Using blogs to explore the lived‐experience of life after stroke: “A journey of discovery I never wanted to take”

Thomas, Caroline; Allison, Rhoda; Latour, Jos M.

doi:10.1111/jan.13457

Cited by 10 publications

(7 citation statements)

References 50 publications

(91 reference statements)

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“…They were also publicly available to other bloggers. In this sense, the online diaries did not require informed consent from the authors, and ethical approval was not necessary for research (Åsenhed et al, 2014; Eastham, 2011; Thomas et al, 2018; Wilson et al, 2015). Pseudonyms were used instead of diary authors' real names or online pennames to ensure confidentiality of the nurses.…”

Section: Methodsmentioning

confidence: 99%

The experiences of frontline nurses in Wuhan: A qualitative analysis of nurse online diaries during the COVID‐19 pandemic

Chen

Wang

Zengmei

2021

Journal of Clinical Nursing

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Aims and objective:To explore the experiences of frontline nurses through analyzing nurse online diaries during the pandemic.Background: Over 42,600 healthcare professionals took care of patients with COVID-19 in Wuhan in the initial months between 23 January 2020 and 8 April 2020.Many used to write online diaries on Sina Microblog and still wrote about their experiences in the front line on this site. However, there has been little research on frontline nurses' experiences in the initial months of the pandemic through analyzing their narratives. Design: A qualitative descriptive design.Methods: A qualitative content analysis was used to analyze online diaries written by frontline nurses in Wuhan. A total of 205 entries in online diaries were collected from 12 frontline nurses, as accessible to those who subscribed to Sina Microblog social media site, between 23 January 2020 and 8 April 2020. NVivo12 was used to help analyze the data, and COREQ reporting guidelines were also used in this study.Results: Two themes were identified: constructing a better self and constructing a strong support network. A better self was constructed in describing positive emotions, commitment to care, pride and achievements, and whole-person growth. A strong support network was constructed through social support via different sources and gaining self-support via narrating their personal experiences in diaries. Conclusions:Frontline nurses demonstrated personal growth, psychological wellbeing, and professionalism in the process of constructing a better self and a strong support network. Relevance to clinical practice:The findings indicate that frontline nurses can use narratives as debriefing opportunities and a way of gaining self-support. We suggest that online communities of professional support be used as an essential platform for sharing narratives and gaining a more comprehensive understanding of frontline nurses in the COVID-19 pandemic and other global public health events.

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Section: Methodsmentioning

confidence: 99%

The experiences of frontline nurses in Wuhan: A qualitative analysis of nurse online diaries during the COVID‐19 pandemic

Chen

Wang

Zengmei

2021

Journal of Clinical Nursing

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“…The use of naturally occurring data, such as stories published on public platforms can have three main advantages: they are person-centred, context rich and provide emic perspective (Kiyimba et al, 2019). Moreover, the exploration of people's experiences using digital sources is not a new approach as it is increasingly reported in the literature due to their resemblance to other interview-based studies (Thomas et al, 2018) and also by being costeffective (Chu & Snider, 2013;Yuan et al, 2014).…”

Section: Designmentioning

confidence: 99%

Young Adults Rehabilitation Needs and Experiences following Stroke (YARNS): A review of digital accounts to inform the development of age‐appropriate support and rehabilitation

Holloway

Chandler

Reinso

et al. 2021

Journal of Advanced Nursing

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Aims: To explore younger adults' experiences of stroke rehabilitation to inform practice, education and future health policy.Design: Qualitative analysis of digital and other media sources on public platforms. Methods:Between March and June 2020, the experiences of younger adult stroke survivors aged 18 to 45 at the time of the stroke were collected. Data were gathered from publicly available sources, including social media, and from English-speaking users. In total, 117 accounts from 103 participants were identified from films, autobiographical books, blogs, websites, videos, Twitter and Instagram. Data analysis followed narrative and multimodal analysis with a focus on rehabilitation needs.

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“…Blogs allow for detailed and complete stories to be told. Blogs have been used previously to learn more about how individuals share clinical data with family and friends [45], the caregiving perspective [63], and the lived experience of having a chronic condition [64]. Blogs humanize the experience of reproductive health by providing access to the positive experiences, joys, and achievements of women with disability to counterbalance the negativity of published medical research or health care providers.…”

Section: Discussionmentioning

confidence: 99%

What Women With Disabilities Write in Personal Blogs About Pregnancy and Early Motherhood: Qualitative Analysis of Blogs

Litchman¹,

Tran²,

Dearden³

et al. 2019

JMIR Pediatr Parent

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Background More than 1 in 10 women of reproductive age identify as having some type of disability. Most of these women are able to become pregnant and have similar desires for motherhood as women without disability. Women with disability, however, face greater stigma and stereotyping, additional risk factors, and may be less likely to receive adequate reproductive health care compared with their peers without disability. More and more individuals, including those with disability, are utilizing the internet to seek information and peer support. Blogs are one source of peer-to-peer social media engagement that may provide a forum for women with disability to both share and obtain peer-to-peer information and support. Nevertheless, it is not clear what content about reproductive health and pregnancy and/or motherhood is featured in personal blogs authored by women with spinal cord injury (SCI), traumatic brain injury (TBI), spina bifida, and autism. Objective The objective of this study was twofold: (1) to examine the information being shared in blogs by women with 4 types of disabilities, namely, SCI, TBI, spina bifida, and autism, about reproductive health, disability, health care, pregnancy, and motherhood; and (2) to classify the content of reproductive health experiences addressed by bloggers to better understand what they viewed as important. Methods Personal blogs were identified by searching Google with keywords related to disabilities, SCI , TBI , spina bifida , and autism , and a variety of keywords related to reproductive health. The first 10 pages of each database search in Google, based on the relevance of the search terms, were reviewed and all blogs in these pages were included. Blog inclusion criteria were as follows: (1) written by a woman or care partner (ie, parent or spouse) of a woman with a self-identified diagnosis of SCI, TBI, spina bifida, or autism; (2) focused on the personal experience of health and health care during the prepregnancy, prenatal, antepartum, intrapartum, and/or postpartum periods; (3) written in English; and (4) published between 2013 and 2017. A descriptive and thematic qualitative analysis of blogs and corresponding comments was facilitated with NVivo software and matrix analysis. Results Our search strategy identified 125 blogs that met all the inclusion criteria; no blogs written by women with spina bifida were identified. We identified 4 reproductive health themes featured in the blog of women with disabilities: (1) (in)accessible motherhood, (2) (un)supportive others, (3) different, but not different, and (4) society questioning motherhood. Conclusions This analysis of personal blogs about pregnancy and health care written by women with SCI, TBI, and autism provides a glimpse into their experiences. The challenges faced by these w...

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Using blogs to explore the lived‐experience of life after stroke: “A journey of discovery I never wanted to take”

Abstract: Stroke survivors must transition from their previous life to a new and initially unwelcome way of being. Rehabilitation should respect this process and support stroke survivors as they undertake this individual journey.

Cited by 10 publications

References 50 publications

The experiences of frontline nurses in Wuhan: A qualitative analysis of nurse online diaries during the COVID‐19 pandemic

The experiences of frontline nurses in Wuhan: A qualitative analysis of nurse online diaries during the COVID‐19 pandemic

Young Adults Rehabilitation Needs and Experiences following Stroke (YARNS): A review of digital accounts to inform the development of age‐appropriate support and rehabilitation

What Women With Disabilities Write in Personal Blogs About Pregnancy and Early Motherhood: Qualitative Analysis of Blogs

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