Transition of care from paediatric to adult services in cardiology

Hudsmith, Lucy; Thorne, Sara

doi:10.1136/adc.2006.103812

Cited by 58 publications

(49 citation statements)

References 19 publications

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“…CHD mortality continues to decline, and people with CHD are living longer, making managing care into adulthood increasingly important. 45,46 In addition to the management of the cardiac sequelae of CHD (eg, hypertension, cardiac arrhythmias, and endocarditis), effective care of adults with CHD is likely to require attention to the diagnosis and management of noncardiac organ dysfunction such as renal impairment 47 and abnormal glucose metabolism, 47,48 as well as counseling on issues such as contraception and pregnancy, potential genetic transmission of CHD, dental care, diet, optimal weight, exercise, and physical activity. 46 * Mortality rate ratios for "all ages" are based on age-standardized mortality rates.…”

Section: Gilboa Et Almentioning

confidence: 99%

Mortality Resulting From Congenital Heart Disease Among Children and Adults in the United States, 1999 to 2006

et al. 2010

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Background-Previous reports suggest that mortality resulting from congenital heart disease (CHD) among infants and young children has been decreasing. There is little population-based information on CHD mortality trends and patterns among older children and adults. Methods and Results-We used data from death certificates filed in the United States from 1999 to 2006 to calculate annual CHD mortality by age at death, race-ethnicity, and sex. To calculate mortality rates for individuals Ն1 year of age, population counts from the US Census were used in the denominator; for infant mortality, live birth counts were used. From 1999 to 2006, there were 41 494 CHD-related deaths and 27 960 deaths resulting from CHD (agestandardized mortality rates, 1.78 and 1.20 per 100 000, respectively). During this period, mortality resulting from CHD declined 24.1% overall. Mortality resulting from CHD significantly declined among all race-ethnicities studied. However, disparities persisted; overall and among infants, mortality resulting from CHD was consistently higher among non-Hispanic blacks compared with non-Hispanic whites. Infant mortality accounted for 48.1% of all mortality resulting from CHD; among those who survived the first year of life, 76.1% of deaths occurred during adulthood (Ն18 years of age). Conclusions-CHD mortality continued to decline among both children and adults; however, differences between race-ethnicities persisted. A large proportion of CHD-related mortality occurred during infancy, although significant CHD mortality occurred during adulthood, indicating the need for adult CHD specialty management. (Circulation.

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Section: Gilboa Et Almentioning

confidence: 99%

Mortality Resulting From Congenital Heart Disease Among Children and Adults in the United States, 1999 to 2006

et al. 2010

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“…The authors suggested that transition clinics should start at the age of 12 years [12] . McDonagh and Kelly summarized determinants of the timing of transition as follows [13] : (1) Chronologic age; (2) Maturity; (3) Current medical status; (4) Adherence to therapy; (5) Independence in health care; (6) Self-advocacy skills; (7) Preparation; (8) Readiness of the young person and (9) Availability of an appropriate adult specialist.…”

Section: Lessons From Other Subspecialtiesmentioning

confidence: 99%

Transition of children with inflammatory bowel disease: Big task, little evidence

El‐Matary¹

2009

WJG

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Children with chronic long-term disorders need to move to the adult practice at some point in their life. Establishing a smooth and efficient transition process is a complicated task. Transition of medical care to adult practice is defined as the purposeful planned movement of adolescents and young adults with chronic physical and medical conditions from child-centered to adultoriented health care systems. This step is of the utmost importance for several reasons. There is an obvious deficiency of research in this area especially when it comes to pediatric inflammatory bowel disease (IBD). There is a considerable difference in individual practice among different centers. Also, age of transition varies among different countries and sometimes, even within the same country, transition age may vary among different provinces and districts! Interestingly, local politics and many factors other than children's welfare often play a role in deciding the age that older children move to adult practice at. This review discusses transition of children with IBD in view of the available evidence.

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“…7,17,74 The record should include stratification of risk and complexity, as well as identification of specific issues that place the patient at increased risk. This information should also be available to the parents and the adolescent patient.…”

Section: Role Of the Chd Expert In Medical Follow-upmentioning

confidence: 99%

Best Practices in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: The Transition Process and Medical and Psychosocial Issues

Sable¹,

Foster²,

Uzark³

et al. 2011

Circulation

394

280

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Transition of care from paediatric to adult services in cardiology

Cited by 58 publications

References 19 publications

Mortality Resulting From Congenital Heart Disease Among Children and Adults in the United States, 1999 to 2006

Mortality Resulting From Congenital Heart Disease Among Children and Adults in the United States, 1999 to 2006

Transition of children with inflammatory bowel disease: Big task, little evidence

Best Practices in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: The Transition Process and Medical and Psychosocial Issues

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