Use of Photovoice Methods in Research on Informal Caring: A Scoping Review of the Literature

Ilagan, Chloe; Akbari, Zahra; Sethi, Bharati; Williams, Allison

doi:10.14302/issn.2576-9383.jhhr-20-3573

Cited by 11 publications

(9 citation statements)

References 58 publications

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“…This is a qualitative exploration of participants’ images and text excerpts describing their dementia caregiving experience as part of the CS intervention, described below. The intervention employed images to elicit participants’ stories given the strengths they are shown to have in collecting data with this population, such as more participant engagement with visual cues, more patient-centered discussions, and potential benefits of meaning making, versus using interviews alone (Ilagan et al, 2020).…”

Section: Methodsmentioning

confidence: 99%

“…Photovoice is a participatory method in which people use images to identify and express their experiences. Photovoice has been used effectively as a research method to identify the needs of caregivers (Ilagan et al, 2020). A small but growing number of studies suggest therapeutic benefits of the method for caregivers, including increased sense making and new ways to imagine self and caring roles (e.g., Capous-Desyllas et al, 2020).…”

Section: Introductionmentioning

confidence: 99%

“…A small but growing number of studies suggest therapeutic benefits of the method for caregivers, including increased sense making and new ways to imagine self and caring roles (e.g., Capous-Desyllas et al, 2020). The majority of photovoice work on caring, however, falls short of exploring how discussing the images and photos affects participants (Ilagan et al, 2020).…”

Section: Introductionmentioning

confidence: 99%

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“Each Day We Lose a Little More”: Visual Depictions of Family Caregiving for Persons with Dementia

et al. 2023

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More than 11 million Americans provide unpaid care for people with dementia (PWD) and need emotional, financial, and physical support. This study explored how participants in Caregiver Speaks, a social networking and image-based storytelling intervention designed to help caregivers make meaning of caregiving, described their caregiving experiences and needs. Strategies of thematic analysis were used to identify patterns in 28 different caregivers’ images ( N = 59) and text interactions on social media. Caregivers identified as white (71.4%), as women (92.9%), and as an adult child or child-in-law of the PWD (85.7%). Through images and text, caregivers explained interrelated changes in their behaviors (e.g., managing dual roles), thoughts (e.g., realizing severity of illness), and feelings (e.g., trapped) throughout the caregiving process. Findings reiterate that caregiving changes significantly over time, that visual storytelling helps to concretely capture those changes, and that interventions are needed to respond to caregivers’ hardships across the caregiving time span.

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Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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“Each Day We Lose a Little More”: Visual Depictions of Family Caregiving for Persons with Dementia

et al. 2023

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“…Nevertheless, only informal caregiving (predominantly emotional and moral support) within transnational families (e.g., Baldassar 2007a , b , 2011 , 2013 , 2016 ; Baldassar et al, 2016 , 2017 ; Brijnath, 2009 ; Dekker & Engbersen, 2014 ; Madianou 2014 , 2016 ; Madianou & Miller, 2013 ; Spitzer et al, 2006 ) have been studied. Others have focused on the experiences of formal/paid immigrant carers in their country of resettlement (e.g., Donovan & Williams, 2014 ; Ho et al, 2003 ; Ilegan et al, 2020 ; Lai, 2007 , 2008 ; Lai & Leonenko, 2007 ; Park, 2012 ; Turcotte & Savage, 2020 ). Except for scant literature (Sethi, 2022 ; Sethi & Williams, 2016 , 2017 ; Sethi et al, 2017a , b , 2018 ), research that exclusively focuses on the experiences of transnational carer-employees is absent.…”

Section: Introductionmentioning

confidence: 99%

Caregiving Across International Borders: a Systematic Review of Literature on Transnational Carer-Employees

