Using photography to explore psychological distress in patients with pancreatic cancer and their caregivers: a qualitative study

Wong, Shan S.; George, Thomas J.; Godfrey, Melyssa M.; Le, Jennifer; Pereira, Deidre

doi:10.1007/s00520-018-4330-y

Cited by 22 publications

(35 citation statements)

References 33 publications

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“…Some studies in this review fell short in disseminating research findings through knowledge mobilization and knowledge translation strategies. In particular, only 60% (n=15) of articles included some photographs from the data collection phase in the journal article 8,15,31,34,41,47,48,61,62,[65][66][67][68][69] . teach the community as important" 52(p561) .…”

Section: Discussionmentioning

confidence: 99%

Use of Photovoice Methods in Research on Informal Caring: A Scoping Review of the Literature

Ilagan

Akbari

Sethi

et al. 2020

JHHR

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The purpose of this scoping review was to examine the use of Photovoice in caring research. The review assessed the existing literature using the Arksey and O’Malley scoping review methodology. Database searches of relevant literature published worldwide between 1997–2019 yielded 25 articles in the English language that were included in this review. The authors summarized thematic findings. Three themes emerged from data analysis: 1) strengths of using Photovoice; 2) challenges of using Photovoice, and; 3) methodological complexities in Photovoice studies. The small number of studies included in the review (n=25) indicate the limited use of Photovoice in caring research, reflecting missed opportunities for action-oriented research. The scoping review recommends ways that researchers can better address the needs of carers using Photovoice, particularly as a tool for knowledge translation, advocacy, and empowerment.

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Section: Discussionmentioning

confidence: 99%

Use of Photovoice Methods in Research on Informal Caring: A Scoping Review of the Literature

Ilagan

Akbari

Sethi

et al. 2020

JHHR

View full text Add to dashboard Cite

show abstract

“…Ultimately, given that the photographs are generated by the participants themselves, the process led to a more comprehensive exploration and discussion of the experiences that are most salient to participants. As a result, the photographs and subsequent dialogues offered a glimpse to the realities of the lives of participants that was not previously explored (Wong, George, Godfrey, Le, & Pereira, 2019).…”

Section: Part Ii: Participants' Experience With Photo-elicitation Interviewing (Pei)mentioning

confidence: 99%

Using Mobile Applications in Caregiving: The User Experiences of Family Caregivers of Persons Living with Dementia

Wang¹

2023

Preprint

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To date, there is no research that explores the user experiences of family caregivers of persons living with dementia on using mobile applications to support caregiving activities. This is of particular concern given that limited understandings of the user experience in designing technology have often led to end-users experiencing barriers in technology adoption and use. Thus, the purpose of this qualitative descriptive study that used photo-elicitation interviewing was to explore the experiences of family caregivers of persons living with dementia on using mobile applications in their caregiving roles. The findings revealed how mobile applications played an important role in the lives of the caregiver, the care recipient, and both together as a dyad. This research advances our understanding of the impact of mobile application use in caregiving and provides direction for future research, policy, education, practice and application development.

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“…Furthermore, some healthcare providers have classified patients with Stage IV intractable cancers as being near the terminal stage, that is, as "dying people". Such prejudice makes patients even more distressed (15). The more negatively people and healthcare providers perceive the course of a patient's life as incurable, the more difficult it will be for the patient to express that he or she wants to live.…”

Section: The Importance Of Patients Expressing Their Desire To Livementioning

confidence: 99%

“…Since hepatobiliary-pancreatic cancer progresses asymptomatically, most patients are diagnosed with an advanced stage of cancer. Consequently, patients are deeply shocked by the sudden diagnosis (12) and experience a high proportion of psychological distress during treatment (13)(14)(15). In addition, patients with hepatobiliary-pancreatic cancer show more depressive symptoms (16,17) and experience a lower quality of life than healthy people and patients diagnosed with other forms of cancer (18,19).…”

Section: Introductionmentioning

confidence: 99%

Determining desire to live among patients with advanced hepatobiliary-pancreatic cancer for whom curative treatment is not indicated

Morishita

Inoue

2021

GHM

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This study aimed to evaluate the desire to live among patients with advanced hepatobiliary-pancreatic cancer who were excluded from radical treatment and to examine the ideal nursing support for them. We recruited 18 patients in a department specializing in the treatment of hepatobiliary-pancreatic cancer at a university hospital in the metropolitan area of Japan. We included those with advanced hepatobiliary-pancreatic cancer who received a treatment other than definitive treatment. We conducted semi-structured interviews, and the responses were analyzed qualitatively and descriptively. Events experienced by patients with advanced hepatobiliary-pancreatic cancer and out of indication for radical treatment were divided into five major phases, while desire to live was divided into 11 categories. Two of these categories were represented by the word "death". The desire to live was present in all phases, and the expressions of these desires were diverse. Patients suppressed expressing their desire to live because they understood that their situation was challenging. In addition, there was a tendency to avoid expressing their desire to live to medical staff and their families. We found that nurses need to establish a medical relationship in which patients can express their desire to live and become connected to nursing support.

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Using photography to explore psychological distress in patients with pancreatic cancer and their caregivers: a qualitative study

Cited by 22 publications

References 33 publications

Use of Photovoice Methods in Research on Informal Caring: A Scoping Review of the Literature

Use of Photovoice Methods in Research on Informal Caring: A Scoping Review of the Literature

Using Mobile Applications in Caregiving: The User Experiences of Family Caregivers of Persons Living with Dementia

Determining desire to live among patients with advanced hepatobiliary-pancreatic cancer for whom curative treatment is not indicated

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