Unmet supportive care needs in patients treated with total laryngectomy and its associated factors

Abstract

Background The purpose of this study was to investigate unmet supportive care needs in patients treated with total laryngectomy and its associated factors. Methods In this cross‐sectional study, 283 patients who underwent total laryngectomy completed questions on supportive care needs (Supportive Care Needs Survey [SCNS]). Median time since total laryngectomy surgery was 7 years (range 0‐37 years). The prevalence of unmet supportive care needs and its associated factors were investigated using logistic regression analyses. Results Unmet supportive care needs were highest for the head and neck cancer‐specific functioning domain (53%), followed by the psychological (39%), physical and daily living (37%), health system, information, and patient support (35%), sexuality (23%), and lifestyle (5%) domains. Seventy‐one percent reported at least one low, moderate, or high unmet need. Female sex, living alone, and having a voice prosthesis were positively associated with unmet needs on 1 domain (P < .05). A worse health‐related quality of life was associated with unmet needs on all domains. Conclusion The majority of patients who underwent total laryngectomy report at least one low, moderate, or high unmet supportive care need.

Women's perspective on life after total laryngectomy: a qualitative study

“…As we move towards health models driven by patientcentred care, understanding the differential impacts of surgical procedures on subgroups of our patients, in this case women, is critically important to help improve our care models, patient education and support systems. We support the conclusions of earlier research recommending personalized rehabilitation provided by a multidisciplinary team and recognize the presence of unmet supportive care needs in women undergoing total laryngectomy (Bickford et al 2013, Eadie et al 2018, Perry et al 2015, Passchier et al 2016, Lee et al 2010, Sharpe et al 2019, Jansen et al 2018.…”

“…, Jansen et al . ). Graham and Palmer () show that their studied group of female laryngectomees were younger at the time of surgery, were more likely to be working, more often had no partner, had a lower income, had more postoperative physical complaints, and relied more often on support from family and friends instead of support groups compared with their male counterparts.…”

“…Quantitative studies investigating gender-specific issues after total laryngectomy show that women might be at risk for a lower global health status, experience a greater impact on their relationship and have more stigma-related problems (Cox et al 2015, Lee et al 2010, Offerman et al 2015, Jansen et al 2018. Graham and Palmer (2002) show that their studied group of female laryngectomees were younger at the time of surgery, were more likely to be working, more often had no partner, had a lower income, had more postoperative physical complaints, and relied more often on support from family and friends instead of support groups compared with their male counterparts.…”

Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world

“…The PCI is a condition-specific prompt list and is different to other tools such as the Cancer Survivors' Survey of Needs (CSSN), and Cancer Survivors' Unmet Needs measure (CaSUN). 16,17 There are several limitations to this study. It was nonfunded with self-selecting units and with no attempt to obtain representation from every continent, nor within each country.…”

Understanding Posttreatment Patient‐Provider Communication and Follow‐Up Care Among Self‐Identified Rural Cancer Survivors in Illinois

“…Rural cancer survivors experience a greater need for physical and daily living care needs that may be associated with limited access to resources. 34 Adequate review and delivery of care needs can improve a survivor's quality of life, 3,35 satisfaction of care, 3 follow-up care initiation and adherence, and other related survivorship outcomes.…”