Sethi

Williams

Leung

2022

J Cross Cult Gerontol

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In diaspora and transnational studies little is known about the experiences of transnational carer-employees (TCEs). TCEs provide unpaid/informal care across international borders to an adult family member, friend, or relative with disability and/or age-related needs, while also working in paid employment in the country of resettlement. The primary focus of this systematic review was to examine how cultural and historical elements of transnational caregiving influence the economic, social, and health/well-being of TCEs. This systematic review draws on quantitative and qualitative peer-reviewed literature on TCEs’ experiences from Canada, the USA, or Australia between 1997 and 2017. In all, 16 articles that fulfilled the search inclusion criteria were selected. The articles were analyzed using content and thematic analysis. The review highlighted that transnational caregiving is a multi-dimensional phenomenon. There is a reciprocal relationship between adult children providing care to their parents and parents helping their children resettle in their new home. The findings suggest that TCEs provide practical, financial, and emotional care to their families abroad. To the best of our knowledge, this is the first comprehensive systematic review of the experiences of TCEs. Increasingly complex immigration experiences of transnational families require innovative policy responses from a transnational and intersectionality lens. Immigrants need support to maintain solid transnational networks and simultaneously adapt to the country of resettlement. Employers can use the findings to support TCEs in balancing unpaid care across vast geographical distances while sustaining their economic and social well-being.

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“…However, knowledge about developing critical perspectives on structural systems of oppression is underrepresented in photovoice literature (Liebenberg, 2018;Sanon, Evans-Agnew and Boutain, 2014;Coemans et al, 2019;Derr and Simons, 2020). Multiple (scoping) reviews-in diverse fields-focus on scholars' difficulties to reach policy makers with outcomes of their photovoice project, but they pay little attention to the critical reflection of participants (Dassah et al, 2017;Mysyuk and Huisman, 2020;Han and Oliffe, 2016;Fountain et al, 2021;Suprapto and Sunarti, 2020;Ilagan et al, 2020;Halvorsrud et al, 2021;Lofton and Grant, 2021). Articles that focus on developing critical consciousness with participants remain…”

Section: Introductionmentioning

confidence: 99%

The Caring Class

Duijs¹

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SHORT SUMMARY The health of paid care workers in long-term care is under pressure, but not for all care workers alike (chapter 1 and 2). Therefore, this thesis addresses health inequities among paid care workers. This thesis presents several participatory studies which were conducted by the author, together with paid care workers and a professional photographer. These studies unravel the health strategies of women (chapter 3) and men (chapter 4) working in long-term care and the health issues of self-employed care workers (chapter 5) before and during (chapter 6) the COVID-19 pandemic. All studies were done from a critical gender, diversity-sensitive and intersectional perspective. They present insights for care workers, occupational health professionals, HRM professionals and policy makers in long-term care. This thesis is also relevant for Participatory Health Researchers (PHR) who aim to make their research more critical and diversity-sensitive, as it explores the relevance of intersectionality for PHR (chapter 7 and 8). A series of portraits ‘What You Don’t See’, made by photographer Janine Schrijver in co-creation with care workers and the author, is part of the research presented in this thesis (chapter 9). These portraits address urgent health issues that often remain invisible, including racism and poverty, which squeezes paid care workers out of the organizations into self-employment. Concerns about the health of paid care workers are a persistent societal issue in the Netherlands. They have become increasingly pressing as more and more paid care workers find themselves in precarious positions, no longer able to sustain their own health or support themselves financially. Therefore, this thesis explores the economic, societal and political forces that contribute to the precarization of paid care workers in the Netherlands (chapter 10). Protecting, maintaining and repairing the health of paid care workers is not just an issue of care workers or employers. It is a societal issue and shaped by political choices

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Use of Photovoice Methods in Research on Informal Caring: A Scoping Review of the Literature

Cited by 11 publications

References 58 publications

“Each Day We Lose a Little More”: Visual Depictions of Family Caregiving for Persons with Dementia

“Each Day We Lose a Little More”: Visual Depictions of Family Caregiving for Persons with Dementia

Caregiving Across International Borders: a Systematic Review of Literature on Transnational Carer-Employees

The Caring Class

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