Validation and psychometric properties of the EULAR Sjögren's Syndrome Patient Reported Index (ESSPRI) into Brazilian Portuguese

Paganotti, Maurício Aquino; Valim, Valéria; Serrano, Érica Vieira; Miyamoto, Samira Tatiyama; Giovelli, Raquel Altoé; Santos, Maria Carmen Lopes Ferreira Silva

doi:10.1016/j.rbre.2015.08.001

Cited by 6 publications

(6 citation statements)

References 35 publications

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“…In that study, the ICC score was 0.911 and test-retest reliability was reported to be excellent. 19 However, unlike the current study, the Brazilian Portuguese version reported that the internal consistency coefficient was 0.447 and weak. The Turkish version results show that ESSPRI (TR) is reliable and valid.…”

Section: Discussioncontrasting

confidence: 90%

“…The authors emphasized that only evaluating disease activity does not provide enough information about the patient's symptoms and that ESSPRI should be evaluated. 19 However, a limitation of this study was that disease activity was not evaluated in the current study patients. If disease activity had been evaluated, systemic complications may have been revealed and the relationship between symptom severity and systemic complications could have been determined.…”

Section: Discussionmentioning

confidence: 92%

“…18 Other than in English, the index has proven validity and reliability in the Brazilian Portuguese language. 19 Validity and reliability studies of ESSPRI have not been conducted in Turkish. Therefore, in this study, we aimed to assess the reliability and validity of the Turkish version of ESSPRI (TR) in patients with pSS.…”

Section: Citationmentioning

confidence: 99%

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The reliability and validity of the European League Against Rheumatism Sjögren Syndrome Patient Reported Index in patients with primary Sjögren syndrome: A Turkish version study

et al. 2020

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Objectives: This study aims to assess the reliability and validity of the Turkish version of the European League Against Rheumatism (EULAR) Sjögren Syndrome Patient Reported Index (ESSPRI) (TR) in patients with primary Sjögren syndrome (pSS). Materials and methods:A cross-sectional survey study design and analysis were used to assess the reliability and validity of the ESSPRI (TR) between March 2019 and July 2019. A total of 30 patients (5 males, 25 females; mean age 54.1±10.5 years; range, 18 to 75 years) diagnosed as pSS according to revised American College of Rheumatology (ACR)/EULAR classification criteria were included. ESSPRI (TR) was applied to the patients with face-to-face interviews twice: on their first visit and after an interval of 15 days. The test-retest reliability was assessed with the intraclass correlation coefficient (ICC), and the internal consistency of the multi-item subscales by calculating Cronbach alpha values. The correlations between basal and stimulated salivary flow (BSF and SSF), Oral Health Impact Profile-14 (OHIP-14) and Oral Health-Related Quality of Life-UK (OHRQOL-UK) questionnaires were evaluated to determine the construct validity. Results: The ICC value for the test/retest reliability of ESSPRI (TR) was 0.925. The internal consistency was 0.682. There were low to moderate correlations between the ESSPRI (TR) total score and BSF (-0.39), SSF (-0.50), OHIP-14 total (0.57) and OHRQOL-UK total (-0.67). Conclusion:The Turkish version of the ESSPRI was found to be clinically valid and reliable to be used in clinical evaluations and rehabilitation interventions in patients with pSS.

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Section: Discussioncontrasting

confidence: 90%

Section: Discussionmentioning

confidence: 92%

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The reliability and validity of the European League Against Rheumatism Sjögren Syndrome Patient Reported Index in patients with primary Sjögren syndrome: A Turkish version study

et al. 2020

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“…The overall result represents a mean value of the three domains' scores, ranging from 0 to 10 14 . ESSPRI has been widely used as an endpoint in clinical research so far because it is considered to be a useful predictor of the health status of pSS patients, and it also correlates well with HRQoL domains 15 .…”

Section: Methodsmentioning

confidence: 99%

Translation, transcultural adaptation, and validation of the Serbian version of the PSS-QoL questionnaire: A pilot research

et al. 2023

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Background/Aim. Assessment of health-related quality of life is fundamental for a better understanding the disease?s effect on different aspects of patients? daily functioning and treatment modalities efficacy. Primary Sj?gren's Syndrome Quality of Life Questionnaire (PSS-QoL) is the first disease-specific instrument for evaluating health-related quality of life in patients with primary Sj?gren syndrome. The aim of this study was to formally translate the PSS-QoL questionnaire from English to Serbian, assess its psychometric properties, and validate it for use in the Serbian population. Methods. The research was designed as a pilot study and included 30 participants. Internal consistency was determined by calculating Cronbach?s alpha coefficient. The construct validity of the questionnaire was estimated by the correlation of its overall result with the patients? EuroQoL-5D, EULAR SS Patients Reported Index, Oral Health Impact Profile-14, and Emotion Regulation Questionnaire scores. Results. There were 29 (96.7%) female participants and one (3.3%) male participant in the research. The average (? SD) score of PSS-QoL was 44.63 ? 12.901 at baseline and 41.70 ? 12.075 at follow-up. Cronbach?s alpha value of the Serbian version of PSS-QoL was 0.922. The test-retest intraclass correlation coefficient was 0.981 (95% CI: 0.436-0.996). Analysis revealed a statistically significant moderate to strong correlation between PSS-QoL scores and EuroQol-5D (rs = -0.696), EULAR SS Patients Reported Index (rs = 0.883), and Oral Health Impact Profile-14 scores (rs = 0.809). Conclusion. Serbian adaptation of the PSS-QoL instrument can be used to evaluate the health-related quality of life of patients with primary Sj?gren syndrome both in academic research and in clinical practice as a novel outcome measure.

