Using Diaries to Probe the Illness Experiences of Adolescent Patients and Parental Caregivers

Operational Implementation of Remote Patient Monitoring Within a Large Ambulatory Health System: Multimethod Qualitative Case Study

“…Similarly, while clinicians are keen to encourage patients' engagement in their own care, they too indicated how acting on RPM data should be collaborative. These findings echo others in the digital health literature as well as the larger human-computer interaction research field, which warns of the danger of focusing too strongly on data and highlights the positive impacts of more emotional and experiential self-reporting to health and well-being [28][29][30][31]. This suggests that, at its core, technology-centered care such as RPM should include an element of humanistic, mutually beneficial comanagement, which should include not only the patient-provider-technology triad, but the expanded team of digital care advocates (both trained and lay) as well.…”

Divided We Stand

“…Inspired by research with patients managing multiple chronic conditions [12], structured approaches such as questionnaires to help prepare for encounters (i.e., pre-emptive grounding) and to guide the study visit (i.e., just-in-time grounding) could avoid and correct misalignments. Templated structuring of independent and collaborative reflection of health status (e.g., scaffolding to reconstruct illness experience [54]) can facilitate a collaborative clinical encounter. Scaffolding mechanisms for patients to figure out their goals, convey these goals and values to providers, and discuss treatment plans guided by these goals helps operationalize and communicate about the patient's priorities [72].…”

“It was hard to find the words”: Using an Autoethnographic Diary Study to Understand the Difficulties of Smart Home Cyber Security Practices

“…Being able to add in artefacts was another benefit of having a relatively unstructured reporting setup. As previously reported by Hong et al [14], keeping artefacts exclusively digitally was not practical for ensuring inclusion and consideration in the wider diary entries, so needed to be printed to ensure this happened. The artefacts were of particular value, however, in bringing the outside world into the home, and reminding the first author of the wider cyber security environment.…”

“…Diary studies are a commonly used method within the HCI and CSCW research communities, as they allow for monitoring of participants' behavior or experiences over an extended period of time, in the moment, rather than relying on recall of events in interview settings. In recent years, diary studies have been used to understand how adolescents (children aged [13][14][15][16][17] and parents manage online harms [1,20,34], how new parents approach baby wearable technology [31], how children with autism spectrum disorder use mobile applications [26] and how social groups approach joint privacy and security use of shared applications and devices [6,32]. Garg and Sengupta [13] used a diary study, capturing information from parents with children aged 4-17, on their smart phone and speaker use.…”

“…Watson et al [32] noted that the ability to track responses online was important, as they needed to chase a number of participants with phone calls to ensure they completed the diary. Hong et al [14] found that paper allowed for more flexibility in responses -although participants found managing paper diaries with digital artefacts hard to manage. Putnam and Mobasher [26] found different problems with the diary study method: although the adult participants did not find the method of filling in the diary itself problematic, getting the children involved in the study to participate in a way that generated results to discuss in the diaries proved extremely hard.…”