US hospices’ approach to racial/ethnic minority inclusion: a qualitative study

Abstract

ObjectiveTo examine hospices’ approaches to improving the current racial/ethnic hospice utilisation disparity.MethodsDuring June and July 2020, we conducted in-depth, semistructured interviews with 22 hospice leaders from across the USA. The interviews focused on inclusive strategy approaches. We analysed the data using qualitative methods.ResultsMultiple themes emerged about racial/ethnic minority inclusion strategies: (1) hospices tailor strategies to the local communities they serve; (2) improvement involves addressing social determinants of health that extend beyond end-of-life care; (3) costs of strategies are not a primary concern and the benefits are worth the costs; and (4) hospices want to do more to improve their efforts.ConclusionsHospices want to improve racial/ethnic minority inclusion and can take specific action steps to educate community members about hospice and provide an environment within hospice care that is welcoming to all. Hospice-targeted programmes and policies that facilitate language translation, diversity in staffing, enhanced community outreach, and leadership and staff collaboration regarding inclusion may help hospices achieve success in their efforts toward racial/ethnic minority inclusion.

Researching minoritised communities in palliative care: An agenda for change

“…Analysis of health inequality and inequity relevant to palliative care must consider the social context and processes in which 'differences that make a difference' influence health experiences and outcomes. Rigorously conducted qualitative studies or mixed methods studies, previously used in this area of palliative care inquiry may offer value by elucidating underlying processes 67,112,[141][142][143][144] .…”

“…Rigourously conducted qualitative studies or mixed methods studies, previously used in this area of palliative care inquiry may offer value by elucidating underlying processes. 67,112,[141][142][143][144]…”

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