Translation and preliminary validation of the english version of the DUX questionnaire for lower extremity bone tumor patients (Bt‐DUX): A disease‐specific measure for quality of life

Bekkering, W. Peter; Billing, Laura; Grimer, R. J.; Vlieland, Thea Vliet; Koopman, Hendrik M.; Nelissen, Rob G H H; Taminiau, A. H. M.

doi:10.1002/jso.23218

Cited by 6 publications

(4 citation statements)

References 24 publications

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“…The Italian version of the Bt-DUX to assess QoL and functional ability showed internal consistency, construct validity, and a good discrimination with results comparable to the original ones in the Dutch [ 12 ] and English [ 13 ] versions. Using this scale in clinical practice was simple.…”

Section: Discussionmentioning

confidence: 67%

“…The Bt-DUX scores reflect patients’ personal impact: their individual values for cosmetic, social, emotional, and functional aspects of their life after surgery. The Dutch and English versions of the Bt-DUX [ 13 ] were found to be practically applicable with good internal consistency and validity and appeared to have added value regarding existing measures of quality of life in patients undergoing surgery for malignant bone tumours of the lower extremity in several studies [ 14 , 15 , 16 ]. To examine the validity of the Bt-DUX within bigger and/or international studies, it is important to translate it into other languages and validate it in other cultures/populations.…”

Section: Introductionmentioning

confidence: 99%

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Cross-Cultural Validation of the Italian Version of the Bt-DUX: A Subjective Measure of Health-Related Quality of Life in Patients Who Underwent Surgery for Lower Extremity Malignant Bone Tumour

Morri

Bekkering

Cotti

et al. 2020

Cancers

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The purpose of this study was to translate the English bone tumour DUX (Bt-DUX-Eng) questionnaire for lower extremity bone tumour patients, a disease-specific quality of life (QoL) instrument, into Italian and then examine the validity of the Italian version of Bt-DUX (Bt-DUX-It). The adaptation and translation process included forward translation, back-translation, and a review of the back-translation by an expert committee. The Bt-DUX-It was validated in a sample of adolescents treated for lower extremity osteosarcoma in Italy. Assessments included the Bt-DUX, the Toronto Extremity Salvage Score (TESS), and the European Organization for Research and Treatment Core Quality of Life Questionnaire of Cancer Patients (EORTC QLQ-C30). Fifty-one patients with a median age of 20 years (range: 15–25) completed the questionnaires. The mean Bt-DUX score was 70 (range: 16.30–100). The internal consistency of the overall score and that of the Bt-DUX-It was good: Cronbach’s α was 0.95. Spearman’s correlation coefficient between the Bt-DUX (total and domain scores) and EORTC QLQ C30 and TESS were overall moderate to good, reaching a p-value <0.01 in all cases. The Bt-DUX-It version is a useful tool for measuring QoL in patients with bone tumour and has similar internal consistency, construct validity, and discrimination as those of the Dutch and English versions.

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Section: Discussionmentioning

confidence: 67%

Section: Introductionmentioning

confidence: 99%

Cross-Cultural Validation of the Italian Version of the Bt-DUX: A Subjective Measure of Health-Related Quality of Life in Patients Who Underwent Surgery for Lower Extremity Malignant Bone Tumour

Morri

Bekkering

Cotti

et al. 2020

Cancers

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“…The Bone tumour (Bt)-DUX is a disease specific questionnaire for QoL assessment in patients after malignant bone cancer surgery of the leg (Bekkering et al, 2009;Bekkering et al 2013) comprising 20 items within four domains (social, emotional, cosmetically and physical). The scoring of the items is done by abstract faces with varying expressions, ranging from very happy (score 1) to sad (score 5).…”

Section: Quality Of Lifementioning

confidence: 99%

Quality of life after bone sarcoma surgery around the knee: A long-term follow-up study

