Transition of Children with Neurological Disorders

Abstract

The literature has expanded rapidly. The recent publications help define the barriers to the process and are currently exploring the best methods to evaluate readiness, needs, barriers, and develop solutions for best practices. There is a consensus that there is a need for a systematic approach to transition and integration of the patient with a neurological disorder. The transition of the child and youth with special health care needs (CYSHCN) is complex with multiple barriers. An important concept is that these patients, their families, and medical care providers all benefit from a coordinated and collaborative methodology.

The transition from children’s services to adult services for young people with attention deficit hyperactivity disorder: the CATCh-uS mixed-methods study

“…Certain barriers were universal, including difficulties with changing relationships, difficulties accessing or funding adult services, negative beliefs about adult care, lack of knowledge about the transition process and lack of self-management skills. 44 Several studies [45][46][47] on transition for both physical and mental health conditions have found that young people, families and clinicians experience transition and the provision of support by health services differently. This underlines the importance of consulting with patients, their families and providers, to better understand key aspects of transition.…”

Interdisziplinäre Herausforderungen in der Neuromedizin

“…Moderne Neuromedizin und Neurowissenschaft ist nur im Kontext einer intensiven interdisziplinären Zusammenarbeit denkbar. Die Notwendigkeit einer strukturierten Interaktion zwischen den benachbarten Fächern zeigt sich an der aktuellen Diskussion zu den Themen Translation [7] und Transition [6] sowie an der Förderung interdisziplinärer klinischer und wissenschaftlicher Zentrumsund Netzwerkstrukturen auf nationaler und europäischer Ebene [1]. Bei…”

Contextualized Autonomy in Transitional Care for Youth With Neurologic Conditions: The Role of the Pediatric Neurologist

“…Advances in neuroscience as well as in medical and surgical care have led to the increased likelihood that youth with childhood-onset neurologic conditions survive and thrive into adulthood. 1 Youth like Liz, who are survivors 2 of complex medical conditions, live with an array of associated and sometimes overlapping neurologic diagnoses and neurodisabilities that will require long-term follow-up and support across different spheres of development and activities of daily living. 3 Simultaneously, youth like Liz will also have hopes and aspirations for their future lives, alongside changes and challenges associated with their health condition.…”

“…6 Pediatric neurologists, over the course of their encounters with children and families, including during transition planning have to address the various biological, medical, developmental, and social transitions of these youth, thereby being exposed to the multiple experiences and needs that touch the lives of their young patients and their families over time. 1,7 Pediatric to adult health care transitions in the context of neurology are multifaceted and complex. They involve the collaboration and involvement of many actors and institutions, with different professionals assuming leadership for the smooth trajectory.…”

“…They involve the collaboration and involvement of many actors and institutions, with different professionals assuming leadership for the smooth trajectory. Within pediatric health care transitional care services more generally, and within transition care services in pediatric neurology more specifically, multiple situations may evoke ethically problematic situations occurring in parallel with developmental, legal, and social changes, influencing the roles and responsibilities of youth, 8,9 their caregivers, 1 as well as pediatric neurologists. 10 As a result, smooth and uninterrupted transitional care requires "interdisciplinary collaboration .…”