Validation of a pain evaluation scale for patients with severe cerebral palsy

Collignon, P.; Giusiano, Bernard

doi:10.1053/eujp.2001.0265

Cited by 97 publications

(36 citation statements)

References 15 publications

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“…Davies and Evans (2001) conclude that the best method of assessing pain in individuals with severe or profound intellectual disabilities is a thorough clinical assessment combined with a familiarity and understanding of both intellectual disabilities and the individual themselves. As pain is likely to be expressed through more than one non-verbal behavior (Davies & Evans, 2001), and may differ between chronic and acute pain (Collignon & Giusiano, 2001), it is important that caregivers and clinicians alike remain flexible with their interpretation and approach. …”

Section: Painmentioning

confidence: 99%

The expression and assessment of emotions and internal states in individuals with severe or profound intellectual disabilities

Adams¹,

Oliver²

2011

Clinical Psychology Review

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The expression of emotions and internal states by individuals with severe or profound intellectual disabilities is a comparatively under-researched area. Comprehensive or standardised methods of assessing or understanding the emotions and internal states within this population, whose ability to communicate is significantly compromised, do not exist.The literature base will be discussed and compared to that within the general population.Methods of assessing broader internal states, notably depression, anxiety, and pain within severe or profound intellectual disabilities are also addressed. Finally, this review will examine methods of assessing internal states within genetic syndromes, including hunger, social anxiety and happiness within Prader-Willi, Fragile-X and Angelman syndrome. This will then allow for the identification of robust methodologies used in assessing the expression of these internal states, some of which may be useful when considering how to assess emotions within individuals with intellectual disabilities.

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Section: Painmentioning

confidence: 99%

The expression and assessment of emotions and internal states in individuals with severe or profound intellectual disabilities

Adams¹,

Oliver²

2011

Clinical Psychology Review

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“…Giusiano et al (1995) and Collignon et al (2001) investigated pain behaviours in 100 individuals from 2 to 33 years (mean age 16 years) with multiple and profound disability, without speech or any means of communicating through symbols. The original 22 behavioural cues from which items for the scale were derived were elicited from physicians' reports of cues they considered to be indicative of pain during medical examination.…”

mentioning

confidence: 99%

Clinical validation of the Paediatric Pain Profile

Hunt

Goldman

Seers

et al. 2004

Develop Med Child Neuro

190

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The Paediatric Pain Profile (PPP) is a 20-item behaviour rating scale designed to assess pain in children with severe neurological disability. We assessed the validity and reliability of the scale in 140 children (76 females, mean age 9 years 11 months, SD 4 years 7 months; range 1 to 18 years), unable to communicate through speech or augmentative communication. Parents used the PPP to rate retrospectively their child's behaviour when 'at their best' and when in pain. To assess interrater reliability, two raters concurrently observed and individually rated each child's behaviour. To assess construct validity and responsiveness of the scale, behaviour of 41 children was rated before and for four hours after administration of an 'as required' analgesic. Behaviour of 30 children was rated before surgery and for five days after. Children had significantly higher scores when reported to have pain than 'at their best' and scores increased in line with global evaluations of pain. Internal consistency ranged from 0.75 to 0.89 (Cronbach's alpha) and interrater reliability from 0.74 to 0.89 (intraclass correlation). Sensitivity (1.00) and specificity (0.91) were optimized at a cut-off of 14/60. PPP score was significantly greater before administration of the analgesic than after (paired-sample t-tests, p<0.001). Though there was no significant difference in mean pre-and postoperative scores, highest PPP score occurred in the first 24 hours after surgery in 14 (47%) children. Results suggest that the PPP is reliable and valid and has potential for use both clinically and in intervention research.

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“…Other pain assessment tools for children with CP validated for postoperative pain assessment include the Individualized Numeric Rating Scale (INRS) [10] with established construct validity and inter-rater reliability and the Noncommunicating Childrens's Pain Checklist-Postoperative Version (NCCPC-PV) [11,12] with established construct validity, inter-rater reliability and internal consistency. Good psychometric properties were found for the Paediatric Pain Profile (PPP) [13] for assessment of everyday pain with established content and construct validity, inter-rater reliability and internal consistency and for the Echelle Douleur Enfant San Salvador (DESS) [14] for procedural pain assessment with established construct validity [15].…”

Section: Introductionmentioning

confidence: 98%