Utilisation d'une échelle d'hétéroévaluation de la douleur chez le sujet sévérement polyhandicapé

Collignon, P.; Giusiano, Bernard; Boutin, André; Combes, J. C.

doi:10.1007/bf03003122

Cited by 25 publications

(12 citation statements)

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“…The Pain Assessment in Advanced Dementia scale provides a measure of instantaneous pain, which is useful for clinicians/parents in deciding whether to start or postpone the evaluation. Future research investigating the role of chronic pain and associated motor function is warranted.…”

Section: Discussionmentioning

confidence: 99%

Motor function in Rett syndrome: comparing clinical and parental assessments

Roidi

Isaias

Cozzi

et al. 2018

Develop Med Child Neuro

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Aim To describe a new clinical tool, the Rett Syndrome Motor Evaluation Scale (RESMES) and to assess (loco‐)motor function in people with Rett syndrome (RTT). Method Formal assessment provided by physicians was followed by parents’ direct observation at home using the RESMES. Sixty females (mean [SD] age 12y 5mo [8y 9mo], range 3–40y) with a clinical diagnosis and genetically determined RTT participated in the study. Spearman's/Pearson's coefficients assessed the correlation between the clinicians’ and caregivers’ evaluations, as well as the correlation of RESMES scores with other scales, namely the Pain Assessment in Advanced Dementia, the Rett Assessment Rating Scale, the Modified Ashworth Scale, and hand function (assessed with a scale of evaluation of purposeful hand function). Scores provided by parents and clinicians were tested statistically by Mann–Whitney U test. Results Approximately 88% of patients had moderate to severe RTT symptoms and, on average, moderate motor impairment based on the RESMES. RESMES total scores provided by clinicians and caregivers were highly correlated (r=0.91), as were the subscale scores. Postural transition was a critical area of the RESMES, where parents systematically provided lower scores than clinicians, indicating milder degrees of disability. Severity of scoliosis and mutation type emerged as significant predictors of motor function. Interpretation The RESMES characterized the (loco‐)motor impairments of the patients with RTT well. It also showed a close correlation between the evaluations of clinicians and caregivers, with the possible exception of postural transition tasks, which should be carefully addressed in a clinical setting. The type of mutation and presence of scoliosis should be evaluated, as they predicted the ability to walk. What this paper adds Caregivers at home can reliably assess motor function in Rett syndrome using the Rett Syndrome Motor Evaluation Scale (RESMES). RESMES scores provided by clinicians and parents were highly correlated. The severity of scoliosis and the genetic mutation predicted standing and walking abilities.

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Section: Discussionmentioning

confidence: 99%

Motor function in Rett syndrome: comparing clinical and parental assessments

Roidi

Isaias

Cozzi

et al. 2018

Develop Med Child Neuro

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“…It was an essential step for us as it questioned routine prescription habits. Since this study morphine derivatives have been more currently prescribed in these two hospitals (Collignon et al, 1997).…”

Section: Discussionmentioning

confidence: 99%

Validation of a pain evaluation scale for patients with severe cerebral palsy

Collignon

Giusiano

2001

European Journal of Pain

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Polyhandicapped children are extremely limited by severe mental retardation, motor deficiency, perception disability and expression troubles. So pain is very difficult to assess in these patients. We have developed a specific scale for rapid evaluation of pain based on the observation of their behaviour. A first questionnaire listing 22 items was elaborated by physicians and nurses on the basis of their clinical experience. The first part of our study was designed to select the most pertinent items in order to define a final scale for simple and reliable everyday use. The second part of our study was designed to demonstrate the construct validity and the psychometric qualities and to determine the threshold of decision of the 10-item final scale. This tool seems to be sensitive and reliable enough to assess pain in severely cerebrally palsied children and young adults.

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“…Using the ESPCP, Collignon et al (1997) developed a ten-item observational scale to evaluate pain and facilitate therapeutic decision making in children with severe handicaps and adults with CP. Collignon and Giusiano (2001) then further developed the tool to better fit an adolescent population with IDD.…”

Section: Existing Pain Scalesmentioning

confidence: 99%