Using social media for health research: Methodological and ethical considerations for recruitment and intervention delivery

Arigo, Danielle; Pagoto, Sherry L.; Carter‐Harris, Lisa; Lillie, Sarah E.; Nebeker, Camille

doi:10.1177/2055207618771757

Cited by 195 publications

(196 citation statements)

References 67 publications

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“…Facebook claims to have a diverse user base (Chang et al, 2010), but prior work suggests that different groups have different response rates where research is concerned, meaning that targeted marketing, even over social media, is likely to leave certain groups underrepresented (Whitaker et al, 2017). Current recommendations highlight the importance of letting the target population inform the platform choice (Arigo et al, 2018). It would be worthwhile to explore other social media platforms with a minority majority, for additional minority recruitment opportunities.…”

Section: Discussionmentioning

confidence: 99%

“…It would be worthwhile to explore other social media platforms with a minority majority, for additional minority recruitment opportunities. Future research should assess the efficacy of targeted minority recruitment across varying social media platforms, with current recommendations point to the importance of letting the target population inform the platform choice (Arigo et al, 2018).…”

Section: Cyberchondria Participants In Aim 2 Demonstrated Comfort Inmentioning

confidence: 99%

“…Social media tools include a variety of online social networking platforms, blogs, media sharing sites, virtual reality, and gaming environments. These platforms offer public health researchers unique, and often cost-effective, opportunities for research recruitment, particularly for highly stigmatized topics or connecting with populations that are hard to reach, like those impacted by a rare disease (Arigo et al, 2018). But there are lingering concerns about the quality and reliability of online health information, despite potential benefits associated with exchanging health information online and over social media (Friedman et al, 2011;Kukreja et al, 2011;Orizio et al, 2010;Tian, 2010).…”

Section: Introductionmentioning

confidence: 99%

“…When a researcher pays for an advertisement over Facebook, or any other social media entity, they are paying for the opportunity to use this information to target a specific audience. This approach to research participant recruitment appeals to researchers in the field of public health (Curtis, 2012;Voytek et al, 2012;Bull et al, 2011;Carpenter et al, 2011;Hagan, 2010) Sobota & Ozakinci, 2015;Kukreja et al, 2011;Friedman et al, 2011), biased sampling or reach that may accompany social media platforms (Arigo et al, 2018), and concerns about privacy (Dizon et al, 2012;Mostaghimi et al, 2011;Greysen et al, 2010).…”

Section: Aim 3 Introductionmentioning

confidence: 99%

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Abstract DPOC-005: #OVARIANCANCER: USING SOCIAL MEDIA TO FACILITATE HEALTH COMMUNICATION

Coffin

2017

Clinical Cancer Research

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Bioethics & Humanities Ovarian cancer is the fifth leading cause of cancer death among women. Women with a personal 2014). Anyone with an internet connection is invited to create, exchange, and consume usergenerated content, transforming passive consumers into content producers with increasing frequency (Keim & Noji 2011; Arigo et al., 2018). Today, over 72% of adult internet users go online for health information (Volkman et al., 2014; Fox & Duggan, 2013). This trend of seeking and consuming health information over social media is slated to increase along with growing mobile device ownership (PEW Research, 2018C). Social media users feel that the internet is a valuable source for health information, and often query their health concerns over social networking sites inhabited by people with shared health experiences (Duggan et al., 2015; Hong et al., 2012). Many of these individuals use the internet to address their health concerns and even self-diagnose before contacting their health care provider (

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Section: Discussionmentioning

confidence: 99%

Section: Cyberchondria Participants In Aim 2 Demonstrated Comfort Inmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Aim 3 Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Abstract DPOC-005: #OVARIANCANCER: USING SOCIAL MEDIA TO FACILITATE HEALTH COMMUNICATION

Coffin

2017

Clinical Cancer Research

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“…While framing this PSA plan, we considered at length the potential privacy and confidentiality issues, as well as estimation of risk and benefit. Because clinical trial recruitment via online campaigns is relatively new, ethical guidance for researchers is limited [19][20][21].…”

Section: Ethical Considerationsmentioning

confidence: 99%

To end disease tomorrow, begin with trials today: Digital strategies for increased awareness of a clinical trials finder

Jerome

Dunkel

Kennedy

et al. 2019

J. Clin. Trans. Sci.

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Introduction:Individuals experiencing different medical conditions, as well as healthy volunteers, may often be interested in trial participation, and researchers similarly need to find participants to advance medical knowledge. The ResearchMatch (RM) Trials Today clinical trial searching tool leverages data to enable potential participants to look for trial opportunities relevant to their situation. To facilitate expanded use of this tool, we undertook a national digital public awareness campaign to increase awareness of Trials Today among members of the general public.Methods:The awareness campaign promoted Trials Today using Facebook and digital banner messages in 2017, encompassing nine cities across the USA. The digital strategy was complemented by print media in several outlets. We employed descriptive statistics to summarize campaign metrics and site usage data during the campaign.Results:The campaign was successful in increasing visits to Trials Today, with 142,303 sessions logged during its run, as compared to pre-campaign data indicating 104,688 total sessions during the entire 2-year period since the site’s inception. The city-specific click-through rate for all digital impressions, combining Facebook and banner messaging, ranged from 0.50% to 1.09%, resulting in a cost-per-click range of $0.69–$1.15. In addition, visitors conducted 29,697 searches and viewed individual trial records 173,512 times.Conclusion:The public awareness campaign was successful in increasing use of the RM Trials Today clinical trial searching tool. Our findings support the value of digital media messaging as a cost-effective vehicle for promoting clinical trial awareness, especially for chronic ailments.

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Engaging athletes as research participants. A document analysis of published sport science literature

Mitchell,

Ratcliff,

Burke

et al. 2024

European Journal of Sport Science

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Sport science practitioners utilise findings from peer reviewed research to inform practice. Fewer studies are conducted with high performance athletes, however, than those involving recreationally active participants. Noting that research findings from recreational athletes may not be generalisable to the elite, there is a need to engage the latter cohort in research with better potential to influence health and performance. This study identified methods used to engage and recruit highly trained, elite and world class athletes as research participants. A document analysis was conducted using a purposive sample of peer‐reviewed sport science literature. All articles published in 2022 from 18 highly ranked sport science journals were screened for inclusion. Studies investigating athletes ranked as highly trained/national level or above were included. All details related to participant recruitment were extracted from included articles, with the content being coded and thematically analysed using an interpretivist approach. A total of 439 studies from the 2356 screened were included in the analysis. Five primary themes of recruitment strategies were identified, beneath an overarching strategy of purposeful, convenience sampling. Recruitment themes related to the use of a gatekeeper, the research environment providing convenient access to athletes, promoting the study electronically, utilising professional networks and recruiting at training or competition. Engaging athletes through a gatekeeper is a prominent strategy to involve elite athletes in research. It is suggested that researchers work collaboratively with team or organisation personnel to promote recruitment, creating co‐designed approaches that address issues most relevant to athletes and staff.

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Using social media for health research: Methodological and ethical considerations for recruitment and intervention delivery

Cited by 195 publications

References 67 publications

Abstract DPOC-005: #OVARIANCANCER: USING SOCIAL MEDIA TO FACILITATE HEALTH COMMUNICATION

Abstract DPOC-005: #OVARIANCANCER: USING SOCIAL MEDIA TO FACILITATE HEALTH COMMUNICATION

To end disease tomorrow, begin with trials today: Digital strategies for increased awareness of a clinical trials finder

Engaging athletes as research participants. A document analysis of published sport science literature

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