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“…A atividade de doença sistêmica nos pacientes com SSp foi determinada pelo EULAR Sjögren's Syndrome Disease Activity Index (ESSDAI) (Seror et al, 2010;Serrano et al, 2013). O índice de sintomas (secura ocular e oral, fadiga e dores articulares ou musculares) nos pacientes com SSp foi analisado pelo EULAR Sjögren's Syndrome Reported Index (ESSPRI) (Seror et al, 2011;Paganotti et al, 2015). Em relação ao ESSDAI, uma diminuição de pelos três pontos foi considerada uma melhora relevante (Seror et al, 2016).…”

Section: Avaliação Clínicaunclassified

Síndrome de Sjögren primária: impacto do tratamento odontológico de atenção primária e estudo dos anticorpos anti-DNase I

Martins¹

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Agradeço primeiramente a Deus, por ter sempre me guiado no caminho que era de sua vontade e ter me apresentado às pessoas que permitiram que eu não caminhasse sozinho nesta jornada.Destaco primeiramente, a Profª Drª Sandra Gofinet Pasoto, que me orientou em todos esses anos de doutorado, sempre se fazendo presente em cada etapa da elaboração deste trabalho, com muita disposição em me ensinar, esmero em suas correções e por toda dedicação a mim e à elaboração da tese. Obrigado Drª Sandra por tudo, por tanto e por neste tempo ter me mostrado como vencer cada etapa do doutorado. Sem você, não seria possível.À Profª Drª Eloisa Bonfá, por ter me permitido integrar seu projeto temático e me introduzir no mundo da Reumatologia. Obrigado por todas as oportunidades que tive neste período de doutorado para, inclusive, além da elaboração da tese de doutorado. Aos Prof. Dr. Clóvis, Drª Nádia e a todos assistentes e doutores da disciplina de Reumatologia. Obrigado por contribuírem com meu ensino e vivência clínica durante este período. Sobretudo, muito obrigado pelo acolhimento em cada ambulatório. Especialmente, obrigado Drª Lissiane Guedes, por confiar em mim junto à Drª Sandra para os diagnósticos e assistência às pacientes com síndrome de Sjögren. À Drª Maria Paula Peres, por me acompanhar desde a época de residência e tornar a Divisão de Odontologia do Instituto Central do Hospital das Clínicas (ICHC) local de formação e transformação para mim. Obrigado por me ceder espaço e viabilizar a minha tese. Estendo este agradecimento ao Dr. Reynaldo Antequera, por ceder ambiente clínico para realização da tese junto à Divisão de Odontologia do Instituto de Psiquiatria (IPQ). Sem vocês, não seria possível. Agradeço a todos assistentes da Odontologia do HC, especialmente à Drª Rita Napole, Drª Bruna Varotto e Drª Carol Andrade, com quem cultivei amizade durante a elaboração desta tese no IPQ. Ao Prof. Dr. Paulo Braz, obrigado por ter feito meu primeiro contato com a ciência e por caminhar comigo ainda hoje, na vida acadêmica e pessoal. Sua orientação e amizade significam muito para mim. Também agradeço aos professores da Faculdade de Odontologia da Universidade de São Paulo (USP), especialmente os da Disciplina de Patologia Bucal, que são meus amigos e exemplos: Profª Drª Marília Martins, Profª Karem Ortega e Profª Marina Magalhães.Agradeço aos amigos e colegas doutorandos que fiz nesta jornada, especialmente à Lorena Villamarín, obrigado por desprender do seu curto tempo no Brasil comigo, seja na amizade, seja na elaboração deste trabalho, nunca vou me esquecer de você. À Juliana Gennari, por todo carinho e alegria que traz consigo em cada manhã de sexta-feira, no Ambulatório de Síndrome de Sjögren, e por ter me permitido integrar seu projeto de doutorado. Também agradeço os pós doutorandos Tatiana Pedrosa e Leonard Kanda, por serem exemplos de persistência e por me ajudarem sempre com muito carinho quando precisei.Aos alunos de iniciação científica, Carolina Ribeiro, por demonstrar interesse em aprender qualquer conteúdo apresen...

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Validation and psychometric properties of the EULAR Sjögren's Syndrome Patient Reported Index (ESSPRI) into Brazilian Portuguese

Cited by 6 publications

References 35 publications

The reliability and validity of the European League Against Rheumatism Sjögren Syndrome Patient Reported Index in patients with primary Sjögren syndrome: A Turkish version study

The reliability and validity of the European League Against Rheumatism Sjögren Syndrome Patient Reported Index in patients with primary Sjögren syndrome: A Turkish version study

Translation, transcultural adaptation, and validation of the Serbian version of the PSS-QoL questionnaire: A pilot research

Síndrome de Sjögren primária: impacto do tratamento odontológico de atenção primária e estudo dos anticorpos anti-DNase I

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