et al. 2016

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It remains unclear if quality of life (QoL) improvements could be expected in young patients after malignant bone tumour surgery after 2 years. To assess the course of QoL over time during a long-term follow-up, malignant bone tumour survivors of a previous short-term study were included. Assessments were done at least 5 years patients; 20 patients were included for this study, 10 males; mean age at surgery 15.1 years and mean follow-up 7.2 years. Twenty-one patients of the initial cohort (47%) deceased. Fifteen patients (75%) underwent limb-salvage and five (25%) ablative surgery. QoL improved significantly during follow-up at Physical Component Summary Scale scale of the SF-36 and TAAQOL and all subscales of the Bt-DUX (p < .01). No significant differences were found between current evaluations and previous evaluations at 2 years after surgery (p = .41-.98). Significant advantages after limb-salvage were seen at the PCS scale of the SF-36 (MD 13.7, p = .05) and the cosmetic scale of the Bt-DUX (MD 17.7, p = .04). K E Y W O R D Sadolescents, children, leg, malignant bone tumour, prospective, quality of life Wang, & Bi, 2012; Hinds et al., 2009;Koopman et al., 2005;Liu et al., 2014). Therefore, we evaluated a few years ago QoL levels at six time points of a cohort of children and adolescents under the age of 25 after malignant bone tumour surgery of the lower limb. In this previous study, improvements of QoL levels were reported from surgery up to 24 months thereafter and were most pronounced and significant over the first year after the surgery. Over the second year improvements became smaller and the differences between QoL scores at 1 and 2 years after surgery were mostly non-significant . However, QoL scores still differed from scores of healthy peers and it remains unclear if further improvements could be expected after this period. Therefore, the aim of this study was to assess the course of QoL over time between 2 and 5 years or more after surgery. | MATERIALS AND METHODS | Study design and patient recruitmentThe study had a prospective and multi-centre design. All consecutive patients who underwent a surgical intervention due to a bone sarcoma around the knee joint in one of three university medical cen- | Assessment methodsAssessments included; questionnaires concerning QoL which were sent by post and an interview with the investigators (PB and JvE).Patients' baseline socio-demographic (Table 1)

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“…The experienced Competence and Cosmesis of prosthesis for Children with a Limb Deficiency (Co-Co ChiLD, see Supplement) is a survey developed for this study. It was adapted from the Bone Tumor (bt-DUX) questionnaire, 26,27 an instrument developed to measure quality of life in children after surgery for a malignant bone tumor. We adjusted the bt-DUX so that it was applicable for children using lower limb prostheses by removing a question about the results of surgery, adding questions about running and cycling, and adding open-ended questions about the prosthesis.…”

Section: Outcome Measuresmentioning

confidence: 99%

Effectiveness of a crossover prosthetic foot in active children with a congenital lower limb deficiency

Verheul

Verschuren

Zwinkels

et al. 2020

Prosthetics &Amp; Orthotics International

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Background: Children with lower limb prostheses cannot always keep up with their peers during active play. A pediatric crossover foot may be a promising prosthetic alternative for children engaging in high-intensity movements necessary for active play. Objectives: To compare children’s walking performance, running performance, experienced competence, and cosmesis using their prescribed prosthesis compared with the crossover foot. Study Design: Pretest-posttest study. Methods: Children with lower limb amputation or deficiency were recruited. Measurements were taken at baseline with the prescribed prosthesis and 6 weeks later with the crossover foot. Walking speed, energy cost of walking, anaerobic muscle power, stair climbing speed, ankle power, and cosmesis were evaluated. Results: Four children participated in the study. Two children had increased walking speed with the same energy cost, one child had decreased speed with increased energy cost, and one child had the same speed with decreased energy cost. Muscle power increased for three of the four children and ankle power increased for all children while using the crossover foot compared to the prescribed prosthesis. Two children reported knee pain or feeling excessive knee flexion when running with the crossover foot. One child reported negative feelings toward cosmesis of the crossover foot. Conclusions: This study suggests crossover foot may benefit active children by improving walking and running performance, and decreasing energy cost. However, knee pain reports or negative feelings toward the atypical design suggest the crossover foot may not be ideal for every child. Further research is needed to determine which pediatric users would benefit from this type of prosthetic foot. Clinical relevance Children with lower limb deficiencies are active prosthetic users who often switch between low- and high-intensity movements in their daily activities. Therefore, they might benefit from a crossover prosthetic design. The preliminary findings of this study suggest the crossover foot (XF) may be a promising foot for active children.

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Translation and preliminary validation of the english version of the DUX questionnaire for lower extremity bone tumor patients (Bt‐DUX): A disease‐specific measure for quality of life

Abstract: Preliminary evidence suggests that the English Bt-DUX translation is a valid disease-specific instrument for evaluating QoL of adolescents with lower extremity bone cancer.

Cited by 6 publications

References 24 publications

Cross-Cultural Validation of the Italian Version of the Bt-DUX: A Subjective Measure of Health-Related Quality of Life in Patients Who Underwent Surgery for Lower Extremity Malignant Bone Tumour

Cross-Cultural Validation of the Italian Version of the Bt-DUX: A Subjective Measure of Health-Related Quality of Life in Patients Who Underwent Surgery for Lower Extremity Malignant Bone Tumour

Quality of life after bone sarcoma surgery around the knee: A long-term follow-up study

Effectiveness of a crossover prosthetic foot in active children with a congenital lower limb deficiency

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