User involvement in the development of a telehealth solution to improve the kidney transplantation process: A participatory design study

Nielsen, Charlotte; Agerskov, Hanne; Bistrup, Claus; Clemensen, Jane

doi:10.1177/1460458219876188

Cited by 28 publications

(21 citation statements)

References 30 publications

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“…Patients and HCPs collaborated in developing a solution, guided by the needs of the users in clinical practice (Nielsen, Agerskov, Bistrup, & Clemensen, 2019a, 2019bNielsen, Clemensen, Bistrup, & Agerskov, 2019). The telehealth solution took the form of a new workflow for follow-up consultations and an app for kidney transplant patients as listed in Table 1.…”

Section: The Telehealth Solutionmentioning

confidence: 99%

Evaluation of a telehealth solution developed to improve follow‐up after kidney Transplantation

Nielsen

Agerskov

Bistrup

et al. 2020

Journal of Clinical Nursing

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Aim To explore patients’ and healthcare professionals’ experiences of using a telehealth solution developed to improve follow‐up after kidney transplantation. Background Transplantation is the treatment of choice whenever feasible for patients with end‐stage kidney disease. However, it implies lifelong adherence of self‐monitoring, medicine and other restrictions to ensure successful outcomes. Based on user involvement, a telehealth solution was developed to support patients and healthcare professionals post‐transplantation. Design An explorative qualitative study with a phenomenological‐hermeneutic approach. Methods The developed app and workflow for follow‐up were tested by patients and healthcare professionals and evaluated with interviews. In total, 16 patients and 20 healthcare professionals participated. Individual interviews were conducted with the patients, four nurses participated in two sets of interviews, and 16 doctors participated in a focus group. Data were analysed with inspiration from Ricoeur's theory of interpretation, on three levels: Naïve reading, structural analysis and critical interpretation and discussion. The COREQ checklist was applied in reporting the study. Results Three themes emerged: Challenging conditions for training sessions, telehealth improves patient reflection and collaboration, and telehealth gives patients a voice in consultations. In a challenging time, post‐transplantation patients found the app easy to use; it facilitated support and reflection on how to manage. It also supported both patients and healthcare professionals at follow‐up consultations in terms of enhanced preparation, improved dialogue and enabling consultations by phone. Conclusion The study showed that patients and healthcare professionals found the app and workflow valuable and easy to use. The Patient Data feature in the app has potential as a communication tool. However, adjustments and further investigations are needed to develop the solution. Relevance to clinical practice The potential of telehealth brings new opportunities to provide treatment and care to newly transplanted patients. Telehealth can support both patients and health professionals by improving dialogue and collaboration.

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Section: The Telehealth Solutionmentioning

confidence: 99%

Evaluation of a telehealth solution developed to improve follow‐up after kidney Transplantation

Nielsen

Agerskov

Bistrup

et al. 2020

Journal of Clinical Nursing

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“…Looking into previous research, intervention examples could be telehealth solutions, discharge follow-up or cross-sectoral collaboration. 48 Finally, a 'laboratory' workshop pretesting the prototype sees its feasibility and acceptability in practice. 30 This workshop will include a smaller number of participants as the aim is narrow, compared with the creative, innovative workshops.…”

Section: Methodsmentioning

confidence: 99%

How to improve emergency care to adults discharged within 24 hours? Acute Care planning in Emergency departments (The ACE study): a protocol of a participatory design study

et al. 2020

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IntroductionThe development of acute symptoms or changes in diseases led to feelings of fear and vulnerability and the need for health professional support. Therefore, the care provided in the acute medical and surgical areas of the emergency department (ED) is highly important as it influences the confidence of patients and families in managing everyday life after discharge. There is an increase in short-episode (<24 hours) hospital admissions, related to demographic changes and a focus on outpatient care. Clear discharge information and inclusion in treatment decisions increase the patient’s and family’s ability to understand and manage health needs after discharge, reduces the risk of readmission. This study aims to identify the needs for ED care and develop a solution to improve outcomes of patients discharged within 24 hours of admission.Methods and analysisThe study comprises the three phases of a participatory design (PD). Phase 1 aims to understand and identify patient and family needs when discharged within 24 hours of admission. A qualitative observational study will be conducted in two different EDs, followed by 20 joint interviews with patients and their families. Four focus group interviews with healthcare professionals will provide understanding of the short pathways. Findings from phase 1 will inform phase 2, which aims to develop a solution to improve patient outcomes. Three workshops gathering relevant stakeholders are arranged in the design plus development of a solution with specific outcomes. The solution will be implemented and tested in phase 3. Here we report the study protocol of phase 1 and 2.Ethics and disseminationThe study is registered with the Danish Data Protection Agency (19/22672). Approval of the project has been granted by the Regional Committees on Health Research Ethics for Southern Denmark (S-20192000–111). Findings will be published in suitable international journals and disseminated through conferences.

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“…A systematic evaluation found that only 23/378 health apps (6%; n = 5 both Android and iOS, n = 12 only Android, n = 11 only iOS) were address the needs of patients with kidney diseases and were able to support because of useful features [36]. Therefore, medical experts or patients themselves should be integrated into the developing process of an app from the beginning to adapt to specific needs [40,41]. Today, start‐up companies and publicly funded projects from medical experts develop flexible eHealth tools tailored to the requirements of patient groups and healthcare providers [31,32,35,41–50].…”

Section: Mobile Applications (Apps)mentioning

confidence: 99%

“…Today, start‐up companies and publicly funded projects from medical experts develop flexible eHealth tools tailored to the requirements of patient groups and healthcare providers [31,32,35,41–50]. Ideally, apps are connectable to the hospital's EHR [41,44], as standalone software limits accessibility and data transfer. Many healthcare IT solutions are outdated for today's requirements lacking interoperability, flexibility, and are not designed for healthcare professionals.…”

Section: Mobile Applications (Apps)mentioning

confidence: 99%

eHealth in transplantation

et al. 2020

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Summary eHealth (“electronic” Health) is a new field in medicine that has the potential to change medical care, increase efficiency, and reduce costs. In this review, we analyzed the current status of eHealth in transplantation by performing a PubMed search over the last 5 years with a focus on clinical studies for post‐transplant care. We retrieved 463 manuscripts, of which 52 clinical reports and eight randomized controlled trials were identified. Most studies were on kidney (n = 19), followed by liver (n = 10), solid organ (n = 7), bone‐marrow (n = 6), and lung transplantation (n = 6). Eleven articles included adolescents/children. Investigated eHealth features covered the whole spectrum with mobile applications for patients (n = 24) and video consultations (n = 18) being most frequent. Prominent topics for patient apps were self‐management (n = 16), adherence (n = 14), symptom‐reporting (11), remote monitoring of vital signs (n = 8), educational (n = 7), and drug reminder (n = 7). In this review, we discuss opportunities and strengths of such new eHealth solutions, the implications for successful implementation into the healthcare process, the human factor, data protection, and finally, the need for better evidence from prospective clinical trials in order to confirm the claims on better patient care, potential efficiency gains and cost savings.

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User involvement in the development of a telehealth solution to improve the kidney transplantation process: A participatory design study

Cited by 28 publications

References 30 publications

Evaluation of a telehealth solution developed to improve follow‐up after kidney Transplantation

Evaluation of a telehealth solution developed to improve follow‐up after kidney Transplantation

How to improve emergency care to adults discharged within 24 hours? Acute Care planning in Emergency departments (The ACE study): a protocol of a participatory design study

eHealth in transplantation

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