Understandings of dementia: Explanatory models and their implications for the person with dementia and therapeutic effort

Downs, Murna; Mackenzie, Linda Clare amp; Jenny,

doi:10.1093/med/9780198566151.003.0015

Cited by 27 publications

(46 citation statements)

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“…Environmental factors therefore make a significant contribution to the cause and development of dementia (Downs, Clare, and Mackenzie 2006). Yet at the same time this model implies that an environment that supports people in their attempts to maintain a relationship with the world in which they live, strengthens the cognitive condition, and helps to sustain the person's self (Hughes, Louw, and Sabat 2006;Sabat and Harré 1992).…”

Section: Relational and Embodied Identitiesmentioning

confidence: 99%

Tackling Indifference—Clowning, Dementia, and the Articulation of a Sensitive Body

Hendriks

2012

Medical Anthropology

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In this auto-ethnographic study, I focus on a special form of clowning for people at an advanced stage of dementia. The miMakkus clown is presented as a specialist in contact with people with whom communication is no longer possible by the usual (linguistic, cognitive) means. I illustrate how the miMakkus clown tries to reach people with dementia, focusing specifically on the role of the sensitive body as an instrument for attunement. As I demonstrate, in their contact, the clown and the person with dementia are involved in a process of mutual articulation.

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Section: Relational and Embodied Identitiesmentioning

confidence: 99%

Tackling Indifference—Clowning, Dementia, and the Articulation of a Sensitive Body

Hendriks

2012

Medical Anthropology

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“…Prior research indicates that formal caregivers do not typically engage in the subtle work of helping individuals find clarity during bouts of heightened confusion, relying on what some describe as harmful shortcuts in behavioral interpretation instead (see Dupuis et al, 2012; Downs et al, 2006; Lyman, 1988; Gubrium & Lynott, 1987). Downs et al (2006), for instance, introduce the concept of ‘diagnostic overshadowing’ to describe the practice in which care staff members tend to see the entirety of the affected individual’s behavior as “attributed to the labeled condition” (240).…”

Section: Discussionmentioning

confidence: 99%

Minimizing confusion and disorientation: Cognitive support work in informal dementia caregiving

Berry

2014

Journal of Aging Studies

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Drawing from ethnographic fieldwork and in-depth interviews, I explain how informal dementia caregivers attempt to reduce the affected individual’s moments of confusion and disorientation through cognitive support work. I identify three stages through which such support takes shape and then gradually declines in usage. In a first stage, family members collaborate with affected individuals to first identify and then to avoid “triggers” that elicit sudden bouts of confusion. In a second stage, caregivers lose the effective collaboration of the affected individual and begin unilateral attempts to minimize confused states through pre-emptive conversational techniques, third-party interactional support, and social-environment shifts. In a third stage, caregivers learn that the affected individual has reached a level of impairment that does not respond well to efforts at reduction and begin abandoning strategies. I identify the motivations driving cognitive support work and discuss the role of lay health knowledge in dementia caregiving. I conclude by considering the utility of cognitive support as a concept within dementia caregiving.

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“…Mackenzie (2006) believes this is due to the stigma of dementia within ethnic minority communities and not wanting the condition to become public knowledge hence the need for family support. Similarly, Daker noted in their work, the myth that 'Black people look after their own', the view that Black and Asian people tend to stay within their own communities.…”

Section: Family Supportmentioning

confidence: 99%

“…Explanatory models of illness have been noted in literature to refer to a person's views about the nature of their problem, its cause, severity, prognosis and treatment (McCabe and Priebe, 2004). Downs, Clare and Mackenzie, (2006) in their work discuss explanatory models of dementia. In their work, they note four explanatory models, which include dementia as a neurological condition; dementia as a neuro-psychiatric condition; dementia as a normal part of ageing; and seeing dementia from a person-centred perspective.…”

Section: Journey To Diagnosismentioning

confidence: 99%

[P2–506]: Exploring the Lived Experience of the Individual of Black Ethnicity Living With Dementia: A Phenomenological Study

Mawaka

2017

Alzheimer's & Dementia

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In the United Kingdom(UK), Black and Minority Ethnic(BME) groups are more at risk of developing Vascular Dementia and experience a higher rate of younger-onset dementia (≤ 65 years), compared with the majority ethnic White British population. Despite this, BME people living with dementia in the UK, are under-represented in health services. They receive a diagnosis later in their disease progression and are less likely to access dementia services.There is a growing body of work in the UK exploring dementia experiences within Asian communities. However, there is limited research, considering the experiences of individuals Interpretive phenomenology based on the work of Heidegger (1927) was used to explore the experiences of six participants. Data was collected through a series of three semi-structured interviews with each participant, audio recorded and transcribed verbatim. Thematic data analysis was conducted, using a framework by Braun and Clarke (2006). A phenomenological interpretation identified three overarching themes: Life before Dementia, Journey to Diagnosis and Living with Dementia. The role of God and Religion was significant throughout the different stages of life and influenced the decision-making process to access health services.In totality, the themes represent the lived experience of living with dementia for the individuals of Black ethnicity who participated in this study. Through exploring the lived experience of dementia, this study provides some insight into the barriers to dementia service uptake in this population and their understandings of dementia.iii AcknowledgementsThere are many people who have encouraged me during this journey. I would like to thank the participants and their families, who gave up their time to talk to me, and without whom this ......................................................................................................... 15 2.2 Reviewing the literature ....................................................................................... 15 2.2.1 Literature search strategy .......................................................................... 15 2.2.2 Databases searched .................................................................................. 15 2.2.3 Key search terms employed ...................................................................... 16 2.2.4 Selection criteria ......................................................................................... 16 2.2.5 Inclusion and exclusion search criteria ...................................................... 16 2.2.6 Manual search ............................................................................................ 17 2.3 Identifying relevant papers/studies ...................................................................... 17 2.4 Reviewing literature within the qualitative research Gaps in the literature and rationale for study ...................................................... 31 2.7 Summary of chapter .......................................

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Understandings of dementia: Explanatory models and their implications for the person with dementia and therapeutic effort

Cited by 27 publications

References 0 publications

Tackling Indifference—Clowning, Dementia, and the Articulation of a Sensitive Body

Tackling Indifference—Clowning, Dementia, and the Articulation of a Sensitive Body

Minimizing confusion and disorientation: Cognitive support work in informal dementia caregiving

[P2–506]: Exploring the Lived Experience of the Individual of Black Ethnicity Living With Dementia: A Phenomenological Study

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