The use, prevalence and potential benefits of a diary as a therapeutic intervention/tool to aid recovery following critical illness in intensive care: a literature review

Ewens, Beverley; Hendricks, Joyce; Sundin, Deborah

doi:10.1111/jocn.12736

Cited by 22 publications

(12 citation statements)

References 57 publications

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“…Variations in these tools have been studied in other settings. For example, researchers have shown the benefits of educational brochures and diaries for surrogates in the ICU (26,27). We included these elements because stakeholders identified them as potentially beneficial.…”

Section: Discussionmentioning

confidence: 99%

The Process and Impact of Stakeholder Engagement in Developing a Pediatric Intensive Care Unit Communication and Decision-Making Intervention

Michelson

Frader

Sorce

et al. 2016

Journal of Patient Experience

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Stakeholder-developed interventions are needed to support pediatric intensive care unit (PICU) communication and decision-making. Few publications delineate methods and outcomes of stakeholder engagement in research. We describe the process and impact of stakeholder engagement on developing a PICU communication and decision-making support intervention. We also describe the resultant intervention. Stakeholders included parents of PICU patients, healthcare team members (HTMs), and research experts. Through a year-long iterative process, we involved 96 stakeholders in 25 meetings and 26 focus groups or interviews. Stakeholders adapted an adult navigator model by identifying core intervention elements and then determining how to operationalize those core elements in pediatrics. The stakeholder input led to PICU-specific refinements, such as supporting transitions after PICU discharge and including ancillary tools. The resultant intervention includes navigator involvement with parents and HTMs and navigator-guided use of ancillary tools. Subsequent research will test the feasibility and efficacy of our intervention.

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Section: Discussionmentioning

confidence: 99%

The Process and Impact of Stakeholder Engagement in Developing a Pediatric Intensive Care Unit Communication and Decision-Making Intervention

Michelson

Frader

Sorce

et al. 2016

Journal of Patient Experience

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“…It is well known that patients experience the diary as providing useful information about what happened during the time in the ICU, although it is rather demanding to read initially (Roulin et al, ; Engstrom et al, ; Egerod and Bagger, ). The diary helped patients to understand how ill they had been and to set up realistic goals for recovery (Akerman et al, ; Ewens et al, ), as well as to provide insights into their family's experiences during their critically ill period (Robson, ; Ewens et al, 2014). With the help of the diary, patients might reconstruct the time in ICU and gain coherence between unreality and reality (Engstrom et al, ; Egerod and Bagger, ; Ewens et al, 2014).…”

Section: Introductionmentioning

confidence: 99%

Nursing staff's experiences of intensive care unit diaries: a qualitative study

Johansson

Wåhlin

Magnusson

et al. 2019

Nursing in Critical Care

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Background: Diaries as an intervention to aid psychological recovery among intensive care patients have been used for about 20 years, and findings tend to be positive. The provision of a diary directed at the patient may clarify the story of the intensive care unit (ICU) even for the family members and the family members of non-survivors. Members of nursing staff are the primary authors, but how they themselves experience the use of ICU diaries has been minimally explored. Aims and objectives: This study aimed to explore how nursing staff experienced the use of ICU patient diaries. Design: Qualitative design using focus group interviews. Methods: A qualitative methodology was used. Six focus group interviews were conducted with 27 nursing staff recruited from one university and two county hospitals. The data were analysed via thematic content analysis. Findings: One overarching theme, 'An effort to do good in words and actions', and four interconnected themes were derived from the analysis. By creating the diary, nursing staff had to deal with a variety of ethical and practical dilemmas, but feedback from patients, family members and ICU follow-up services reinforced the feeling of doing good. This overarching feeling of beneficence encouraged diary authoring and increased motivation and commitment to strive towards excellent patient care. To sustain the use of ICU diaries, collegiate and organizational support was deemed essential. Conclusions: Nursing staff strived to do good in words and actions for patients and their families when writing the diaries. Positive feedback from patients, family members and ICU follow-up services reinforced feelings of doing good, which served to enhance work satisfaction and a commitment to good-quality nursing care. Experiential-based education was recommended to help sustain ICU diary writing. Relevance to clinical practice: Nursing staff requested mentoring and group discussions concerning the format, content and communication channels of the diary.

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“…Intensive care unit diaries were initially introduced by ICU nurses as a means to help patients and relatives to understand and come to terms with the critical illness trajectory (Ewens, Hendricks, & Sundin, ). Diaries written by relatives for ICU patients may benefit relatives (Nielsen & Angel, ) whereas content and patients perceptions on such diaries remain unknown (Nielsen, Angel, Egerod, & Hansen, ).…”

Section: Introductionmentioning

confidence: 99%

Structure and content of diaries written by close relatives for intensive care unit patients: A narrative approach (DRIP study)

Nielsen

Angel

Hansen

et al. 2019

Journal of Advanced Nursing

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Aim To investigate structure and content of a nurse prompted diary written by relatives for intensive care unit (ICU) patients. Design A narrative analysis of ICU diaries. Methods From September 2015‐August 2016, 12 diaries authored by 12 relatives for 12 ICU patients were sampled at 3–4 months post‐ICU discharge. We used Ricoeur's hermeneutical phenomenology as a framework for a narrative analysis of the diaries. The first step was naïve reading, followed by structural analysis exploring the internal relations of the text. The structural analysis was broadened by exploring narrative structures. The last step was critical interpretation of the findings. Findings The diaries had a clear narrative structure; the diary‐timeline consisted of: Pre‐ICU phase, Early ICU phase, Culmination, Recovery and Post‐ICU reflection. Three themes described the content of the diary: Struggling to get the story right for the patient; striving to understand what was happening and longing to re‐establish a connection with the patient. Keeping a diary was perceived by the relatives as a challenging but rewarding task. Conclusion The diary had the potential for reflection and a deeper understanding of the ICU stay. The diary served as a locus for patient and relatives to connect or re‐connect, but some diaries might be too personal and emotional to share with the patient. Future research needs to explore advantages and disadvantages of ICU diaries authored by relatives.

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The use, prevalence and potential benefits of a diary as a therapeutic intervention/tool to aid recovery following critical illness in intensive care: a literature review

Abstract: Intensive care diaries are a cost effective intervention which may yield significant benefits to survivors.

Cited by 22 publications

References 57 publications

The Process and Impact of Stakeholder Engagement in Developing a Pediatric Intensive Care Unit Communication and Decision-Making Intervention

The Process and Impact of Stakeholder Engagement in Developing a Pediatric Intensive Care Unit Communication and Decision-Making Intervention

Nursing staff's experiences of intensive care unit diaries: a qualitative study

Structure and content of diaries written by close relatives for intensive care unit patients: A narrative approach (DRIP study)

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