais do tratamento. O objetivo do presente estudo foi investigar as estratégias de enfrentamento, adotadas por 30 cuidadores (média de idade 33,1 anos; DP = 9,4) de crianças e adolescentes, ao longo do semestre inicial de tratamento para leucemias, a partir do uso da Escala Modos de Enfrentamento de Problemas (EMEP) e de entrevista semi-estruturada. A partir do uso de testes estatísticos para associações entre dados demográficos e tipos de estratégias, bem como comparações entre as médias obtidas, os resultados indicam alterações importantes nas estratégias adotadas, tais como o aumento, ao longo do tempo, de estratégias baseadas no problema e diminuição do uso de estratégias focalizadas na regulação emocional. Além disso, foram encontradas associações entre dados sociodemográficos e estratégias de enfrentamento focalizadas na emoção e na busca por suporte social. Os relatos obtidos nas entrevistas mostram outros exemplos de estratégias de enfrentamento além dos itens abordados na EMEP e também as principais demandas e dificuldades associadas ao tratamento. A partir dos resultados, destaca-se que o conhecimento da vivência do cuidador constitui um indicador relevante dos cuidados a serem disponibilizados pelos profissionais de saúde. Palavras-chave: enfrentamento entre cuidadores; câncer; psicologia pediátrica. ABSTRACT Coping Among Pediatric Caregivers During Leukemia TreatmentPediatric cancer treatment causes adverse repercussions to the family, since it establishes changes in caregiving practices and routine adaptations. Understanding how pediatric caregivers cope with such challenges is a requirement to promote more efficient psychosocial interventions and reducing behavioral costs related to the treatment. The goal of this study was to investigate coping strategies adopted by 30 caregivers (mean age 33,1 years; SD = 9,4) of children and adolescents, during the first round of leukemia treatment, using an adapted version of a Ways of Coping Questionnaire (Escala Modos de Enfrentamento de Problemas -EMEP) and a semi-structured interview. Using statistical tests for associations between demographic data and types of strategies, as well as comparing the means obtained, the results show important changes in the adopted strategies, such as an increase over time in problem-focused strategies, and a decrease in emotion-focused strategies. Besides that, there were associations between socio-demographic data, emotion-focused coping strategies and the search for social support. The reports from interviews show other examples of coping strategies, besides items in the EMEP, and also the main demands and difficulties associated to this form of treatment. According to the results, it is h...

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The Role of Parents in Their Child’s Cancer Diagnosis, Treatment, Rehabilitation, and Socialization

et al. 2022

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The TCCS—A short measure to evaluate treatment-related coping and compliance in hospitalised childhood cancer patients and their primary caregivers

Abstract: Our system may be used for clinical trials and clinical monitoring. Further testing of psychometric properties is recommended.

Cited by 5 publications

References 34 publications

The Quality of Life and Psychological Status of Mothers of Hospitalized Pediatric Oncology Patients

The Quality of Life and Psychological Status of Mothers of Hospitalized Pediatric Oncology Patients

Enfrentamento entre cuidadores de pacientes pediátricos em tratamento de leucemia

The Role of Parents in Their Child’s Cancer Diagnosis, Treatment, Rehabilitation, and Socialization

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