Unmet needs and quality of life in multiple myeloma patients

Pereira, M. Graça; Silva, Isa; Faria, Sara; Silva, Bruna; Monteiro, Sara; Ferreira, Gabriela

doi:10.1177/1359105318772073

Cited by 10 publications

(9 citation statements)

References 86 publications

(121 reference statements)

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“…Emotional support was also positively associated with SWL in our study. This is in line with a multitude of studies linking this type of support to increases in QoL (Bogart & Hemmesch, 2016; Ethgen et al, 2004; Pereira et al, 2018; Yao et al, 2015). Emotional support is thought to help restore one’s self-esteem and feelings of personal inadequacy by communicating that the chronically ill individual is loved and valued.…”

Section: Discussionsupporting

confidence: 87%

“…Controls that were considered for both models were those found to be consistently important across multiple studies. These included gender, age, years since diagnosis, and both duration and severity of symptoms (Bogart & Irvin, 2017; Bosworth et al, 2000; Delgado, 2007; Ethgen et al, 2004; Grady et al, 1995; Kornblith et al, 2001; Pakenham, 1999; Pereira et al, 2018). Zero-order correlations were calculated for descriptive purposes.…”

Section: Methodsmentioning

confidence: 99%

“…The few studies that have examined this relationship in RD populations, however, generally find positive associations. Specifically, studies assessing the functional aspects of social support have found greater unmet social support needs to be associated with poorer psychological QoL among those with Huntington’s disease and multiple myeloma (Pereira et al, 2018; van Walsem, Howe, Ruud, Frich, & Andelic, 2017), and both companionship and emotional support to be strongly associated with anxiety and depression for individuals with Moebius syndrome (Bogart & Hemmesch, 2016). Further, social support—measured using a composite functional measure—was shown to predict better psychological functioning among adults with cystic fibrosis (Anderson, Flume, & Hardy, 2001).…”

Section: Main Effects Modelmentioning

confidence: 99%

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Social support, stress, and life satisfaction among adults with rare diseases.

Bryson¹,

Bogart²

2020

Health Psychology

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Objective: The goal of this study was to examine the role of stress and four different types of social support in satisfaction with life (SWL) among adults with rare diseases (RDs). We examined whether support is directly related to SWL (main effects model) or related through moderating the inverse relationship between stress and SWL (stress-buffering hypothesis). Method: Data came from a cross-sectional survey of adults living in the United States diagnosed with any RD. Participants (n = 1,203) filled out measures of stress, four short-form scales of social support (emotional, informational, tangible, companionship), and SWL. Hierarchical multiple regression was used to test both the main effects model and stress-buffering hypothesis. Results: Controlling for age, gender, years since diagnosis, and symptom severity, emotional support, but not informational or tangible support, positively predicted SWL. Companionship support was related to SWL over and above other factors. Stress negatively predicted SWL, but none of the types of support moderated this relationship. Conclusion: Results suggest companionship and emotional support are beneficial to individuals with RDs regardless of their stress levels. Intervention research should focus on ways to foster more companionship and emotional support to improve SWL in this underserved population.

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Section: Discussionsupporting

confidence: 87%

Section: Methodsmentioning

confidence: 99%

Section: Main Effects Modelmentioning

confidence: 99%

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Social support, stress, and life satisfaction among adults with rare diseases.

Bryson¹,

Bogart²

2020

Health Psychology

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“…A previous cross-sectional registry study showed that adults with MM experienced significantly worse QoL compared to other cancers [41]. Factors associated with poor QoL include being older, female gender, financial stressors, psychological morbidity, and low physical activity [42][43][44]. In comparison to these cross-sectional studies which only capture information at one specific time point, our study used longitudinal assessment of QoL over a period of 6-months to show that most patients in fact improved or remained stable over time.…”

Section: Discussionmentioning

confidence: 98%

Geriatric assessment and quality of life changes in older adults with newly diagnosed multiple myeloma undergoing treatment

Mian

Pond

Tuchman

et al. 2020

Journal of Geriatric Oncology

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“…Thus, transplant patients have different care needs after surgery (Been‐Dahmen et al, 2018; Forsberg et al, 2016). Unmet patients' needs are related to poor health status, increased depression or anxiety, and low quality of life (Forsberg et al, 2016; Pereira et al, 2018); hence, a reliable instrument must be routinely used to assess the unmet needs of patients after transplantation. However, no needs assessment scale is available for transplant recipients in current practice settings.…”

Section: Introductionmentioning

confidence: 99%

Care Needs for Organ Transplant Recipients Scale: Development and psychometric testing

Chang

Lai

Tsai

et al. 2020

Journal of Renal Care

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Background Needs assessment can determine how large the gap is between needs and available services; however, no tools are available to assess the unmet needs of renal transplant recipients. Objectives The aim of this study was to develop the Care Needs for Organ Transplant Recipients Scale (CNOTRS) and examine its psychometric properties. Design A cross‐sectional design for instrument development and psychometric testing. Participants In total, 217 renal transplant recipients were recruited through convenience sampling. Methods An initial 36‐item CNOTRS was developed after a comprehensive literature review. After the CNOTRS was tested through content validity and face validity, the factor structure was explored using exploratory factor analysis (EFA). Convergent validity was examined using Pearson's correlation between the CNOTRS and Hospital Anxiety and Depression Scale (HADS). Known‐group validity was tested by comparing CNOTRS scores of patients grouped based on whether they had experienced complications or rejection. Results Twenty‐eight items with three factors (namely daily care and social interaction needs, psychological needs, and health system and service needs) were identified in EFA by parallel analysis and Velicer's MAP test. The psychological needs domain had a stronger positive correlation with the HADS than the other two domains. The known‐group validity was supported as a significant association between complications or rejection occurrence and unmet needs. The Cronbach's α of the CNOTRS was 0.94. Conclusions The CNOTRS demonstrated satisfactory reliability and validity to assess the care needs for renal transplant recipients and can assist health care professionals to tailor more personalised care for their individual needs.

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Unmet needs and quality of life in multiple myeloma patients

Cited by 10 publications

References 86 publications

Social support, stress, and life satisfaction among adults with rare diseases.

Social support, stress, and life satisfaction among adults with rare diseases.

Geriatric assessment and quality of life changes in older adults with newly diagnosed multiple myeloma undergoing treatment

Care Needs for Organ Transplant Recipients Scale: Development and psychometric testing

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