Towards a framework for community engagement in global health research

Lavery, James V.; Tinadana, Paulina O.; Scott, Thomas W.; Harrington, Laura C.; Ramsey, Janine M.; Ytuarte-Nuñez, Claudia; James, Anthony A.

doi:10.1016/j.pt.2010.02.009

Cited by 233 publications

(221 citation statements)

References 18 publications

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“…Underpinned by the principles outlined by community engagement experts [16,19], the initial design of community engagement was based on a review of past research [11], the experience of team members at other TME sites and the findings of formative research. During the study, the community engagement strategy was altered according to the needs of the community and their responses to the various study components.…”

Section: Resultsmentioning

confidence: 99%

“…As outlined in Box 1, the elements of community engagement that underpinned the success of TME in Laos contrast somewhat with the principles that Lavery and colleagues derived from a dengue control project in Mexico [16]. The experience of successfully implementing TME in Laos highlighted the importance of the sequence of the steps in community engagement.…”

Section: Discussionmentioning

confidence: 99%

“…Initially, published frameworks for community engagement were used to guide data analysis [16,19]. As analysis progressed it became clear that the frameworks required substantial modification to incorporate the emerging elements of the community engagement.…”

Section: Methodsmentioning

confidence: 99%

“…The divergent definitions and goals of community engagement complicate the evaluation and comparison of community engagement across studies [14]. Efforts have been made to identify common elements in ‘successful’ community engagement, with some scholars providing general principles for broad health-related research [15] and others building on experience from specific research on vector-borne diseases [16]. …”

Section: Introductionmentioning

confidence: 99%

“…Established frameworks [16,19] were used to guide community engagement with the primary aim of promoting uptake of MDA to maximize the probability of interrupting local malaria transmission (which was the overall aim of TME). In target communities, the coverage of TME was very high (above 85%) and, in this article, elements of effective community engagement are identified from the experience of implementing TME in Laos.…”

Section: Introductionmentioning

confidence: 99%

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Elements of effective community engagement: lessons from a targeted malaria elimination study in Lao PDR (Laos)

Adhikari

Pell

Phommasone

et al. 2017

Global Health Action

107

186

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Background: Mass drug (antimalarial) administration (MDA) is currently under study in Southeast Asia as part of a package of interventions referred to as targeted malaria elimination (TME). This intervention relies on effective community engagement that promotes uptake and adherence in target communities (above 80%). Objective: Based on the experienced of designing and implementing the community engagement for TME in Laos, in this article we aim to present the elements of effective community engagement for mass antimalarial administration. Methods: The design and implementation of community engagement, which took place from September 2015 to August 2016 was recorded as field notes, meeting minutes and photographs. These data underwent qualitative content analysis. Results: The community engagement strategy that accompanied TME in Laos was successful in terms of contributing to high levels of participation in mass anti-malarial administration (above 85%). Based on the experience of designing and implementing the community engagement, five key elements were identified: (1) stakeholder and authority engagement, which proceeded from national level, to regional/district and local level; (2) local human resources, particularly the recruitment of local volunteers who were integral to the design and implementation of activities in the study villages; (3) formative research, to rapidly gain insight into the local social and economic context; (4) responsiveness whereby the approach was adapted according to the needs of the community and their responses to the various study components; and (5) sharing control/leadership with the community in terms of decisions on the organization of TME activities. Conclusions: The community engagement that accompanied TME in Laos had to deal with challenges of implementing a complex study in remote and linguistically isolated villages. Despite these challenges, the study recorded high population coverage. Lessons learnt from this experience are useful for studies and intervention programs in diverse contexts.

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Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Elements of effective community engagement: lessons from a targeted malaria elimination study in Lao PDR (Laos)

Adhikari

Pell

Phommasone

et al. 2017

Global Health Action

107

186

View full text Add to dashboard Cite

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Beyond Consent: Respect for Community in Genetic Research

Jones

Bush

Macaulay

2014

Encyclopedia of Life Sciences

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Paralleling the broadening of scientific thought occasioned by the human genome project, calls have been sounded to expand research ethics to include a principle of ‘respect for community’ in genetic research. The principle is responsive to a history of genetic research that has harmed some groups. The principle recognises that communities hold dignitary interests, values and rights. For such reasons, it has gained recognition in national and international health research ethics norms. To help translate respect for community into research practice, we identify selected ethics elements and research approaches, including: collaborative community research; jointly defining research priorities and questions; informed consent; joint interpretation and dissemination of results; community ethics deliberations and fair benefit sharing. Implementing such elements presents challenges that merit interdisciplinary study, pluralistic debate and analysis. With such work, we project a future with fuller recognition of respect for community as an ethical principle and duty in human research ethics. Key Concepts: Evolving research ethics requires protection of communities, in addition to protection of individuals – this also applies to genetic research. Protection of communities supports the ethical concept of respect for communities. National and international research ethics guidelines support these concepts. Respect for communities can be achieved through researchers using collaborative research with communities. Collaborative research uses principles and practice from both participatory research and community‐engaged research. Collaborative research maximises benefits and minimises harms for communities and groups within the communities. Collaborative research impacts researchers, communities, institutional and community ethics boards and those publishing the results.

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