Trust in Physicians, Continuity and Coordination of Care, and Quality of Death in Patients with Advanced Cancer

Hamano, Jun; Morita, Tatsuya; Fukui, Sakiko; Kizawa, Yoshiyuki; Tunetou, Satoru; Shima, Yasuo; Kobayakawa, Makoto; Aoyama, Maho

doi:10.1089/jpm.2017.0049

Cited by 14 publications

(18 citation statements)

References 35 publications

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“…2 However, although the association between relational continuity and trust has been widely explored, the concept of trust has almost always been the patient trust in the clinician, even where a study purports to explore mutual trust. 32,33 In 2013, a systematic review of clinicianpatient trust found only one study where the explicit focus was GP trust in patients, 34 and one further study has since explored this. 35…”

Section: Comparison With Existing Literaturementioning

confidence: 99%

Relational continuity and patients’ perception of GP trust and respect: a qualitative study

Murphy

Salisbury

2020

Br J Gen Pract

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BackgroundDespite the benefits of relational continuity of care, particularly for patients with multimorbidity, the traditional model of continuity is changing. Revisiting what patients with ongoing problems want from relational continuity could encourage initiatives to achieve these within a modern healthcare system.AimTo examine the attributes of GPs that patients with long-term conditions value most, and which attributes patients believe are facilitated by relational continuity.Design and settingQualitative study in UK general practice.MethodA thematic analysis was carried out, based on secondary analysis of interviews with 25 patients with long-term conditions that were originally conducted to inform a patient-reported outcome measure for primary care.ResultsPatients with long-term conditions wanted their GPs to be clinically competent, to examine, listen to, care for, and take time with them, irrespective of whether they have seen them before. They believed that relational continuity facilitates a GP knowing their history, giving consistent advice, taking responsibility and action, and trusting and respecting them. Patients acknowledged practical difficulties and safety issues in achieving the first three of these without relational continuity. However, patients felt that GPs should trust and respect them even when continuity was not possible.ConclusionPolicy initiatives promoting continuity with a GP or healthcare team should continue. Many patients see continuity as a safety issue. When patients experience relationship discontinuity, they often feel that they are not taken seriously or believed by their GP. GPs should therefore consistently seek to visibly demonstrate trust in their patients, particularly when they have not seen them before.

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Section: Comparison With Existing Literaturementioning

confidence: 99%

Relational continuity and patients’ perception of GP trust and respect: a qualitative study

Murphy

Salisbury

2020

Br J Gen Pract

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“…"Good relations with the family" demonstrates the importance of family support and coexistence and its relationship with dignified death, which is also found in previous research conducted in China 16 , South Korea 24 and Germany 18 . However, in Japanese 25,26 and American 27 studies, family presence was not considered the main factor, but factors such as being free from pain, being at peace with God 12 , being valued as a person 25 and trusting the doctor 26 . While in Brazilian culture and in Asian countries the family occupies a central place, in the United States (USA) and in other western populations individualism is more valued, which justifies the physical and cognitive control at the end of life being more important for them 26 .…”

Section: Discussionmentioning

confidence: 99%

“…However, in Japanese 25,26 and American 27 studies, family presence was not considered the main factor, but factors such as being free from pain, being at peace with God 12 , being valued as a person 25 and trusting the doctor 26 . While in Brazilian culture and in Asian countries the family occupies a central place, in the United States (USA) and in other western populations individualism is more valued, which justifies the physical and cognitive control at the end of life being more important for them 26 . On the other hand, in this research, the least considered factor of high need was precisely "physical and cognitive control".…”

Section: Discussionmentioning

confidence: 99%

Morte digna: percepção de médicos de hospital de ensino

et al. 2020

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Resumo Com o objetivo de identificar a percepção de morte digna de médicos de hospital de ensino, propõe-se estudo transversal, com amostra por conveniência (100 médicos), utilizando a versão reduzida da escala de percepção de morte digna. Todos os fatores do instrumento foram considerados de alta necessidade, enfatizando-se boa relação com a família (98,9%), manutenção da esperança e do prazer (97,8%) e não ser um fardo para os demais (92,3%). Mulheres priorizaram boas relações com a família e equipe; médicos com mais de 45 anos, não ser um fardo para os demais; e os sem religião, não ser um fardo e ter controle sobre o futuro. A percepção de morte digna dos médicos valorizou aspectos sociais, como afetividade e convivência, ao priorizar esses três fatores, além de demonstrar que idade, sexo e religiosidade a influenciam. Aprovação CEP-UFSC CAAE 71111317.4.0000.0121

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“…Although clinical evidence has demonstrated the benefit of a well-managed and smooth transition to palliative care in terms of quality of life and psychosocial well-being (Kirby et al, 2014), the transition to palliative care is a process that has not been studied extensively (Marsella, 2009; Rocio et al, 2017) and the transition of terminally ill patients is a challenging aspect of clinical work. However, current evidence suggests that continuity of care is the best way to ensure effective palliative care transitions, while also enhancing the quality of the time left to live for patients and their caregivers (Gardiner et al, 2015; Hamano et al, 2017).…”

Section: Introductionmentioning

confidence: 99%

Validity and reliability of the Palliative Care Transition Measure for Caregivers (PCTM-C)

D’Angelo

Mastroianni²,

Artico

et al. 2018

Pall Supp Care

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The study included two main phases. Phase I focused on the construction of a modified version of the Palliative Care Transition Measure through two focus groups and by computing the content validity index. Phase II focused on testing the psychometric properties of the PCTM-C on 272 family caregivers through confirmatory factor analysis. Result The content validity index for each of the items was higher than 0.80, whereas that for the scale was 0.95. The model tested with confirmatory factor analysis fitted the data well and confirmed that the transition measures referred to communication, integrated care and a trusting-relationship, and therefore the core dimensions of continuity according to existing conceptual models. The internal consistency was high (Cronbach's alpha = 0.94). Significance of results The PCTM-C proved to be a suitable measure of the quality of such transitions. It may be used in clinical practice as a continuity quality indicator and has the potential to guide interventions to enhance family caregivers' experience of care continuity.

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Trust in Physicians, Continuity and Coordination of Care, and Quality of Death in Patients with Advanced Cancer

Abstract: Trust of the patient and family in home hospice staff, as well as coordination of care among hospice staff, are associated with the QOD for cancer patients dying at home.

Cited by 14 publications

References 35 publications

Relational continuity and patients’ perception of GP trust and respect: a qualitative study

Relational continuity and patients’ perception of GP trust and respect: a qualitative study

Morte digna: percepção de médicos de hospital de ensino

Validity and reliability of the Palliative Care Transition Measure for Caregivers (PCTM-C)

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