US experience with transparent medical records should reassure doctors

DesRoches, Catherine M.; Walker, Jan; Delbanco, Thomas L.

doi:10.1136/bmj.o2969

Cited by 3 publications

(3 citation statements)

References 12 publications

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“…They have the facility to block access for patients judged to be vulnerable and redact elements of any electronic record. Experience from the US, where clinicians expressed similar fears initially, is reassuring 16. Transparent records may help reduce litigation and malpractice20—and may also save GPs time 9…”

Section: Evidence Is Supportivementioning

confidence: 99%

“…The UK is behind the curve on access to patients records and on evaluation. The OpenNotes movement in the US has been tracking its effect for a decade 16. The Swedish based DOME consortium (Development of Online Medical Records and E-health Services) has published over 100 research studies (mostly surveys and qualitative designs) evaluating the effect on patients and health professionals 17…”

Section: Evidence Is Supportivementioning

confidence: 99%

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Patient access to full general practice health records

Richards¹,

Coulter

McMillan

et al. 2022

BMJ

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Many countries empower patients to take on a larger role in their care by providing them with online access to their health records. 1 2 Transparent records, and patient access to them, are also key to improving the safety of care. 3 Approaches to sharing records differ internationally. Sweden rolled it out region by region from 2012.1 The US mandated it nationally from April 2021. 4 The UK government planned to do the same in England but its programme has foundered. 5 NHS England's programme to provide citizen access to general practice records was due to go live in December 2021, following a 2019 pledge to provide all patients with full digital access by default by 2020. 6 But launch was put back to April 2022 and then 1 November, after the Royal College of General Practitioners said practices needed more time and training to implement it. 7 In July, the college updated its online services toolkit and NHS England circulated guidance and resources for general practice staff based on the experience of 16 early adopter practices. 8 9

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Section: Evidence Is Supportivementioning

confidence: 99%

Section: Evidence Is Supportivementioning

confidence: 99%

Patient access to full general practice health records

Richards¹,

Coulter

McMillan

et al. 2022

BMJ

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“…119 There continues to be a need to identify organizational and societal strategies that enable equitable access to patient portals. Second, as others have noted, 120 overall, clinicians should feel reassured about early evidence on increased patient access to EHI; however, that does not mean that patients do not need more support and preparation. The few existing efforts to prepare patients for increased access to their EHI have tended to focus on patient education.…”

Section: Health Care Organizationsmentioning

confidence: 99%

The State-of-the-Art of Patient Portals: Adapting to External Factors, Addressing Barriers, and Innovating

Reynolds,

Cobb,

Steitz

et al. 2023

Appl Clin Inform

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Background and Objective Recent external factors—the 21st Century Cures Act and the coronavirus disease 2019 (COVID-19) pandemic—have stimulated major changes in the patient portal landscape. The objective of this state-of-the-art review is to describe recent developments in the patient portal literature and to identify recommendations and future directions for the design, implementation, and evaluation of portals. Methods To focus this review on salient contemporary issues, we elected to center it on four topics: (1) 21st Century Cures Act's impact on patient portals (e.g., Open Notes); (2) COVID-19's pandemic impact on portals; (3) proxy access to portals; and (4) disparities in portal adoption and use. We conducted targeted PubMed searches to identify recent empirical studies addressing these topics, used a two-part screening process to determine relevance, and conducted thematic analyses. Results Our search identified 174 unique papers, 74 were relevant empirical studies and included in this review. Among these papers, we identified 10 themes within our four a priori topics, including preparing for and understanding the consequences of increased patient access to their electronic health information (Cures Act); developing, deploying, and evaluating new virtual care processes (COVID-19); understanding current barriers to formal proxy use (proxy access); and addressing disparities in portal adoption and use (disparities). Conclusion Our results suggest that the recent trends toward understanding the implications of immediate access to most test results, exploring ways to close gaps in portal adoption and use among different sub-populations, and finding ways to leverage portals to improve health and health care are the next steps in the maturation of patient portals and are key areas that require more research. It is important that health care organizations share their innovative portal efforts, so that successful measures can be tested in other contexts, and progress can continue.

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Detection of disorders of the chemical senses—assessment of state of health by those affected

Schönherr

Hummel

2023

HNO

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US experience with transparent medical records should reassure doctors

Cited by 3 publications

References 12 publications

Patient access to full general practice health records

Patient access to full general practice health records

The State-of-the-Art of Patient Portals: Adapting to External Factors, Addressing Barriers, and Innovating

Detection of disorders of the chemical senses—assessment of state of health by those affected

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