‘They're not witches. …’ Young children and their parents' perceptions and experiences of <scp>C</scp>hild and <scp>A</scp>dolescent <scp>M</scp>ental <scp>H</scp>ealth <scp>S</scp>ervices

Bone, Claire; O’Reilly, Michelle; Karim, Khalid; Vostanis, Panos

doi:10.1111/cch.12161

Cited by 34 publications

(41 citation statements)

References 29 publications

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“…Young people in mental health services were concerned that PROMs might be used to narrow access to care; e.g., ‘If I tick ‘much worse’ then I don’t know if [that means] “I don’t need this service”, I don’t know, I’m very confused,’ (Young Person 4, 14, CAMHS). What is safe to reveal with PROMs may reflect a general fear of the unknown that children and their parents report when first attending CAMHS (Bone et al 2014 ).…”

Section: Resultsmentioning

confidence: 99%

A Qualitative Exploration of Patient and Clinician Views on Patient Reported Outcome Measures in Child Mental Health and Diabetes Services

Wolpert

Curtis-Tyler

Edbrooke‐Childs

2014

Adm Policy Ment Health

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Patient Reported Outcome Measures (PROMs) are increasingly being recommended for use in both mental and physical health services. The present study is a qualitative exploration of the views of young people, mothers, and clinicians on PROMs. Semi-structured interviews were conducted with a sample of n = 10 participants (6 young people, 4 clinicians) from mental health services and n = 14 participants (4 young people, 7 mothers, 3 clinicians) from a diabetes service. For different reasons, young people, mothers, and clinicians saw feedback from PROMs as having the potential to alter the scope of clinical discussions.

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Section: Resultsmentioning

confidence: 99%

A Qualitative Exploration of Patient and Clinician Views on Patient Reported Outcome Measures in Child Mental Health and Diabetes Services

Wolpert

Curtis-Tyler

Edbrooke‐Childs

2014

Adm Policy Ment Health

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“…Active participation from young people, indeed from children, is paramount in influencing decisions on their care (United Nations, 2014). Several studies have shown that, when engaged and involved in a developmentally appropriate and sensitive way, even young children can formulate recommendations based on their experiences of psychosocial interventions and services (Bone et al, 2015). In this study, young people responded positively to the participatory research method of participants negotiating their answers in small groups rather than having individual interviews.…”

Section: Resultsmentioning

confidence: 82%

Youth Conceptualization of Resilience Strategies in Four Low- and Middle-Income Countries

Vostanis

Haffejee

Yazıcı

et al. 2020

IJCYFS

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The concept of resilience is increasingly influential in the development of interventions and services for young people, yet there is limited knowledge of how resilience-building strategies are conceptualized by young people across different cultures, particularly in low- and middle-income countries. The aim of this study was to capture 274 young people’s voices in disadvantaged communities in Kenya, Turkey, Pakistan, and Brazil through participatory research methods. Young people defined strategies in response to 4 adversity scenarios reflecting socioecological systems (young person, family, school, and community). Template analysis, underpinned by thematic design, was used to establish three broad themes of intrapersonal (self-management, cognitive re-appraisal, agency), interpersonal (social engagement, informal supports, formal supports), and religious resources. Proposed strategies were largely similar across the sites, with some contextual differences depending on the scenario (stressor) and cultural group. The findings support an ecological systems approach to resilience, which is consistent with the development of multimodal interventions for vulnerable youth and their families in disadvantaged communities in low- and middle-income countries.

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“…These scales have been suitable for children as young as 4 years old [34,35]. Additionally, emotion cards have been used in the hospital context to investigate experiences of children [36]. Since the digital survey tool was designed to be understandable to children as young as 4 years of age, we used emojis for informative and unambiguous visuals (see Table 1).…”

Section: The Digital Survey Toolmentioning

confidence: 99%

“…The design of the contents for the digital survey tool utilised earlier research on subjects like children's pain, anxiety measurements and emotions [26,29,34,36,[42][43][44][45]. Many of the previous studies used observer-based anxiety scales [18,25,26], such as the Modified Yale Preoperative Anxiety Scale (mYPAS), but some used subjective reporting, such as the Faces Pain Scale and Visual Analogical Scales (VAS) [29].…”

Section: Digital Survey Tool For Measuring Px and Its Evaluationmentioning

confidence: 99%

Measuring patient experiences in a Children’s hospital with a medical clowning intervention: a case-control study

Karisalmi

Mäenpää

Kaipio

et al. 2020

BMC Health Serv Res

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Background: Because the healthcare sector is shifting to a customer-oriented approach, it is important to understand experiences of children as users of healthcare services. So far, studies that measure the influence of medical clowning on patient experiences are scarce. This study aims to measure experiences of children and their parents during day-surgery in hospital setting. Methods: A case-control study was conducted in a large Finnish children's hospital. Seventy children aged 4-17 years coming for a minor operative procedure including pre-operative cannula insertion prior to surgery were included. Thirty-eight children were exposed to the medical clowning intervention and 32 children (the reference group) did not receive exposure to medical clowning. A novel digital survey tool was used to measure patient experiences before and after the insertion of a venous cannula needed for anaesthesia. The children were asked about their emotions, anxiety levels, the pain from the cannula insertion and the best and worst things about the hospital. The parents were asked about their emotions, expectations and the fluency of the procedure and the hospital day. Results: Before the procedure, 32% or 36% of the children in the intervention group and 44% or 28% of those in the reference group expressed positive or neutral emotions, respectively. After the procedure, 76% or 63% of children in the intervention group or reference group, respectively, expressed positive emotions. The intervention group rated the medical clowns as the best aspect of the hospital day. Both groups reported that the best aspects of the hospital day were related to the nurses and food and the worst were related to waiting and pain. Most commonly the parents felt uncertainty, anxiety or calmness before the procedure and relief afterwards. Their expectations towards the procedure related to its success and the certainty of the diagnosis. Conclusions: The results show a trend towards more positive emotions in children with exposure to medical clowning. The digital survey tool was suitable for gathering information about the experiences of children and their parents. Information on emotions and expectations of children and parents during a procedure is useful when improving the quality of healthcare services.

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‘They're not witches. …’ Young children and their parents' perceptions and experiences of Child and Adolescent Mental Health Services

Abstract: Children were able to provide potentially useful opinions of CAMHS. In a time of limited resources it is imperative that the voices of children and their parents are acknowledged in order to improve accessibility and experiences within CAMHS.

Cited by 34 publications

References 29 publications

A Qualitative Exploration of Patient and Clinician Views on Patient Reported Outcome Measures in Child Mental Health and Diabetes Services

A Qualitative Exploration of Patient and Clinician Views on Patient Reported Outcome Measures in Child Mental Health and Diabetes Services

Youth Conceptualization of Resilience Strategies in Four Low- and Middle-Income Countries

Measuring patient experiences in a Children’s hospital with a medical clowning intervention: a case-control study

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