Underrepresentation of adolescents with respiratory, mental health, and developmental disabilities using American Community Survey (ACS) questions

Ipsen, Catherine; Chambless, Cathy; Kurth, Noelle K.; McCormick, Sara; Goe, Rebecca; Hall, Jean P.

doi:10.1016/j.dhjo.2017.11.005

Cited by 13 publications

(8 citation statements)

References 2 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…These findings add to the existing body of literature about the inadequacies of current disability measures . For example, 1 study found that the ACS-6 failed to identify 20% of impairments and disabilities as captured in the National Survey on Health and Disability (NSHD) .…”

Section: Discussionmentioning

confidence: 74%

“…22,23 Despite the value of standardizing disability questions, the chosen approach has several limitations, including low sensitivity and inconsistent results. 3,20,24,25 The chosen standards also situate disability within the individual through their exclusive focus on impairments in basic function, even though disability is mediated by environmental factors and can manifest as limitations in other unmeasured forms of societal participation, such as work, hobbies, or social activities. 26 In addition, the standard disability questions do not ask about identity.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Impairment and Disability Identity and Perceptions of Trust, Respect, and Fairness

Salinger,

Feltz,

Chan

et al. 2023

JAMA Health Forum

View full text Add to dashboard Cite

ImportanceMost studies use impaired functioning alone to specify populations with disabilities. However, some people with functional impairments do not identify as disabled. With functional status-based definitions, studies have shown disparate care quality for people with disabilities.ObjectiveTo examine whether impairment and disability identity have different associations with perceived health care experiences and explore factors associated with disability identification.Design, Setting, and ParticipantsThis cross-sectional study used a nationally representative survey of US adults conducted from April 20 through May 31, 2021, and analyzed between June 1 and August 31, 2022. Survey participants were 1822 English- or Spanish-speaking adults responding either online or via telephone.ExposuresUsing 8 survey questions, participants were grouped according to presence of impairment and disability identity.Main Outcomes and MeasuresLikert scale measures of trust, respect, and fairness (henceforth, procedural justice measures) were dichotomized. Sociodemographic characteristics and rates of procedural justice responses were compared across groups. Multivariable logistic regressions adjusting for baseline characteristics were performed to (1) estimate associations of impairment and disability identity with perceptions of procedural justice and (2) explore factors associated with disability identification. Analyses applied survey weights.ResultsOf 6126 individuals invited to participate, 1854 (30.3%) completed the survey. Thirty-two were excluded due to unreportable gender, for a final analytic sample of 1822 participants. Participants with impairments (n = 816; mean [SD] age, 48.1 [17.0] years; 51.2% women, 48.8% men) had worse perceptions on 7 of 10 procedural justice measures (crude) compared with those without impairments (n = 1006; mean [SD] age, 49.6 [18.1] years, 55.1% female, 44.9% male). Among respondents with impairments, those who did (n = 340) vs did not (n = 476) identify as disabled gave better ratings for clinician communication efforts (a lot of effort, 38.8% vs 31.0%) and having health goals understood (understood very or fairly well, 77.2% vs 70.1%) but gave worse ratings for respect (almost never felt inferior or talked down to, 66.1% vs 59.1%). Disability identification was associated with more reports of unfair treatment (31.0% vs 22.4%; adjusted odds ratio, 1.65; 95% CI, 1.12-2.42) and of being unafraid to ask questions or disagree (50.5% vs 40.1%; adjusted odds ratio, 1.51; 95% CI, 1.04-20.19). Income and employment were associated with disability identification.Conclusions and RelevanceIn this cross-sectional survey study of US adults, health care perceptions differed between groups defined by impairment status and disability identity. These findings suggest that, alongside functional measures, health systems should capture disability identity to better address disparities for people with impairments.

show abstract

Section: Discussionmentioning

confidence: 74%

Section: Introductionmentioning

confidence: 99%

Impairment and Disability Identity and Perceptions of Trust, Respect, and Fairness

Salinger,

Feltz,

Chan

et al. 2023

JAMA Health Forum

View full text Add to dashboard Cite

show abstract

“…We retained respondents who did not endorse any WGSS items because past research has found that measures of functional disability undercount certain disability types including mental disabilities, 35 which are over-represented in MTurk disability samples. 36 , 37 , 38 , 39 Table 1 compares disability rates across metro, micro, and noncore counties. In general, rural respondents (i.e.…”

Section: Resultsmentioning

confidence: 99%

A cross-sectional analysis of trust of information and COVID-19 preventative practices among people with disabilities

Ipsen

Myers

Sage

2021

Disability and Health Journal

Self Cite

View full text Add to dashboard Cite

“…The study is likely subject to a degree of misclassification bias. Although there have been no previous analyses of the sensitivity and specificity with which the NCVS identifies young people with disabilities, evidence suggests that the ACS screener may underestimate the prevalence of disability among youth (Ipsen et al, 2018). Future research is needed to validate the ACS disability screener in surveys that include younger respondents.…”

Section: Discussionmentioning

confidence: 99%

Symptom Sequelae Following Violence Against Youth With Disabilities

Dembo

Mitra

Akobirshoev

et al. 2019

J Interpers Violence

View full text Add to dashboard Cite

The objective of this study was to examine the physical and mental health impact of violence against youth with and without disabilities. We analyzed data from the National Crime Victimization Survey (2008–2016), a nationally representative survey on crime in the United States. Respondents included 729 adolescents (12–17 years) and 953 young adults (18–24 years) who experienced violence in the previous 6 months. Disability status was determined using a six-item screener. Outcome measures included several physical and mental health symptoms experienced for at least one month following violence. Data were analyzed using multivariable logistic, Poisson, and negative binomial regression models. The results indicated that, for at least one month following a violent incident, adolescents and young adults with disabilities were more likely to experience headaches, sleep difficulty, changes in eating or drinking habits, fatigue, muscle pain, and severe distress compared to peers without disabilities. Young adults with disabilities were also more likely to experience stomach problems, depression, and anxiety. Adolescents and young adults with disabilities experienced a greater number of concurrent physical and mental health symptoms compared to peers without disabilities. The results suggest that the health effects of violence are worse for youth with disabilities compared to their nondisabled peers. These findings emphasize the importance of screening young people with disabilities for violence exposure and ensuring that trauma and health services are universally accessible.

show abstract

Underrepresentation of adolescents with respiratory, mental health, and developmental disabilities using American Community Survey (ACS) questions

Cited by 13 publications

References 2 publications

Impairment and Disability Identity and Perceptions of Trust, Respect, and Fairness

Impairment and Disability Identity and Perceptions of Trust, Respect, and Fairness

A cross-sectional analysis of trust of information and COVID-19 preventative practices among people with disabilities

Symptom Sequelae Following Violence Against Youth With Disabilities

Contact Info

Product

Resources

About