Trust in the early chain of healthcare: lifeworld hermeneutics from the patient’s perspective

Boysen, Gabriella Norberg; Nyström, Maria; Christensson, Lennart; Herlitz, Johan; Sundström, Birgitta Wireklint

doi:10.1080/17482631.2017.1356674

Cited by 19 publications

(18 citation statements)

References 34 publications

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“…A deeper description of experiences of the decision support through the specific collaboration however lacks. Other studies found a similar result of dialogue being important to establish trust (Norberg Boysen et al, 2017 ), and that patients cared for in PHC centres and EDs when calling for an ambulance have similar trust in the received care (Norberg Boysen et al, 2019 ). There is always an understanding gap in the dialogue due to encounters consisting of persons with different lifeworlds, meaning that previous experiences and knowledge affect the understanding of the situation (Dahlberg et al, 2008 ).…”

Section: Discussionmentioning

confidence: 72%

The dialogue as decision support; lived experiences of extended collaboration when an ambulance is called

Forsgärde

Svensson

Rööst

et al. 2021

International Journal of Qualitative Studies on Health and Well

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Purpose This study aimed to describe extended collaboration in situations when an ambulance was called, as experienced by older patients, a significant other, and ambulance- and primary healthcare (PHC) centre personnel. Methods The study used a phenomenological reflective lifeworld research (RLR) approach. Participants included in three specific situations with extended collaboration were interviewed: three older patients, one significant other, three ambulance personnel and four personnel at the PHC centre. The transcribed interviews were analysed for meanings of the phenomenon. Results The extended collaboration means that decisions were supported through dialogue by bridging knowledge spaces between person, within-team and across-team levels. Through dialogue experience and knowledge were shared and certainty in decisions was increased. The extended collaboration was built on trust, responsibility taken, shared and entrusted, and the common goal of adapted care for the unique patient. A need for further improvement and transparency was elucidated. Conclusions The difficulty of making care decisions stresses the importance of available extended collaboration based on the dialogue between patients, significant others, and ambulance- and PHC centre personnel to increase certainty in decisions. Collaboration further requires respectful encounters, trust, responsibility and a common goal of adapting the care for the unique patient.

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Section: Discussionmentioning

confidence: 72%

The dialogue as decision support; lived experiences of extended collaboration when an ambulance is called

Forsgärde

Svensson

Rööst

et al. 2021

International Journal of Qualitative Studies on Health and Well

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“…Contact between healthcare professionals, the patient, and the caregivers must be based upon understanding and trust [ 34 ]. To achieve this, it is essential that HCPs have knowledge and competence in the field, can provide timely and necessary information, and acknowledge and support the caregivers in their tasks.…”

Section: Discussionmentioning

confidence: 99%

A qualitative study of bereaved family caregivers: feeling of security, facilitators and barriers for rural home care and death for persons with advanced cancer

et al. 2021

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Background For cancer patients and their family, an important factor that determines the choice to die at home is the caregivers’ feeling of security when caring for the patient at home. Support to caregivers from healthcare professionals is important for the feeling of security. In rural areas, long distances and variable infrastructure may influence on access to healthcare services. This study explored factors that determined the security of caregivers of patients with advanced cancer who cared for the patients at home at the end of life in the rural region of Sogn og Fjordane in Norway, and what factors that facilitated home death. Methods A qualitative study using semi-structured in-depth interviews with bereaved with experience from caring for cancer patients at home at the end of life was performed. Meaning units were extracted from the transcribed interviews and divided into categories and subcategories using Kvale and Brinkmann’s qualitative method for analysis. Results Ten bereaved caregivers from nine families where recruited. Five had lived together with the deceased. Three main categories of factors contributing to security emerged from the analysis: “Personal factors”, “Healthcare professionals” and “Organization” of healthcare. Healthcare professionals and the organization of healthcare services contributed most to the feeling of security. Conclusion Good competence in palliative care among healthcare professionals caring for patients with advanced cancer at home and well- organized palliative care services with defined responsibilities provided security to caregivers caring for advanced cancer patients at home in Sogn og Fjordane.

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“…Norberg and colleagues described this chain of trust and healthcare delivery spanning from the moment that a patient calls an ambulance to the various healthcare transitions in the patient's journey. [26,27] Trust matters in healthcare. Calnan & Rowe suggest that when competence and experience characterize healthcare, the patient believes health professionals will provide adequate treatment and make them feel secure.…”

Section: Discussionmentioning

confidence: 99%

Patient willingness to be seen by a physician associate in Ireland

Joyce

Arnett

Hill

et al. 2018

IJH

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Background: The physician associate (PA) role was piloted in Dublin, Ireland between 2015 and 2017. However, the concept of a PA and the acceptance of their role in Ireland had not been explored. Objective: To investigate the willingness of Irish citizens to be seen by a PA based on medical scenarios in a typical clinical setting. Design: A mixed methods study was undertaken. A preference survey, with three medical scenarios, gave participants a choice to be treated by a PA or a doctor, with two time trade-off options offered. Responses were supported with qualitative text. Four hundred people were invited to participate as surrogate patients. Setting and participants: In 2017 a total of 270 respondents took part in the study (67.5%) in two hospitals (one private and one public) in Dublin. The mean age was 60; male (n = 142) and female (n = 128) respondents. Findings: In total, 95% of the respondents chose to see a PA over a doctor based on the scenarios presented and a wait time of 30 minutes. Wait time, trust, competency and the severity or seriousness of the medical condition were categorized into three themes for choosing the PA over the doctor. The "surrogate patient" decisions made by this sample were influenced by knowing that the PA is supervised and can check decisions with his/her supervizing physician. Conclusion: These findings are consistent with studies carried out in other countries where willingness to be seen by a PA is neither age nor gender specific. Patient preference seems to concur around the importance of trust and confidence in the medical provider.

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Trust in the early chain of healthcare: lifeworld hermeneutics from the patient’s perspective

Cited by 19 publications

References 34 publications

The dialogue as decision support; lived experiences of extended collaboration when an ambulance is called

The dialogue as decision support; lived experiences of extended collaboration when an ambulance is called

A qualitative study of bereaved family caregivers: feeling of security, facilitators and barriers for rural home care and death for persons with advanced cancer

Patient willingness to be seen by a physician associate in Ireland

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