Three Sides to Every Story: Preparing Patient and Family Storytellers, Facilitators, and Audiences

Hawthornthwaite, Lisa; Roebotham, Taylor; Lee, Lauren; O'dowda, Mim; Lingard, Lorelei

doi:10.7812/tpp/17-119

Cited by 14 publications

(9 citation statements)

References 19 publications

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“…After duplicates were removed, the titles and abstracts of 5,275 records were screened using the inclusion criteria, and 1,002 full-text articles of potential relevance were retrieved. Of these, 838 articles were excluded and 164 were retained, including 108 peer-reviewed publications, 41–148 describing 103 education interventions (Table 1 and Supplemental Digital Appendix 3 at http://links.lww.com/ACADMED/B91), and 56 abstracts reported as conference proceedings (see Supplemental Digital Appendix 4 at http://links.lww.com/ACADMED/B91). This systematic review focused on the education interventions described in the 108 peer-reviewed publications.…”

Section: Resultsmentioning

confidence: 99%

“…This systematic review focused on the education interventions described in the 108 peer-reviewed publications. 41–148 The abstracts reported as conference proceedings were included only to ensure the review provided a comprehensive representation of the current state of compassion education interventions in health care, but these were not critically appraised due to their preliminary and abridged nature.…”

Section: Resultsmentioning

confidence: 99%

“…Several studies reported on the use of humanities-based reflective practices, including storytelling, [84][85][86][87][88][89][90] reflective writing, [91][92][93][94][95][96][97][98] family sculpting, 99 watching movies that conveyed shared humanity, 100 visual analysis of humanistic images, 101,102 listening to music, 103 and multidisciplinary forums in which participants reflected on clinical experiences related to compassion, [104][105][106] as methods to facilitate learning about compassion. These approaches require learners to critically analyze their knowledge and experience to achieve deeper meaning and understanding, which in turn can guide future behavior.…”

Section: Humanities-based Reflective Practicesmentioning

confidence: 99%

See 2 more Smart Citations

What Is the State of Compassion Education? A Systematic Review of Compassion Training in Health Care

Sinclair¹,

Kondejewski²,

Jaggi³

et al. 2021

Academic Medicine

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Humanities-based Reflective Practicesmentioning

confidence: 99%

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What Is the State of Compassion Education? A Systematic Review of Compassion Training in Health Care

Sinclair¹,

Kondejewski²,

Jaggi³

et al. 2021

Academic Medicine

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“…Storytelling was deemed an effective strategy to help research teams and others better understand the patient experience. 17,18 Critically, stories shared to date focused on select moments of care and included a call to action with the aim of improving outcomes for patients. TMC patient partners also voiced an interest in hearing researchers’ stories, noting that the sharing of stories by patients and researchers alike could create a sense of reciprocity and help build trust.…”

Section: The Can-solve Ckd Learning Branchesmentioning

confidence: 99%

Program Report: Can-SOLVE CKD Network Presents an Inclusive Method for Developing Patient-Oriented Research Tools

Getchell¹,

Fowler

Reich³

et al. 2022

Can J Kidney Health Dis

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Purpose of program: Given the growing interest in patient-oriented research (POR) initiatives, there is a need to provide relevant training and education on how to engage with patients as partners on research teams. Sources of information: As part of its mandate to develop appropriate training materials, the patient-oriented renal research network, Canadians Seeking Solutions and Innovations to Overcome Chronic Kidney Disease (Can-SOLVE CKD), established a training and Mentorship Committee (TMC). Methods: The committee brings together a unique combination of Indigenous and non-Indigenous patient partners (including caregivers, family members, and living donors), researchers, as well as patient engagement and knowledge translation experts, combining a multitude of perspectives and expertise. Following an assessment of training needs within the network, the TMC undertook the co-development of 5 learning modules to address the identified gaps. Subsequently, the committee divided into working groups tasked with developing content using a consultive and iterative approach informed by the DoTTI framework for building web-based tools for patients. In addition, the TMC embodied the guiding principles of inclusiveness, support, mutual respect, and co-building as set out by the Patient Engagement Framework through the Strategy for Patient-Oriented Research (SPOR) of the Canadian Institutes of Health Research. Key findings: The 5 new modules include: A Patient Engagement Toolkit, Storytelling for Impact, Promoting Kidney Research in Canada (KidneyPRO), Wabishki Bizhiko Skaanj Learning Pathway, and Knowledge Translation. The TMC’s approach to developing these modules demonstrates how a diverse group of stakeholders working together can create tools to support high-quality POR. This also provides a roadmap for other health research entities interested in developing similar tools within their unique domains. Limitations: The landscape of patient engagement in research is constantly evolving. This underscores the need for sustained resources to keep POR tools and training relevant and up-to-date. Sustaining such resources may not be feasible for all research entities. Implications: Collaborative approaches integrating patients in the development of POR tools ensure the content is relevant and meaningful to patients. Broader adoption of such approaches has great potential to address existing gaps and enhance the Canadian POR landscape.

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“…For many, personal messages and practical experiences prevail over professional insights when it comes to their health. Personal stories are much easier to relate to, just as they better aid future recall of the core matter, or induce prosocial or health behaviour [2], even if the story happens to be fictional [3]. One might be susceptible to cognitive biases due to common sources of error, also labelled as heuristics [4], such as "anchoring"; that is, we tend to rely too much on initial observations, or deeply held sentiments during decision making.…”

Section: Introductionmentioning

confidence: 99%

Seeing is believing? The pivotal role of personal experience in contemporary health behaviour: A narrative review

Kapitány-Fövény

2022

DHS

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In the age of people aspiring after sense experiences, encouraging long-term health behaviour changes to prevent future disorders that are, without previous personal experiences, unimaginable threats for the public, maybe one of the greatest challenges preventive medicine has to face. In order to become trusted sources, and influence public health behaviour in an experience-oriented manner, we need to formulate strategies offering emotionally evocative sense inputs that elicit self-relatedness. The current narrative review discusses the relevance of personal experiences in contemporary health behaviour by focusing on three major areas: 1) the importance of personal sources of health-related information, 2) cognitive and neurobiological background of personal experiences, 3) potential strategies to induce health behaviour changes through personal experiences. Based on the reviewed body of knowledge, three potential “rules” are proposed to increase the effectiveness of health promotion programs through sense or personal experiences: 1) Rule of Senses (stressing the importance of multisensory learning); 2) Rule of Affect (emphasizing the motivational significance of evoking positive emotions); and 3) Rule of Self-relatedness (highlighting the role of the self-referential composition of human experiences).

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Three Sides to Every Story: Preparing Patient and Family Storytellers, Facilitators, and Audiences

Cited by 14 publications

References 19 publications

What Is the State of Compassion Education? A Systematic Review of Compassion Training in Health Care

What Is the State of Compassion Education? A Systematic Review of Compassion Training in Health Care

Program Report: Can-SOLVE CKD Network Presents an Inclusive Method for Developing Patient-Oriented Research Tools

Seeing is believing? The pivotal role of personal experience in contemporary health behaviour: A narrative review

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