Transition Care Program of Adolescents With Inflammatory Bowel Disease: Perceptions From A Survey for Patients

Blázquez, María López; Hernani, Mar Tolín; Calatayud, Guillermo Álvarez; González-Pinto, Lucía Carrascón; Menchén, Luís; Marín-Jiménez, Ignacio; García, Belén González; Calleja, A. López; Sánchez, César Sánchez

doi:10.1093/ibd/izy210

Cited by 7 publications

(2 citation statements)

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“…This finding may be because some countries do not have separate paediatric and adult specialists (allergists, dermatologists and respiratory physicians) and care is mostly led by general practitioners or specialists who treat patients of all ages. In contrast, AYA with inflammatory bowel disease rated joint consultation with both HCP as one of the most valuable features of the transition care program 19 . Other methods of communication between HCP and AYA such as web‐based, mobile technologies were also considered less important.…”

Section: Discussionmentioning

confidence: 98%

“…In contrast, AYA with inflammatory bowel disease rated joint consultation with both HCP as one of the most valuable features of the transition care program. 19 Other methods of communication between HCP and AYA such as web-based, mobile technologies were also considered less important. Research indicates that AYA generally prefer using web-based methods of communications 20 and are less interested in using social media sites for communication with HCP due to privacy concerns.…”

Section: Ta B L E 2 (Continued)mentioning

confidence: 99%

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Perceptions of adolescents and young adults with allergy and/or asthma and their parents on EAACI guideline recommendations about transitional care: A European survey

Khaleva

Knibb

Galvin

et al. 2021

Allergy

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Background The European Academy of Allergy and Clinical Immunology has developed a guideline to provide evidence‐based recommendations for healthcare professionals to support the transitional care of adolescents and young adults (AYA) with allergy and/or asthma. The goal of this work was to ensure that the draft recommendations are also important for patients. Methods We surveyed patients aged 11–25 years with allergy and/or asthma and their parents across Europe between 17 February and 16 March 2020. The multilingual survey was distributed through national allergy and asthma patient organizations in Europe as well as through social media. Results A total of 1210 responses from 24 European countries were collected. There were 415 (34.3%) AYA and 795 (65.7%) parents. The majority of AYA (72.3%) and parents (81.9%) were female. Patients had a history of asthma (61.1%), allergic rhinoconjunctivitis (54.1%), food allergy (53.8%), atopic eczema (42.6%) and anaphylaxis (28.8%). All recommendations achieved the median score of either ‘important’ or ‘very important’. The least supported recommendations were the use of joint clinics with both paediatric and adult physicians attending and the use of web‐based or mobile technologies for communication with the AYA. The most supported recommendation was checking that the AYA is knowledgeable and compliant with their prescribed medication. Qualitative analysis revealed conditional approval for some recommendations. Conclusions There was agreement from patients and parents on the importance of the draft recommendations on transitional care for AYA with allergy and/or asthma and their parents. The recommendations now need to be implemented into clinical practice across Europe.

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Section: Discussionmentioning

confidence: 98%

Section: Ta B L E 2 (Continued)mentioning

confidence: 99%